Can People feel blood clots?
surrenderhealth2 hours ago
Long story short, I have had two separate incidents. (3 days apart?).
Where I have had a fire like, burning feeling in my veins, onl...
Time release Topamax for migraines!
Sophie142110 hours ago
I have suffered with migraines for over 60 years. Most recently I was getting an average of 15 migraines with aura a month. I also have ant...
7 Replies1 Like
Confused with results!
balamuti19 hours ago
I am totally confused with these recent results!:
Positive DRVVT and SCT in October 2017 with borderline CT result in November 2016. On repea...
Kay Thackray's new book regarding Sticky Blood
MaryF2 days ago
Her new book will be available via our charity website soon, and in the meantime if you do go looking for it on line, make sure you look for...
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jessielou2 days ago
I’m Sheena, I’ve been a member of this forum since it’s early days and was for a few years an administrator, unfortunately due to hea...
10 Replies2 Likes
beccafullcircle2 days ago
Good morning everyone,
Last I wrote on here I was experiencing the same concerns that I continue to work through. I have been back at Oregon...
Mary F, thank you
KayPryszlak2 days ago
I would just like to let you all know what a wonderful help Mary has been with the book launch evening. She really does put others ahead of ...
11 Replies4 Likes
Sticky Blood Explained
TJSTICKYBLOOD3 days ago
So on Friday I attended the book launch , it was an amazing event and very educational with questions from the audience answered by Professo...
13 Replies8 Likes
Topiramate for headaches ??...anyone tried?
Sara_A3 days ago
I have seen the neurologist recently who says I apparently suffer with 4 different types of headaches! (Typical me! Can’t just be 1!!)
Is there a APS specialist in Northern Indiana?
Ibfrostybrew3 days ago
I have just been diagnosed with Hughes Syndrome specifically anti-catdiolipin antibodies. Does anyone know a APS specialist in Northern Ind...
To all UK London Kent people if any
Ash05074 days ago
Looking for recommendations of any specialised doctors for aps? My doc doesn't seem to know much or doesn't go into detail when asking quest...
B12 connection to APS??
Clairemom6 days ago
I was just wondering if anyone on here is deficient in vitamin B12 and also has APS vitamin B12 affects the neurological system I was diagno...
I am new to this aps world
Adinina806 days ago
I am 38 years old and I had 7 miscarriages. I have just been diagnosed with APS .I struggle to get over the flares up because they are so pa...
Ash05076 days ago
My inr is 1.2 and I'm feeling no energy severe headache and generally unwell is this normal? My target is 3.
I have numbness in my leg is th...
Be aware of a current phishing scam
MaryF7 days ago
Hi have just reported a personal message sent to me, an obvious phishing scam, if any of you get a message like this, asking for money. By ...
3 Replies4 Likes
Low positive and then very negative? How/why?
Natalieyoung3237 days ago
I tested low positive while not pregnant for lupus anticoagulant and anticardiolipin antibodies. My anticardilopin was 25 and my Activ...
Clairemom8 days ago
Hi I'm new here I was diagnosed only two weeks ago after having 4 early misscarrage and 2 eptopic pregnancy over the last two years distress...
Ash05078 days ago
Hi I have antiphospolipid syndrome is this the right group?
waking up weak not moving
grenise8 days ago
i have been on here before but i have a symptom that scares me. often if i am napping or fall asleep in the car while my husband doe...
debiann8 days ago
I have noticed that everyone seems to involved with haemotologists or the other ologist! I have only ever seen a stroke consultant who i c...
2 Replies1 Like
INR IN USA LOWER THAN UK WHY
Gregstock9 days ago
Diagnosed with APS 2015
Feel terrible all the time.
Vision issues due to stroke...
Monkeymate9 days agoPOPULAR
Hi everyone I’m touching base with you all as have had aps since 2009,after having 3 strokes . I still love living in the fast lane .. but c...
I’m a newbie
Kikitabs9 days ago
Hello everyone I’m new to the group but not new to the condition, just thought I’d say hi 👋🏼
Acenocoumarol - anyone tried this instead of warfarin?
Clairey259 days ago
My anticoagulation team have really been struggling to stabilise my INR despite using a coaguchek self monitoring machine daily, 3 visits ...
17 Replies1 Like
In need of a consultant who follows Prof Hughes protocol
Daisy196210 days ago
Basically I was diagnosed sero negative in 2004 by Prof Hughes and treated with warfarin, later fragmin. Now I have nobody to support me. I ...
amy180810 days ago
Hi girls , I haven’t been on here in a while . Health been pretty good since I have been put on Amitriptyline , most of my symptoms have gon...
Dhj8811 days ago
Hi. I'm new. I have a sharp pain that moves constantly. I'm in the process of getting my heart checked out but we're pretty sure that it's n...
The GHIC raffle at the book launch next week.
KayPryszlak13 days ago
We have had £100 voucher for the Ivy restaurant in London and a £100 voucher for the Royal Albert hall donated for the GHIC raffle. This is ...
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Inconclusive results for connective tissue disorder
WinstonWolfe13 days ago
I was recently given an initial diagnosis of antiphospholipid syndrome after being hospitalized with a second pulmonary embolism s...
LesJames14 days ago
I have not see a qualified Rheumatologist for 2 and half years. The consultant I am seeing now is an Acute specialist who in his words is he...
1 Reply1 Like
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