Posts - Hughes Syndrome - APS Support | HealthUnlocked

Hughes Syndrome - APS Support

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Fantastic News

Finally some good news after a truly nightmarish year (sorry so long winded plea...

Have you been discharged from Tommies/Guys in last 18 months

Curious how many patients have been discharged and had all aps related meds take...

APS and COVID Vaccine thoughts

Hello I’m new here. And recently been told after having APS for over 26 years th...
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Statin

Had my yearly review with my doctor today over the phone Now she wants me to do...

Microclots, APS, Long Covid

I hope you all had a nice Christmas and I wish you a Happy New Year. I was sent ...

Do I need a specialist?

I have been diagnosed with APS following a stroke at age 40. My care is managed ...

Maximum INR levels according to country patient resides in

I've been reading today's posts about INR levels. I live in the US, where the...

Prednisone and efficacy of Vaccine

Merry Christmas to All I’ve read a couple of medical articles that indicates, e...

Second TEE procedure

Is it normal for my new Cardiologist to want me to have a second TEE procedure a...

Tested Positive Will it Affect my INR?

Tested positive for covid. Only mild symptoms so far. I have APS and Lupus SLE....

M E R R Y C H R I S T M A S

Festive greetings to you all and wishing you a fantastically happy and healthy C...
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MaryFAdministrator

Higher INR = better control??

Does anyone have any clinical info that supports better outcomes (less clotting,...

Plasmapheresis treatments

Just received my 5th treatment. Doc saying not seeing the results they expected....

Coming off Apixaban

I have been on Apixaban 5mg twice a day for 6 months now due to me having a pulm...

Sudden onset headaches

I have primary APS but have never made a blood clot. I have survived bleeding ou...

Gut health and APS

Hi, I was reading an article relating to gut health and APS by a doctor in New Y...

My Moment of Flakiness

I had a WEIRD experience two days ago: I got in my car to go shopping, started ...

Dementia Clinic

Hi all been a while so here’s what’s happened recently (I think over last year b...

Ramipril

Hi, I have APS on warfarin and just started ramipril for high blood pressure. My...

A new discovery for potential treatment!

Light at the end of the blood thinner treatment tunnel? Just read this today:.....

Can anyone tell me how to delete a post I made which was incorrect

I was talking about APS in Australia

New to the “club”

Hi everyone. I am here today because I was just recently diagnosed with APS. Tr...

Mount S. new doctor from Yale

specialists nyc could you please repost contact info ty

Arvind says APLS experts on every continent

Arvind in a chat session said there is an APLS expert on every continent. Who i...

Link to Symposium or Recording

I also did not receive a link. Maybe it did not travel across the pond. Is ther...

Moderna Vaccine & APS

Taking my first Covid Vaccine.. Moderna tomorrow. Thoughts, reactions, how long...

Pregnancy and APS

Hi all..anyone with APS had a successful pregnancy with only baby aspirin throug...

3rd primary Covid vaccination

My first two vaccines were AZ I was expecting a reaction as I react to most thin...

understanding blood results

Hello all Does anyone understand blood resultls? My printout says that my anti b...

Black Eye while on Coumadin?

I am wondering if anyone has ever had a black eye on coumadin. I have one righ...
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