Platelets problem from APS Kidney failure
samueal8 hours ago
I’m on dialysis from APS Kidney failure. My platelet count has fallen to 47 from 170 before dialysis and kidney failure. Does anyone have a ...
Cardiac X Syndrome
WendyWoo50a day ago
I'm wondering if I have this. It's mentioned in the book Sticky Blood as it can be a part of APS for some and it's mentioned on The British...
% Oxygen Saturation & APS ?
WendyWoo503 days ago
If you read the posts you will probably know that I have had problems with AV Heart Block causing me to have a low pulse. At times as low as...
HAS ANYBODY GOT A PROBLEM WITH BEING PRESCRIBED HEPARIN DUE TO A SHORTAGE ?
Julie-Anne5 days ago
Hi, I was diagnosed in 2008 with APS and after several attempts with Warfarin Prof Khamashta put me on Clexane Heparin injections for life. ...
Advise on new meds
gemgemz6 days ago
Hi! I have been taking warfrin and hydroxcloquine for 4 yrs after bring diagnosed with APS after having my son. I have been experiencing lot...
3 Replies1 Like
Nallita8 days ago
I was informed by my GP that my pregnancy hormone has gone down and I'm now having my 4th miscarriage. I am taking clexane and aspirin that ...
LesJames9 days ago
I am back on MTX an as such I have to have my blood checked every month. One of the reasons diagnosing my conditions is so difficult, ...
Lupus Anticoagulant Pregnancy
Nallita10 days ago
Hello, i am new to this group and I have just been diagnosed with lupus anticoagulant after having three miscarriages. I am currently five w...
Severe pain !
Suzy1011 days ago
I have severe pain in some part of my body, this time started in left arm and now moved to left hand, cant use hand and it is extremely pain...
Tim_Thorpe12 days ago
My target inr is 4
Today self tested inr was 2 😐 take fragmine injections when inr is around 3 or below
Felt unwell the last couple of days...
APS specialist recommendation for London Bridge Hospital
AvsG16 days ago
Hi, can anyone recommend which Doctor at London Bridge Hospital would be good for helping to get a diagnosis of APS/ Hughes Syndrome? This i...
HealthUnlocked Member and Admin Awards 2018
APsnotFab16 days ago
Today HU have launched their HealthUnlocked Member and Admin Awards 2018.
The awards recognise the impact other members and admins have on He...
Thyroid Finger Prick Testing Experiences?
LoveSeaside17 days ago
Hi, I’m 49 and have had APS for five years, treated with baby aspirin and plaquenil prescribed by a rheumatologist, no nearby APS specialist...
bruising around eyes
gjm46394843017 days ago
I am new to this site. i experience black discoloration around my eyes. no pain. i take feverfew as a migraine preventative and 81 mg aspiri...
Severe Lower GI Bleed
ndstephens4918 days ago
None of my three children, ages 32-38, have been tested for clotting disorders. There was no need as none of them seemed to have a ...
AmandaD18 days agoPOPULAR
My partner had a AVR in 2003 and has been on warfarin ever since with little to no problems. However since 2016 he has been very unstable fr...
22 Replies1 Like
Dr. Jill Schofield...Not Taking New Patients
DRGPS5119 days ago
I called for an appointment today and was told the disappointing news. Dr. Schofield's waitlist is 2 years long and she cannot take new pati...
Newly Diagnosed...I Think
DRGPS5122 days agoPOPULAR
I had a PE 2 weeks ago & now taking 30mg Xarelto. I'm 66, non-smoker, healthy, until this event, which I was told in ER was on the low scale...
Tim_Thorpe22 days agoPOPULAR
Aziophrine dose was recently increased from 150 mg 3 tablets to 200 mg 4 tablets daily
Since then felt like I have hang over and don’t fee...
lynzy23 days ago
Does anyone on here have this as well as aps or sle? I’ve tested positive and having the biopsy next week. Can this blood test be ‘skewed’ b...
One Step At A Time!
WendyWoo5025 days agoPOPULAR
The more posts I read the more I realise this is such an awful illness.
It hides, it jumps up from no where and screams in our faces, it can...
46 Replies9 Likes
One step forward two back
amy1808a month agoPOPULAR
This year hasn’t started off great . First bad palpitations and breathlessness but all test came back fine . Only problem with it Is my GP w...
32 Replies3 Likes
Round and round
LesJamesa month ago
Well I met up with my Rheumatologist on Thursday, informing him that I had followed his advice and come off Methotrexate and since doing so ...
10 Replies1 Like
I understand that APS can cause tiredness but has anyone found anything that helps?
Vespa1a month agoPOPULAR
My husband has had iron tests and put on iron tablets as surgery risky with being on warfarin but still the extreme tiredness is now really ...
Professor Graham Hughes' Blog January 2018
MaryFa month ago
BLOG : January 2018
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epid...
8 Replies10 Likes
Kelley and Ryan This morning
jetjetjeta month ago
Toni Braxton Said she has Lupus and Kelley knew it is an auto immune system blood problem !! to me is describing APS with the clotting pro...
Can you clot even if taking Rivaroxabin daily?
Clotiaa month agoPOPULAR
Has anybody out there ever had a clot whilst taking rivaroxabin? My haematologist assures me I cannot clot when on this drug but I believ...
Update and Raw Spinach Question ;D)
Tyler3a month ago
I am so happy to say that I finally found a hematologist near me that works with APS! He looked at my past 3 labs that were t...
Has anyone seen Professor Patrick Gordon
designer16a month ago
Has anyone seen Professor Patrick Gordon at the London Bridge Hospital. If so was he helpful, does he listen, etc....
For the past 9 months I have been taking Coumadin from the UK because I cannot tolerate the US brands do to the fillers. I no longer can get...
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