jaymacz2811 minutes ago
Hi all, I've been recently dealing with some weird issues, and I am trying to figure out if it's due to my APS or something else. I figured...
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Delaware State specialist?
Wittycjt3 hours ago
I may be relocating. Does anyone have a good doctor they are using for APS/Hughes in Delaware? Thank you
App for tracking daily intake of Vitamin K?
Holley2 days ago
Does anyone know of an app that calculates your daily vitamin K? I know there are ones like Livestrong that you can track calories. Just cur...
4 Replies2 Likes
Hughes Syndrome/APS more awareness needed.
MaryF3 days ago
1 Reply4 Likes
Out and about....
Hi guys and girls
I will not be on here quite so much over the next few days as I am travelling about the place, and not always with access t...
7 Replies1 Like
Not sure if i have APS.
Alex944 days ago
Hi to all!
I hope you are feeling good. Last year I had retinal vein occlusion. We did all the tests but they were negative. Then I checked ...
Aps and circulation
Jillymo4 days ago
Is it safe to use a circulation booster if you suffer with Hughes Syndrome ? I have circulation problems in my legs a...
I hope this family get the right answers and treatment!
MaryF4 days ago
I have been in touch with one of the parents, sent them our charity website, and the relevant medical doctors ...
7 Replies3 Likes
Need a few screws in my hand.
Ozchick5 days ago
Saw the hand Surgeon today and he is leaning toward stabilising my wrist/hand with a few screws. I have it splinted ATM with a view to surg...
kittymum786 days ago
My mum has been being treated for myeloma - which has had a disastrous effect on the APS inr is either really high or really low - just star...
HealthUnlocked Site Maintenance Warning
APsnotFab7 days ago
Monday 18th June between 10 - 12am (UK time), the site will be down for 15 minutes at some point - they don't know exactly when during that ...
2 Replies1 Like
Kstone817 days ago
Does anyone recommend a hematologist and/or neurologist in Arizona that understands APS?
msins9 days ago
Finally found a Dr who understands APS. If anyone can get to yale hospital in ct I’ll be happy to pass on his name. There’s at least s 3 mon...
11 Replies1 Like
Juice Fast Fad
DannyBoy110 days ago
Has anyone here experimented with a "Juice fast" for weight control? My bride and I just watched a video entitled " Fat. Sick and Nearly de...
13 Replies1 Like
Ozchick11 days ago
Got back my latest Thyroid results (and they will be repeated in 4 weeks) There has been a steady upward climb. TSH has gone from 1.75, 2.1...
missygirl013011 days ago
What do you take when you get a headache since we're already on blood thinners?
Unsure if I have Hughes or not
Shaddix2912 days ago
I saw my rheumatologist in September last year, I haven't seen him since and my appointment for a next month has been cancelled (and no othe...
Sudden burst blood vessel, anyone else get this??...
Sara_A12 days ago
Hi, not sure if u can see this very well but today it appears that a blood vessel has suddenly burst or something in my wrist for no reason!...
10 Replies1 Like
Dr's give me no hope. I need help!
TaraRae12 days ago
I'm not even sure if I am in the right group? I have multiple diagnosed health problems including, 25+ years of Hep C (was a "lab rat" for D...
edgewater10012 days ago
I would like to know what medicine you take and side effects please
Effects of Long-Term Combination LT4 and LT3 Therapy for Improving Hypothyroidism and Overall Quality of Life
APsnotFab12 days ago
Anam Tariq, DO, Yijin Wert, MS, [...], and Renu Joshi, MD
At last a good positive study about combination T3/T4 Thyroid therapy that shows it...
1 Reply2 Likes
Weight GAIN after stopping prednisolone??
Coppernob13 days ago
I stopped taking prednisolone a month ago. I haven't lost an ounce. What's more, my shape is worse than ever, worse even than when I was t...
Connorscotland14 days ago
You may need to read my previous post to understand this one.
My wife is going into to hospital on Wednesday for a...
Is there a link between SCAD and Hughes Syndrome?
MariaBanelli14 days ago
I'm not new here but its a place I've horribly neglected... sorry.
My sister was recently diagnosed with Fibromuscular Dysplasia (FMD) which ...
Pacemaker now fitted
WendyWoo5014 days ago
I thought I would let you know because you have been so supportive of me, particularly since Christmas when my pulse dropped so low.
My wife and APS - Looking for help
Connorscotland15 days ago
Good Evening All
My wife is 28 and was diagnosed with APS and low platelets at week 13 in her pregancy at week 19 (20wk scan) we found out ou...
East of England Support and Fundraising Group/GHIC
MaryF16 days ago
I am going to get together in Suffolk, a group for people in East of England, all are welcome to come and share information etc and be perha...
9 Replies2 Likes
Yodel16 days ago
Hi there. I am finding that the additional costs I have to pay on top of my husband and I's travel insurance is rising steeply each year. ...
Coagchek Machine and Flying
chelb2917 days ago
So I am off flying this week despite my reservations and anxiety about it all.
I know my coagchek machine needs to be in hold luggage (was go...
Lumps under thigh with bruising
bf355319 days ago
Hello. I was given 2 Lovenox injections in the hospital and 1 a day for 4 days after that at home before I could get back on Coumadin which ...
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