Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,442 members•10,641 posts

All posts for June 2018

More good news for me.

Saw Cardiologist a few days ago after we had a disagreement last time I saw her about adding yet another pill to mix. Rheumy told me to wait until results of...

Saw Cardiologist a few days ago after we had a disagreement last time I saw her ...

Ozchick

•7 years ago

3 Replies

Hello

Hi everyone! Want to just say hi! I've been out of the loop for a while! Kinda Dow in dumps! I'm ok tho! I wish u all the best! Thx for ur Hellos thru my...

Hi everyone! Want to just say hi! I've been out of the loop for a while! Kinda D...

Debbweb01

•7 years ago

11 Replies

venous blood draws vs finger stick

I was in process of changing Primary Care Docs. That included switching to a different clinic for INR/PT checks. They sent a letter saying they would not offer...

I was in process of changing Primary Care Docs. That included switching to a dif...

DannyBoy1

•7 years ago

10 Replies

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Any norethisterone experience please?

Hi, one for the ladies please...... Does anyone have any Norethisterone experiences please? I have recently been suffering from extremely heavy menstrual...

Hi, one for the ladies please...... Does anyone have any Norethisterone experien...

LoveSeaside

•7 years ago

13 Replies

Agatston Score

Hi Everyone. I have been taking warfarin for almost 2 decades. I am on warfarin for 2 reasons....APS and a mechanical heart valve. I would like to know if...

Hi Everyone. I have been taking warfarin for almost 2 decades. I am on warfarin...

hihannula

•7 years ago

9 Replies

All put back together again.

I have a K-wire holding the 4th metacarpal in alignment and a screw in some other bone (there are too many bones in a wrist!) The plaster came off today and a...

I have a K-wire holding the 4th metacarpal in alignment and a screw in some othe...

Ozchick

•7 years ago

7 Replies

APS AND BARRETTS ESOPHAGUS ANY CONNECTION?

Hi I read a post today from a new member. She has very similar symptoms as I have. I have Barrett’s esophagus and APS. I’m wondering if there is any...

Hi I read a post today from a new member. She has very similar symptoms as I hav...

Nanny23

•7 years ago

6 Replies

Unsolved mystery.....

Hi all, I've been recently dealing with some weird issues, and I am trying to figure out if it's due to my APS or something else. I figured if anyone can...

Hi all, I've been recently dealing with some weird issues, and I am trying to fi...

jaymacz28

•7 years ago

21 Replies

App for tracking daily intake of Vitamin K?

Does anyone know of an app that calculates your daily vitamin K? I know there are ones like Livestrong that you can track calories. Just curious. My INR was a...

Does anyone know of an app that calculates your daily vitamin K? I know there ar...

Holley

•7 years ago

6 Replies

Hughes Syndrome/APS more awareness needed.

https://www.hss.edu/newsroom_dr-erkan-antiphospholipid-syndrome-review.asp#.WyrFIAzgXZ4.twitter MaryF

https://www.hss.edu/newsroom_dr-erkan-antiphospholipid-syndrome-review.asp#.WyrF...

MaryF

Administrator•7 years ago

1 Reply

Out and about....

Hi guys and girls I will not be on here quite so much over the next few days as I am travelling about the place, and not always with access to internet, with...

Hi guys and girls I will not be on here quite so much over the next few days as...

MaryF

Administrator•7 years ago

7 Replies

Not sure if i have APS.

Hi to all! I hope you are feeling good. Last year I had retinal vein occlusion. We did all the tests but they were negative. Then I checked my antibodies and...

Hi to all! I hope you are feeling good. Last year I had retinal vein occlusion....

Alex94

•7 years ago

2 Replies

I hope this family get the right answers and treatment!

http://www.dailymail.co.uk/health/article-5861083/Girl-3-left-fighting-life-hospital-suffering-stroke.html I have been in touch with one of the parents, sent...

http://www.dailymail.co.uk/health/article-5861083/Girl-3-left-fighting-life-hosp...

MaryF

Administrator•7 years ago

7 Replies

Need a few screws in my hand.

Saw the hand Surgeon today and he is leaning toward stabilising my wrist/hand with a few screws. I have it splinted ATM with a view to surgery Thurs or Fri....

Saw the hand Surgeon today and he is leaning toward stabilising my wrist/hand wi...

Ozchick

•7 years ago

11 Replies

Stressed out

My mum has been being treated for myeloma - which has had a disastrous effect on the APS inr is either really high or really low - just started to stabilise...

My mum has been being treated for myeloma - which has had a disastrous effect on...

kittymum78

•7 years ago

9 Replies

Hematologist

Does anyone recommend a hematologist and/or neurologist in Arizona that understands APS?

Does anyone recommend a hematologist and/or neurologist in Arizona that understa...

Kstone81

•7 years ago

13 Replies

Hematologist

Finally found a Dr who understands APS. If anyone can get to yale hospital in ct I’ll be happy to pass on his name. There’s at least s 3 month waiting period...

Finally found a Dr who understands APS. If anyone can get to yale hospital in ct...

msins

•7 years ago

11 Replies

Juice Fast Fad

Has anyone here experimented with a "Juice fast" for weight control? My bride and I just watched a video entitled " Fat. Sick and Nearly dead." It was...

Has anyone here experimented with a "Juice fast" for weight control? My bride an...

DannyBoy1

•7 years ago

13 Replies

Abnormal TFT's

Got back my latest Thyroid results (and they will be repeated in 4 weeks) There has been a steady upward climb. TSH has gone from 1.75, 2.12, 3.08, and last...

Got back my latest Thyroid results (and they will be repeated in 4 weeks) There ...

Ozchick

•7 years ago

4 Replies

Headaches

What do you take when you get a headache since we're already on blood thinners?

What do you take when you get a headache since we're already on blood thinners? ...

missygirl0130

•7 years ago

12 Replies

Unsure if I have Hughes or not

I saw my rheumatologist in September last year, I haven't seen him since and my appointment for a next month has been cancelled (and no other appointment...

I saw my rheumatologist in September last year, I haven't seen him since and my ...

Shaddix29

•7 years ago

1 Reply

Sudden burst blood vessel, anyone else get this??...

Hi, not sure if u can see this very well but today it appears that a blood vessel has suddenly burst or something in my wrist for no reason! I have previously...

Hi, not sure if u can see this very well but today it appears that a blood vesse...

Sara_A

•7 years ago

16 Replies

Dr's give me no hope. I need help!

I'm not even sure if I am in the right group? I have multiple diagnosed health problems including, 25+ years of Hep C (was a "lab rat" for Dr. Everson at UCH...

I'm not even sure if I am in the right group? I have multiple diagnosed health p...

TaraRae

•7 years ago

8 Replies

Seizures

I would like to know what medicine you take and side effects please Thanks

edgewater100

•7 years ago

6 Replies

Weight GAIN after stopping prednisolone??

I stopped taking prednisolone a month ago. I haven't lost an ounce. What's more, my shape is worse than ever, worse even than when I was taking the steroids....

I stopped taking prednisolone a month ago. I haven't lost an ounce. What's mor...

Coppernob

•7 years ago

1 Reply

Rituximab

Hi All, Another question. You may need to read my previous post to understand this one. My wife is going into to hospital on Wednesday for an overnight stay...

Hi All, Another question. You may need to read my previous post to understand ...

Connorscotland

•7 years ago

7 Replies

Is there a link between SCAD and Hughes Syndrome?

I'm not new here but its a place I've horribly neglected... sorry. My sister was recently diagnosed with Fibromuscular Dysplasia (FMD) which is known to run...

I'm not new here but its a place I've horribly neglected... sorry. My sister was...

MariaBanelli

•7 years ago

5 Replies

Pacemaker now fitted

I thought I would let you know because you have been so supportive of me, particularly since Christmas when my pulse dropped so low. Friday I finally had a...

I thought I would let you know because you have been so supportive of me, partic...

WendyWoo50

•7 years ago

9 Replies

My wife and APS - Looking for help

Good Evening All My wife is 28 and was diagnosed with APS and low platelets at week 13 in her pregancy at week 19 (20wk scan) we found out our Baby Summer...

Good Evening All My wife is 28 and was diagnosed with APS and low platelets at w...

Connorscotland

•7 years ago

18 Replies

Travel Insurance

Hi there. I am finding that the additional costs I have to pay on top of my husband and I's travel insurance is rising steeply each year. I am 58 and have...

Hi there. I am finding that the additional costs I have to pay on top of my hus...

Yodel

•7 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2018

More good news for me.

Hello

venous blood draws vs finger stick

Any norethisterone experience please?

Agatston Score

All put back together again.

APS AND BARRETTS ESOPHAGUS ANY CONNECTION?

Unsolved mystery.....

App for tracking daily intake of Vitamin K?

Hughes Syndrome/APS more awareness needed.

Out and about....

Not sure if i have APS.

I hope this family get the right answers and treatment!

Need a few screws in my hand.

Stressed out

Hematologist

Hematologist

Juice Fast Fad

Abnormal TFT's

Headaches

Unsure if I have Hughes or not

Sudden burst blood vessel, anyone else get this??...

Dr's give me no hope. I need help!

Seizures

Weight GAIN after stopping prednisolone??

Rituximab

Is there a link between SCAD and Hughes Syndrome?

Pacemaker now fitted

My wife and APS - Looking for help

Travel Insurance

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