Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for June 2020

Warfarin & menopause

Hi ladies , please can I ask what you ladies have taken for the menopause when on warfarin. Talked to the warfarin clinic and they don’t have a clue what to...

Hi ladies , please can I ask what you ladies have taken for the menopause when o...

amy1808

•5 years ago

11 Replies

A brief further update.

After lots of tests and poking and Professor D’Cruz, Paul Holmes and Professor Beverley Hunt putting their head together they originally thought although APS...

After lots of tests and poking and Professor D’Cruz, Paul Holmes and Professor B...

Greenmil3

•5 years ago

10 Replies

New diagnosis

First post! I’ve just been diagnosed with a blood clot on my brain and possible APS (subject to 3 month test). Been started on short term heparin and long...

First post! I’ve just been diagnosed with a blood clot on my brain and possible ...

GillyA

•5 years ago

17 Replies

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Coaguchex Xs test strips

Just wondering if anyone stores their test strips in the fridge, ? I never have but new pharmacy have written it on the label

Just wondering if anyone stores their test strips in the fridge, ? I never have ...

daisyd

•5 years ago

13 Replies

swollen leg

Hi lovely peeps, been a long time since I posted anything I was diagnosed with Hughes syndrome in 2002 Despite negative antibodies I had suffered multiple...

Hi lovely peeps, been a long time since I posted anything I was diagnosed with ...

mully

•5 years ago

10 Replies

Risk assessments

Well spoke to haematologist and 2nd set of bloods confirms antiphospholid syndrome. Sending me back to GP to be started on warfarin. He also spoke to...

Well spoke to haematologist and 2nd set of bloods confirms antiphospholid syndro...

Dartsnerd

•5 years ago

10 Replies

Two Miscarriages and now waiting for blood tests

Hi, I am new to this group. I am 34, and am trying for my first baby for 3 years. I had two miscarriages. One was a year ago at 7 weeks(twins) and one was very...

Hi, I am new to this group. I am 34, and am trying for my first baby for 3 years...

5678sar

•5 years ago

11 Replies

What shall i do now?

Hi I had Telephone consult from St Thomas' today. they feel I do not have APS as the the test results they took have come back negative. they said my clinical...

Hi I had Telephone consult from St Thomas' today. they feel I do not have APS as...

pinkyandperky

•5 years ago

13 Replies

Please keep cool and hydrated to avoid a worse risk of clotting.

Hello, just a gentle reminder to keep cool and hydrated in the current UK heat wave, or any location, tepid baths are better than hot baths for keeping cool in...

Hello, just a gentle reminder to keep cool and hydrated in the current UK heat w...

MaryF

Administrator•5 years ago

9 Replies

Update From GP

My GP says he wrote to a 'consultant haematologist' for advice. The reply is 'He feels that APS is unlikely based on previous normal coagulation screen and...

My GP says he wrote to a 'consultant haematologist' for advice. The reply is 'He...

RabbitMum_1965

•5 years ago

14 Replies

Heomotoma

Hi Guys. Two weeks ago I fell in the garden, breaking my elbow, and sustaining a heomotoma to my leg. Is there any particular risk, re clotting or anything APS...

Hi Guys. Two weeks ago I fell in the garden, breaking my elbow, and sustaining a...

donnabrain

•5 years ago

14 Replies

GP Ignoring Me

I'm female mid 50s. I found out I had wildly fluctuating BP over 24 hours, a brain aneurysm, autoimmune thyroid disease, low Vit D (less than 20, UK...

I'm female mid 50s. I found out I had wildly fluctuating BP over 24 hours, a bra...

RabbitMum_1965

•5 years ago

6 Replies

Hadassah doctors crack the cause of fatal corona blood clots

Hadassah researchers discovered that patients who form fatal blood clots have an increased level of alpha defensin protein in their blood. By MAAYAN...

Hadassah researchers discovered that patients who form fatal blood clots have an...

lupus-support1

Administrator•5 years ago

6 Replies

aps

got aps and keep having ulcers on my left foot after having dvt it took 13 months for the one I got to go as soon as it closed guess what another one breaks...

got aps and keep having ulcers on my left foot after having dvt it took 13 mon...

johncarver

•5 years ago

7 Replies

Severe Menstrual Clots

Hi all, Hope everyone is coping well during the lockdown. I have been experience very heavy periods on numerous occasions, however they vary sometimes on how...

Hi all, Hope everyone is coping well during the lockdown. I have been experienc...

Danielle2419

•5 years ago

12 Replies

Is anyone being tested for their INR since the lockdown ?

Hi all. Has anyone had their blood tested since lockdown.? I’m on 2 injections daily and my blood was so thick that I was being tested Every week to 2 weeks....

Hi all. Has anyone had their blood tested since lockdown.? I’m on 2 injections d...

Teanna

•5 years ago

40 Replies

Are people with APS more susceptible to Covid19?

My daughter has APS and is afraid that because she has an autoimmune disease her body might react more violently to Corona than people without such a...

My daughter has APS and is afraid that because she has an autoimmune disease her...

monticello

•5 years ago

4 Replies

A new post on GHIC from Dr Arvind Kaul regarding Covid 19

https://ghicworld.org/covid-19/ There will be plenty more to come, and I will pop them on here when they are ready MaryF

https://ghicworld.org/covid-19/ There will be plenty more to come, and I will p...

MaryF

Administrator•5 years ago

14 Replies

White lines on nails

Yet another question, I'm so sorry , my head is buzzing with questions and I can't keep calling my GP , you guys know so much ! Should I be worried about...

Yet another question, I'm so sorry , my head is buzzing with questions and I can...

Sevenstar

•5 years ago

14 Replies

I’m high again

I give up despite following all the rules, I have only had three INR results (of my weekly tests) In range (3.5-4.5) this YEAR I’ve ranged from 2.5-16.8 this...

I give up despite following all the rules, I have only had three INR results (of...

WendyWoo50

•5 years ago

32 Replies

How long does the right boob heal after minimally invasive heart surgery

Hi everyone. Nice to have joined your community. I have done my open heart surgery last and got a mechanical mitral valve. I did the minimal invasive surgery...

Hi everyone. Nice to have joined your community. I have done my open heart surge...

Thia

•5 years ago

3 Replies

sludgy blood

Hi everyone, please can anyone tell me if you can feel your blood going sludgy or sticky on a day to day basis , how you can tell , how you feel and what do...

Hi everyone, please can anyone tell me if you can feel your blood going sludgy o...

Sevenstar

•5 years ago

36 Replies

2 positive 12 weeks apart and now now negative antibodies for APS?

My antiphospolipid anti bodies were positive last June and last November. When i went to Guys' In February they diagnosed me as having obstetric APS they took...

My antiphospolipid anti bodies were positive last June and last November. When i...

pinkyandperky

•5 years ago

5 Replies

Symptoms

Hi there What are the symptoms that you have please ? I am currently waiting to see a rheumatologist for suspected SLE but someone mentioned APS due to a...

Hi there What are the symptoms that you have please ? I am currently waiting t...

Natz36

•5 years ago

4 Replies

Knee pain

I have had severe knee pain for years had physio made no difference, I think I have damaged something inside it from all the falls I have had before starting...

I have had severe knee pain for years had physio made no difference, I think I h...

daisyd

•5 years ago

7 Replies

Fed Up with my primary

Good Morning from across the pond! I’m so fed up with my primary doctor! I’ve asked him for Hashimoto’s test and he said no! What’s it to him! Oh I know, he’s...

Good Morning from across the pond! I’m so fed up with my primary doctor! I’ve as...

Debbweb01

•5 years ago

17 Replies

AEKGAK

I have supported this ever since 1995 when I found out in 2000 suffer with 9 out of 10 symptons on the list.

I have supported this ever since 1995 when I found out in 2000 suffer with 9 ou...

AEKGAK

•5 years ago

6 Replies

Heat!

Hi there , does anyone feel worse in hot weather, do you think it makes sticky blood worse ? I'm feeling absolutely wiped out ! Thanks guys

Hi there , does anyone feel worse in hot weather, do you think it makes sticky b...

Sevenstar

•5 years ago

16 Replies

aps specialist usa nj

my rhummie moved to Arizona does anyone know of someone who is a specialist in aps and autoimmune thank you

my rhummie moved to Arizona does anyone know of someone who is a specialist in a...

BeachHaven123

•5 years ago

7 Replies

Covid 19 a vascular disease ?

Interesting read. Could Covid 19 be vascular disease? Source is: Medium Members MR.Cole_Photographer/Getty Images InApril, blood clots emerged as one of the...

Interesting read. Could Covid 19 be vascular disease? Source is: Medium Members ...

wgsuzy

•5 years ago

8 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2020

Warfarin & menopause

A brief further update.

New diagnosis

Coaguchex Xs test strips

swollen leg

Risk assessments

Two Miscarriages and now waiting for blood tests

What shall i do now?

Please keep cool and hydrated to avoid a worse risk of clotting.

Update From GP

Heomotoma

GP Ignoring Me

Hadassah doctors crack the cause of fatal corona blood clots

aps

Severe Menstrual Clots

Is anyone being tested for their INR since the lockdown ?

Are people with APS more susceptible to Covid19?

A new post on GHIC from Dr Arvind Kaul regarding Covid 19

White lines on nails

I’m high again

How long does the right boob heal after minimally invasive heart surgery

sludgy blood

2 positive 12 weeks apart and now now negative antibodies for APS?

Symptoms

Knee pain

Fed Up with my primary

AEKGAK

Heat!

aps specialist usa nj

Covid 19 a vascular disease ?

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