I just feel sooo ill & im getting worse!
WendyWoo5010 hours ago
Hello again, it seems I'm always moaning, but don't know what else I can do.
I'm lupus anticoagulant positive I also have; Sjogrens, Lupus, F...
Watch me inplant
Salmoniousa day ago
Anyone heard of this "Watch me Implant" that was just advertised? It is suppose to take the place of Warfin. It would be nice not to have ...
Saralmaca day ago
I've been diagnosed with having significant osteoarthritis in my lower back and sciatic joint. My chiropractor said anti inflammatory drugs ...
Advice please on Aps medication
Jillymo2 days agoPOPULAR
I am not tolerating warfarin very well due to its sodium content.
I have just spoken to the haematology nurse to explain how poorly I was on ...
28 Replies1 Like
Tim_Thorpe3 days ago
Seems my aps is getting worse had stroke then mini strokes now since my last ct scan shown I've got micro clots on my brain prof hunt told m...
My dose of warfrin keeps rising over the last fees years to try to get my inr target of 4
Why is this ? Is my aps getting stronger or is it ...
Salmonious3 days ago
Just a quick question this time LOL! I tend to drag on, anyway my question is from my last two surgeries I suffered from massive and almos...
Just not feeling well, Hughes syndrome?
Salmonious4 days agoPOPULAR
For the last two days I have been completely off and I can't figure it out. I feel as though I have been under some form of attack. My art...
Headaches & Migranes 😔
chelb294 days agoPOPULAR
I have been suffering more and more with headaches and migranes. Some weeks it's feel like I have them daily, other a couple of times a week...
dimpz904 days ago
hi, my boyfriend has a swollen chest on the left side as well as rib swelling. what can cause this?
Urination issues whilst taking Warfarin
Jillymo5 days agoPOPULAR
Has anyone else experienced urination problems whilst on warfarin ?
This is my second week of being on warfarin. My dose was put up from 3mg...
Could I have APS
Redheadchik7 days ago
I am on warfarin for pulmonary embolisms in both lungs coming from a large clot in my groin, which is still there. When I went to the ER, th...
Serena Williams has a life threatening condition
suntap7 days ago
I see that Serena Williams "has a potentially life threatening medical condition" and has to inject anticoagulants daily during her ...
6 Replies9 Likes
Misdiagnosed with MS - lesions but no clots
Mrmcb7 days ago
My story began when I was in my 20's. I took a routine blood screening and was told to my horror that I had tested positive for...
8 Replies1 Like
Natural remedies you are using?
Wittycjt8 days ago
In addition to anticoagulants? (8:49) if any ?
Finally Seeing Hematologist Thursday
Toddzchick8 days ago
So I am finally scheduled to see the Hematologist on Thursday. I have been waiting a long time for this. I plan to take my old blood work wi...
Clexane injections newly diagnosed blood clot
Hevajane738 days ago
Hi there, I'm new to the group and to all this sticky blood, i was rushed to hospital with swollen leg, after numerous scans and no diagnosi...
TheJedMan9 days ago
Suffering from APS since 1982. I'm always interested in this autoimmune problem. New technologies on treatments, stuff like that, plus other...
Meet and greet..
Rosiek909 days ago
Does anyone know of any APS/ Hughes syndrome meet and greets in the UK?
getting random mails about posts that i did not write or reply to.
Lozzaa9 days ago
hi couldn't work out how to contact admin.got about 6 emails regarding a post o wrote 3 years ago, not me.... so some problem with it. thank...
Subcutaneous injecting sites
Rosiek9010 days ago
For all who need a broader variety of potential injecting sites 👍
10 Replies3 Likes
INR 2.5 -3.5
nishiz11 days ago
My doc says it's best to be at an INR of 2.5 -3.5 if you have Antiphospholipid syndrome. I feel best at 3-3.5.
Tried several times to update my profile page unsuccessful, I tried the help page, still un successful
Wittycjt11 days ago
Any help please? It won't let me save it to the page, it disappears, thanks, Cindy in Nj
Knowing what you now Know, if you were just diagnosed today what would you tell yourself?
Join health unlocked and read, read, read. It will be okay. Keep your INR where it needs to be for you. Your doctor may not know how to trea...
11 Replies3 Likes
Rosiek9011 days agoPOPULAR
Has or is anybody medicated with Apixaban (eliquis)
If so, how do you find it? So you prefer it to other anticoagulants ...
Hi I thought I'd just introduce myself as I'm new to this.
I'm Rosie (as you can probably see by my user name 🙂)
I'm 27, symptoms started wh...
Rosacea, cracking teeth, and tingling feet!
Kmobi12 days ago
Had 2 blood clots after a surgery and one went to my right lung one to my brain. Had a stroke that took out left occipital lobe region. Then...
16 Replies1 Like
Update-Chemo/Radiation on Lovonox
Jamaica195112 days ago
Hi Friends - Ok...Oncologist is worried that I will bleed from Lovonox injections but will keep me on it so as not to risk getting clots. Th...
falling2peices13 days agoPOPULAR
Well 2 weeks ago I underwent 5 hours of balance test in a rotary chair and caloric tests not fun I was exhausted. Saw my ENT yesterday and w...
GOOD NEWS for a change
snorkle27213 days ago
Hello. I now have hope!!! For the past 18 months I had been falling, unexpectedly, at least once a week. No warning, no sensation, no dizzin...
9 Replies6 Likes
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