Lupus anticoagulant test
Jillymo19 hours agoPOPULAR
Could somebody please in form me how long it takes to get the result of a Lupus anti coagulant test ? I have been waiting weeks for the resu...
Zamalek4 days ago
I am booked for the Singles Vaccination later this week. But I gather it's not
suitable for people with a weakened immune system. I have APS ...
Temporal lobe seizures?
edgewater1004 days ago
I now have possible Temporal lobe seizures, anyone else?!!
Query re Rivaroxiban
marion47117 days ago
Hi I’m Marion. Been on here since June but only posted once or twice in reply to others. A couple of months ago I changed from warfarin to R...
nldh8 days ago
Hello all! I recently found out that I have Vte+APS. I also have a splenic infarction. I have been breaking out in rashes and my lips swell....
Has anybody been using cayenne pepper tabs for pain reduction (of course only with a doctors approval)
Wittycjt9 days ago
I ask because , I do and have , and have never really had any pain caused by Hughes disease and wonder if this has helped. I know it Blocks ...
lloydyuk10 days ago
Hi, I’ve been on the above (however badly I spelled it!) for coming up 4 years I think at 400mg a day. Started with a statin as a trial & co...
Factor X Chromogenic Assay (FXC): I have this. It renders my “true vein value INR “ one full number lower than it actually is.
KellyInTexas10 days agoPOPULAR
This apparently is why I’ve been reclotting.
I don’t understand it that well yet. Please look up allinahealth.org
It’s a lab out of the USA t...
765410 days ago
Hi i would think gabapentin will help a little and in time can be increased. I didnt feel any benefit when i was on low levels but it is one...
lynzy10 days ago
Hi, I’ve been prescribed gabapentin 200mg p/day to be taken at night. He said it was for nerve pain, even though I told him I’ve got bone pa...
Advise on changing drug
gemgemz11 days agoPOPULAR
Please excuse my spellings i am terrible and have no spell check 🙈
Hi! I have been diagnosed with Aps and test possitive for lupus for 4 yrs...
Dragoon11 days ago
This lady has suffered but is still strong - thanks
4 Replies1 Like
amy180812 days agoPOPULAR
Excuse the spelling !! Hi my APS family . I have now been on this drug now since beginning of October . I am pleased to say a lot of my sym...
27 Replies3 Likes
BBC Iplayer - Click
MaryF12 days ago
Sorry just for those in the UK, the latest short version of 'Click' which carries new useful travel apps and also disability aids being work...
Be the first to reply1 Like
Recurrent DVT's whilst on Clexane
Mollypops113 days ago
Hi, I have no idea if I am in the right place, but if I run my problem past your eyes you may be able to redirect me. My daughter has a chr...
Strange new issue
falling2peices13 days agoPOPULAR
Hi just to recap I’ve had two positive LA Anticoagulant results and i also have bilateral vestibular loss. The other day I had some strange ...
Looking for APS specialist
Gregstock13 days ago
I am looking for a doctor that specializes in treating APS. I live near Binghamton Ny and have not had any success with find...
APS and BP
Salstar13 days ago
I have been placed on two medications for bp. However, when it is high and I rest, elevate feet, it can go up within the hour. If I walk m...
Professor Graham Hughes' Blog October 2017
MaryF13 days ago
BLOG – October 2017
In October, I was a guest speaker in Porto, Portugal. It was at an international immunology meeting, and one of the 2 day...
13 Replies12 Likes
Lupus /APS face rash.
leakeadea14 days agoPOPULAR
This was my face yesterday after trying to have a wash post op. My IVC Filter was removed on Tuesday in what turned out to be a very traumat...
IVC Filter/Clot Catcher Removal after 12 years, surgeon said its the worst case he'd ever seen! Sticky blood & filters are a bad combo.
So I managed to copy this onto a new post. I've still not seen the thrombosis /haematology doctors but apparently they are coming to see me ...
22 Replies1 Like
charlieab14 days agoPOPULAR
If the old pre-illness me met the current me then I dont think he would recognise him and might not want to spend too long over a pint with ...
21 Replies3 Likes
Venous or finger testing
mgammon15 days ago
Hi any help would be great I am 36 and been having venous bloods taken from me once or twice a week for the last 16 yrs for my INR , this is...
WendyWoo5015 days ago
A trivial question tonight friend's... so Christmas and turkey is coming! 🎄
My question is : while on warfarin are we allowed cranberry sauc...
Article/paper on miscarriages
MaryF16 days ago
Question about INR
Esolt17 days ago
Hello new friends, I am trying to understand my condition and have been reading so many of your posts. I have currently been told to take as...
10 Replies1 Like
Happy Birthday Graham Hughes
SuzanneJ18 days ago
Happy birthday to a very special man and dear friend of ours, Professor Graham Hughes, Consultant Rheumatologist & Head of the London Lupus ...
10 Replies10 Likes
london bridge appointment outcome
charlieab19 days agoPOPULAR
Just reporting back on trip to London Bridge hospital this week. The staff were friendly and the consultant seemed thorough and helped mov...
32 Replies2 Likes
tathougies20 days ago
I believe the DRVVT (Dilute Russell's Viper Venom Time) is one of the tests used to screen for the Lupus Anticoagulant.
A while back I ...
Would plasmapheresis be an option?
Wittycjt21 days agoPOPULAR
KellyInTexas there is an article “ plasmapheresis for the Antiphospholipid patient.” Google this I nformation. Maybe clear out the Antiphos...
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