Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for June 2019

Anyone used CBD oil?

Hi has anybody tried CBD oil for muscle/joint pain? Did it help? Which brand/strength did you use? Thanks

Hi has anybody tried CBD oil for muscle/joint pain? Did it help? Which brand/s...

NicBay

•5 years ago

4 Replies

Heparin Dosage

I was diagnosed with the big 3 by Prof Hughes 2 years ago and had a problem with taking Plaquanil and can not take high dose Steriods - so I have been very...

I was diagnosed with the big 3 by Prof Hughes 2 years ago and had a problem with...

riannabri

•5 years ago

7 Replies

Disability Help

Im applying for disability in the US and I need to find the best place to find information to give them. They don’t seem to know about Hughes syndrome which I...

Im applying for disability in the US and I need to find the best place to find i...

Scottc

•5 years ago

5 Replies

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Cheek twitch when blinking

Hey all, I’ve had minor eye twitches and general twitches in my face for as long as I can remember. Today, I noticed while on a FaceTime call with my dad that...

Hey all, I’ve had minor eye twitches and general twitches in my face for as lon...

Pemak21

•5 years ago

1 Reply

Cheek twitch when blinking

Hey all, I’ve had minor eye twitches and general twitches in my face for as long as I can remember. Today, I noticed while on a FaceTime call with my dad that...

Hey all, I’ve had minor eye twitches and general twitches in my face for as long...

Pemak21

•5 years ago

1 Reply

Hematomas

Anyone have there’s in your arms and legs and sometimes break under skin?

edgewater100

•5 years ago

7 Replies

Thyroid Survey

For those of you with a Thyroid problem of any kind, you may wish to fill out this survey which is being run by Improve Thyroid Treatment Campaign (ITT) Not...

For those of you with a Thyroid problem of any kind, you may wish to fill out th...

MaryF

Administrator•5 years ago

2 Replies

Bulky womb

Was diagnose recent with this don't laugh it genuine condition... I was admitted hospital with water infection 9 days and sickness didnt budge after infection...

Was diagnose recent with this don't laugh it genuine condition... I was admitted...

rach1081985

•5 years ago

2 Replies

Hi I’m back!!!

Hi it’s Debbie! Just wanna say hi to all of my friends on this forum! I miss y’all! For past 21/2 years I’ve been busy taking care of my Hubby Stan! He had...

Hi it’s Debbie! Just wanna say hi to all of my friends on this forum! I miss y’a...

Debbweb01

•5 years ago

20 Replies

Headaches

My 8 yr old has frequent headaches weve bn bk and forth gp and optician finally request blood test... Testing fir thyroid and full blood count is it worth...

My 8 yr old has frequent headaches weve bn bk and forth gp and optician finally ...

rach1081985

•5 years ago

2 Replies

Migraine referral

Hello, I was diagnosed with APS after a DVT 4 years ago. Recently I’ve been getting more frequent migraines/loss of vision, my doctor has just referred me to...

Hello, I was diagnosed with APS after a DVT 4 years ago. Recently I’ve been get...

Zoeb22

•5 years ago

7 Replies

Unusy msrkd

Unusual bruising in strange places and quite big...doctor not concerned but I am ...just fobbed off normal as I on blood thinners... Bruises r in places where...

Unusual bruising in strange places and quite big...doctor not concerned but I am...

rach1081985

•5 years ago

3 Replies

Botox

Does anyone get botx injections for migraines?

edgewater100

•5 years ago

4 Replies

Ear/jaw issues and swollen lymph glands

Hi all, I had the same issues last year when not diagnosed, now have the same again, now diagnosed APS My right side jaw aches/feels odd, inner ear feels...

Hi all, I had the same issues last year when not diagnosed, now have the same ag...

bathouse

•5 years ago

6 Replies

Suffering Headaches

Hi, I am asked a question again about my headaches. I have Hughes Disease and minor or remission Lupus. I have a lot of headaches, Usually my INR is 2.5- 3.0...

Hi, I am asked a question again about my headaches. I have Hughes Disease and mi...

sperling

•5 years ago

5 Replies

Plaquinal

Good Morning to Everyone I have a question for anyone taking Plaquinal. Is it more effective to split the dose? If it doesn't matter, when is the best time...

Good Morning to Everyone I have a question for anyone taking Plaquinal. Is it m...

hihannula

•5 years ago

17 Replies

At last a proper referral

Just an update. After being formally diagnosed by professor d’Cruz at the lupus clinic at Guys Hospital they thought my local rheumatology clinic would take...

Just an update. After being formally diagnosed by professor d’Cruz at the lupus ...

Greenmil3

•5 years ago

11 Replies

Tetanus vaccine

Hi everyone, do you know if it is safe to get a tetanus vaccine when having APS? Will it effect my INR? I am on both warfarin and Clopidogrel. Thanks and have...

Hi everyone, do you know if it is safe to get a tetanus vaccine when having APS?...

Anjdur

•5 years ago

7 Replies

New member

I am a new member only diagnosed with APS in April following discussion with Neurologist over the phone when confirmed 2nd set of bloods. Two weeks ago had...

I am a new member only diagnosed with APS in April following discussion with Neu...

SteveRN

•5 years ago

10 Replies

Massage and APS

Hello I'm currently on Hydroxychloriquine and Aspirin for APS treatment, wondering if it would besafe to have a lymphatic drainage massage? I'm a bit anxious...

Hello I'm currently on Hydroxychloriquine and Aspirin for APS treatment, wonde...

Elleflo788

•5 years ago

12 Replies

Anybody out there

Anybody out there in south Wales area UK

rach1081985

•5 years ago

15 Replies

A few questions

INR taking a time to get back to normal range of 4.0-4.5 any ideas ? Feelings of very tired and Fatigued lately but I have been on folic acid tablets for...

INR taking a time to get back to normal range of 4.0-4.5 any ideas ? Feelings ...

Markgammon06

•5 years ago

7 Replies

History of obstetric APS: Heparin not required anymore for long-distance air travel?

Hello, I just very recently discovered this site & what a wonderful resource it is. I've already learned a lot of new information so quickly. I'm wondering...

Hello, I just very recently discovered this site & what a wonderful resource i...

Candyland

•5 years ago

10 Replies

Concerns

My consultant seems think cos I'm doing ok... I only need c her one more time next year and thats it....ive been seeing her and other docs since my diagnosis...

My consultant seems think cos I'm doing ok... I only need c her one more time n...

rach1081985

•5 years ago

11 Replies

A question for the ladies and bit embarrassing and maybe useles

Recurrent thrush ,? Could there b link ive treated with numerous pessary creams oral meds. Seems clear up then come bk...sorry if stupid question... Its...

Recurrent thrush ,? Could there b link ive treated with numerous pessary creams...

rach1081985

•5 years ago

19 Replies

Hi all

Hi everyone I'm bk its been while.. I'm rach 33 2 kids...ive been diagnosed nearly 12 years now.. I take rivaroxaban as warfarin didn't seem work. Ive been...

Hi everyone I'm bk its been while.. I'm rach 33 2 kids...ive been diagnosed near...

rach1081985

•5 years ago

6 Replies

How True.

I wonder how many of us can relate to this ?

Jillymo

•5 years ago

8 Replies

Stomach ulcers after starting Warfarin?

Has anyone gotten stomach ulcers after starting warfarin? I eat healthy, nothing greasy but I have bad stomach pain (right under rib cage were the actual...

Has anyone gotten stomach ulcers after starting warfarin? I eat healthy, nothing...

Ylmom

•5 years ago

6 Replies

New Treatment Guidelines for Blood Clotting Disorder

Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for antiphospholipid syndrome, a disorder of the immune system that causes blood...

Whitney J. Palmer June 13, 2019 EULAR has issued new treatment guidelines for ...

lupus-support1

Administrator•5 years ago

5 Replies

Blood clot in head

Hi I'm Jennifer jennriggs I found out in July 2018 I have a blood clot in back on my brain on right side it's in my sinus cavity. I've been on warfarin and was...

Hi I'm Jennifer jennriggs I found out in July 2018 I have a blood clot in back o...

Jennriggs

•5 years ago

40 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2019

Anyone used CBD oil?

Heparin Dosage

Disability Help

Cheek twitch when blinking

Cheek twitch when blinking

Hematomas

Thyroid Survey

Bulky womb

Hi I’m back!!!

Headaches

Migraine referral

Unusy msrkd

Botox

Ear/jaw issues and swollen lymph glands

Suffering Headaches

Plaquinal

At last a proper referral

Tetanus vaccine

New member

Massage and APS

Anybody out there

A few questions

History of obstetric APS: Heparin not required anymore for long-distance air travel?

Concerns

A question for the ladies and bit embarrassing and maybe useles

Hi all

How True.

Stomach ulcers after starting Warfarin?

New Treatment Guidelines for Blood Clotting Disorder

Blood clot in head

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