Help I know nothing about antiphlosiphid syndrome
amilou08294 hours ago
I got diagnosed with antiphlosiphid syndrome about 5 years ago after being referred to the infertility clinc they did blood test and told me...
Multivitamins and Heparin
Loujones5 hours ago
Looking for some advise or general info from your experience please.
I have APS (Hughes Syndrome), and we are trying for a family, the...
Dot69a day ago
My INR had gone much higher than it has ever been, last week I had severe vertigo, unable to function for nearly 5 days, Warfarin clinic inf...
Robbieboya day ago
I suffered a massive bilateral pulmonary embolism in January 2016 and was on Warfarin for 6 months with no review at the end of t...
Anyac812 days ago
Hi I recently found the site and joins Lupus uk forum, after describing some issues I'm having another member kindly mentioned Antiphospholi...
CLEXANE GIVEN LATE
Pinkbubble282 days ago
Is it ok if you have your clexane just over 4 hours late! I am panicking a bit (actually more than a bit) I have been taking it everyday fo...
Another example of awareness raising being needed!
MaryF3 days ago
The notable family history here should have indicated to the GP not to prescribe this young woman the contrace...
Tim_Thorpe3 days ago
Been getting this rash in the last six months any ideas what it could be ??
Don't if it's to do with sticky blood or mild lupus I have 😐
Warfrin not working
Had an appointment wth prof hunt last Tuesday said my micro clots from my last brain scan was due to wafrin not working because of my antiph...
Our son, Grant ( age 15) has been diagnosed with APS - "let's talk about the new experimental Antibodies"
KellyInTexas3 days ago
1. Got the results yesterday. Aspirin for now should be fine. His " traditional three antibodies "are border line but negative. ( unlike m...
It Gives Us Great Pleasure To Make The Following Announcement
APsnotFab4 days agoPOPULAR
Please read the following press release. More information on how this is going to link to this Forum will follow later.
42 Replies15 Likes
Does anyone else feel like this
Molly1004 days agoPOPULAR
Sometimes I feel as if I am losing my mind. I cannot string a sentence together or the wrong word comes out of my mouth. My husband says t...
33 Replies2 Likes
Folic Acid Deficiency
Zamalek4 days ago
I have been on Warfarin for 8 years, range 3-4. I have had two Retinal Vein Occlusions.
The first before treatment, and the second unfortunat...
I despair I really do.
Tucson5 days ago
Back on the 3rd of Feb I had a third stroke while I had an Inr of 4. They didn't believe I'd had a stroke and tried to send me home. I wasn'...
18 Replies1 Like
I will be on this forum slightly less for one week
MaryF5 days ago
Hello, I will still be coming on here, to help, but am away on a retro busking tour in Adalucia in Spain, so will be relying on a very remo...
18 Replies5 Likes
Tim_Thorpe5 days ago
Took inr this morning 2.6 so take fragmine when below 3 my target is 4
Emailed Anticoagulation clinic with results 5 times through out the d...
I want to loose weight!
WendyWoo505 days ago
I want to loose weight but I just don't know how?
I have to eat breakfast so I can take my steroids
I have to eat dinner to take azothioprine ...
Dropping lower & increasing Warfarin
My INR is set at 3.5--4.5
2 weeks ago 4
Last week 3.3 increased W to 19mg/d
Today 3.2 increased W to 20mg/d
Headaches & my body is screaming in ...
Can APS go away or into remission? How about exercise and diet?
Heidi-B6 days ago
I was diagnosed in October 2016 with APS. I have a chronic DVT in my right leg. I know my clot is here to stay but I was wondering if anyone...
Anyone gone from warfarin to xarelto and back to warfarin?
Sanpap6 days ago
I was diagnosed 16 years ago with aps. Recently I have had some weird sensations like i can feel the blood moving through my head....
Tim_Thorpe6 days ago
Just taken my inr do it ever Tuesday inr 2.6 😑Have taking fragmine injection my target inr is 4 take injection when below 3
Keep putting my...
Professionals whom don't understand.
KarenOR6 days ago
Hi I've had alot of criticism from some childrens social services about Antiphospholipid syndrome. They've been very negative and don't unde...
rayl6 days ago
When I first got I'll last year their first thought on what had happened to me was cadasil I'd never heard of this before and did alot of re...
Under prof hunt at st Thomas hospital London
Have a strokes and mini strokes should I be having ct or MRI scans on regular bias i.e. Once a ...
vinny-chieffo6 days ago
What does the numbers 7 12 11 9 8 deficiency in clotting?
Kimu6 days ago
Would just like to know if anyone could enlighten me on the following-
I have been suffering severe pain , it started in the back of head...
donnabrain9 days ago
I recently visited my gp and asked if she could give me anything for vaginal dryness
I told her i did not want tablets,so she gave me pessari...
Its been a while hello all
beckyb9 days ago
Hi everyone its been a while since i have posted on here but just wanted to update you, I have had my stem cell transplant I won't go into g...
Just got specialist appointment 😄
Dot699 days ago
Very excited to be seeing a specialist in May after a few months waiting
Tim_Thorpe9 days ago
Having mircro clots in brain are the serous condition ? If so how serious are they and should I be concerned 😳
Start a Community