Undiagnosed for 17 years
shefab4 hours ago
I have been sick for 17 years with an undiagnosed illness. I am not feeling well, so I won't go into all the details of my illness. In fact,...
Heidi27916 hours ago
I've tested positive for aps. The doctor said it was at 1.4. I have no idea what this means? Would anyone know what the 1.4 mea...
phirestar9 hours ago
Medical history practically nonexistent prior to 65. Dx’d hypo (2015) of blood test and started mylan levo. First reaction in eyes and a sor...
Anyone that has or is dealing with mental issues, such as panic,anxiety, depression and possibly seizures? Anyone else? Never before APS!
edgewater10013 hours ago
Any info would be appreciated
Be the first to reply
A little off topic: can anyone name any books that have kept them laughing?
Wittycjta day ago
Or anything that has gotten you laughing. Even some good jokes or riddles? I need a good pick me up.
Hello I'm new here
Linpin223 days agoPOPULAR
Congratulations to Professor Hughes for creating this excellent Charity GHIC and support network. It can be very lonely when you are sufferi...
25 Replies3 Likes
What helps body and mind when you are having a bad day ?
Wittycjt3 days ago
This was an old post but I liked what it said, but it was turned off please share your thoughts
Have a great day!
Everyone. Especially you!!! You deserve it🌤
1 Reply1 Like
Tinnitus and pulsating tinnitus
Steph6265 days ago
I have lupus and APS... Just wanted to check to see if anyone with APS has these symptoms or if it’s something else ... anyone have ringing ...
jetjetjet5 days ago
I again am in a battle with my INR people here. I thought that Dr. Hughes did an article on where people should be . And as i remember 3....
Allergic reactions-help on finding what is in medications
designer165 days ago
Recently I saw Dr. Jill Schofield for my APS. She studied under Prof. Hughes & is very knowledgeable. I have been having lots of problems wi...
6 Replies4 Likes
AvsG6 days ago
What are the more thorough Thyroid tests that can be done? Where can I get this done as unlikely my GP will do it. I have an underactive thy...
Steph6267 days agoPOPULAR
I’ve been experiencing heavy, painful/burning & fatigued feeling in my legs for years now... I was recently diagnosed with lupus, have had a...
Should I take aspirin?
Heidi27917 days ago
Hi everyone! After suffering a missed miscarriage and 2 chemical pregnancies, I had bloods done. The test came back positive for LA. I uners...
Specialists in mountain west of the USA?
Ciche7 days ago
I am newly diagnosed with APS and Factor 5 Leiden. The Coumadin clinic has my target inr at 2-3. Everything I am reading on this site notes ...
Vision problems ?
Bsharon8 days ago
Wondering if and what type of vision issues people have when INR is low / if anyone is only on aspirin ?
I have had vision problems off and ...
Does anyone have experience if phlebitis regarding APS and SLE
LindaMorrell8 days ago
Last night I thought I had broken my elbow not having done anything at all. The sharp pain was excruciating. I could not lift or move my a...
Weather & APS
missygirl01309 days ago
Does anyone have more symptoms when the hot weather comes? If so, what are your symptoms?
Micro Blood clotting
jetjetjet10 days ago
Do Any of you have or have seen more micro clotting , kelly in texas has given me some - just wondering is there more out there .
10 Replies1 Like
Tim_Thorpe11 days ago
I had a stroke in 2011 and many mini strokes . Then had an operation in 2016 and felt funny afterwards lucky under the care of prof hunt at ...
Ryman200711 days ago
I have AFIB and had to go to the hospital to get my heart back in sync. I think I caught a bad flu bug which dehydrated me. Can anyone tell ...
PLEASE HELP ME WITH APS, STICKY BLOOD
mariamoo112 days ago
I have Antihphorpholipid syndrome, only diagnosed last year, but after Years of silently suffering because of ignorance of so meny doctors. ...
8 Replies1 Like
Prof Graham Hughes Blog For March 2018
APsnotFab13 days ago
Heard of "Syndrome X" - then read on!
Here is the link to Prof Hughes monthly Blog which will now be available from the GHIC website:
6 Replies9 Likes
Gilliansimba14 days ago
Hello could someone please explain why my anti ro antibodies were positive last year,but now there is no sign of them, I can't understand th...
Just saw this article and thought others might be interested in it.
dogtail14 days ago
3 Replies2 Likes
Massage whilst on Warfarin?
AvsG15 days ago
I wondered if anyone has had a massage whilst on warfarin? I have Hughes Syndrome and my INR range is 3.5 - 4.5. My GP was unsure and though...
Tomcat16 days ago
Waiting to see a specialist but my healths took a sudden downturn the last few days, brain fog x1000 pains in my sides (near my kidneys) and...
Any Safe(ish) Birth Control Out There? Who's on What?
Tyler316 days ago
Hi There! (DISCLAIMER - I will probably botch the medical spelling of the antigens etc). I haven't been on here for quite some time. I need...
Lind817 days agoPOPULAR
Hi I have been experiencing chest pain on & off for the last few years. It comes on suddenly, severe chest pain but only lasts for about 5 t...
Open heart surgery for aorta valve replacement
msins18 days ago
Still hoping to hear from more people who have had this done with this condition. I have heard from one and the surgery was successful but t...
Start a Community