Bleeding disorders alongside APS
Lind814 hours ago
Hi I know we all have antiphosoloipid syndrome & all the unusual and horrible things that this brings with it. I just wondered if anyone has...
Appointment changed twice
donnabraina day ago
After complaining through PALS six months ago I was sent an appointment to see Professor D,Cruz.
However,this appointment has now been change...
traceylou3 days ago
I have APS, my question is important to me as I am completely. Stuck it's about my thyroid, I am seen locally and in London and have neg...
Excruciating foot pain Plantar
I have aps and other autoimmune I have recently been diagnosed with plantar in the feet..in awful pain...obviously this is soft tissue...is ...
New DVT May 21 2017
KellyInTexas3 days ago
Unbelievable. I am shocked with the vigor our bodies clot despit our efforts to stop the process.
We stopped the exclusive Lovenox regime Ma...
Discuss with my Haematologist ?
WendyWoo504 days ago
So at last this Wednesday I'm off to see my Haematologist (who doesn't believe in zero negative APS - I have only had one LA positive only)....
Saved20104 days ago
Husband has a lot of pain in his feet. He can't walk for more the 30 mins without feel pain in his feet. He says feels like his ankles and h...
Info I got on Xarelto
Debbweb014 days ago
My Hemotologist told me they're doing studies and we may be able to use Xarelto as blood thinner! Not for advanced people like me, because I...
Find a cure for APS
ken427 days agoPOPULAR
my first time posting, please excuse mistakes. my first stroke must have been minor, after a weekend in hospital I felt fine and didn't see...
An informative read
MaryF7 days ago
Thank you for sending it our way InSpain ! ncbi.nlm.nih.gov/pubmed/282...
APS support UK
charlieab7 days ago
I phoned APS Support UK today for some info and found the person I spoke to very helpful. So, thanks for that. Also have been watching patie...
4 Replies3 Likes
Cut back on Plaquenil?
mylafont7 days ago
Has anyone here ever been advised to cut back on Plaquenil dose because of low white blood count and low Neutrophil count?
I saw a new Rheu...
My Leg This Morning/ Unstable INR
KellyInTexas8 days ago
Does any one experience "blanching" white spots with a red dot in the middle with their livido? Not raised/ not a rash. Does not itch. Quite...
Desperate please help!
Eglee218 days agoPOPULAR
Hi, I have been diagnosed with APS after 2 stillbirth. I've had 6 miscarriages since then. Nothing seems to work. Lovenox or the baby aspiri...
What is APS
Chrissymargo8 days ago
Hi this is my first post,
please will some one explain to me what is APS?
Wooly head, neck pain and nausea
Twadd9 days ago
After a stable 12 months, I now have the symptoms listed above. My INR dropped to 1.9 a few weeks ago altho I am now back in range 2.5-3. I ...
High inr, headache and funny vision
Saralmac9 days ago
Hi, I'm new here. Was diagnosed with APS a year and a half ago after my second stillborn baby. Unfortunately no one really did anything and ...
charlieab9 days ago
In 2015 I was in good physical health and then things went down hill continuously. I developed mild tinnitus, then severe tinnitus (with m...
Hi, im new here...
Kate169 days ago
Hi, i was wondering if anyone could help : ) I was diagnosed with me.cfs three years ago and have been housebound since then with extreme fa...
Pulse Ox levels
ndstephens499 days ago
I have been on a CPAP machine and then a BIPAP machine at night to keep me breathing since 1996.
Recently had a pulse ox monitoring test at ...
Anyac819 days ago
Hi I hope everyone is well
Just a quick question, finally got my rheumatologist to do the blood test for AS today, how long does it typica...
A bit low, and advice welcome
Julie_T10 days ago
Been really poorly for the last 6-7 weeks with killer headaches (never suffered from them before) zero energy, hot one minute shaking the ne...
INR Too High/ Infection ?
KellyInTexas10 days agoPOPULAR
I know infections infections affect the INR , but I can't remember which direction or by how much. ( I'm sure it's person to person dependen...
falling2peices10 days agoPOPULAR
My knees get like this alot its sensitive painful was briefly told ot was livedo this is at its worst but if i warm up it turns bright red. ...
Problem with my Echo
Yllek10 days agoPOPULAR
Quick update from last weeks chest pain issue!
I'm off to London on Wednesday to see one of Prof Hughes Rheumatologists.
Had my echo results ...
Going for a 2nd opinion! I believe INR is being kept too low
KirstenW10 days ago
So I finally have the specialist APS consultant appointment in London this afternoon for my husband and a 2nd opinion! The haematologist he ...
HELLO, I'M BACK!
ZRHONDA11 days ago
I finally got out of the hospital at the end of march. I was continually getting double pneumonia which would lead to pulmonary edema and th...
rayl12 days agoPOPULAR
Hi it's been a little while since my last post.I've been having issues at night with my arms going numb dead like led while I've been in bed...
How do you know if you APS specialist is actually that?
Peecue12 days ago
I have had a pulmonary Embolism maybe 2 or 3 and was possibly diagnosed with APS as sero negative by Rheumatologist in my home town.
I was st...
13 Replies2 Likes
RazD13 days ago
Hi, I'm relatively new to this site having found it while researching for my recently diagnosed APS. I developed a DVT in my left calf in De...
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