donnabrain14 hours ago
played around with gluten free lots of times,but always slipping back
this Christmas I said right then,let's do this
so three months gluten fr...
3 Replies4 Likes
Blakerm18 hours ago
My doctor seems to have developed a curiousity about my APS. After arterial clot, kidney loss and initial positive aps tests, a year later I...
Wondering if this is my problem
Stickyblooda day ago
I have suffered with unusual migraine with aura for several years, and out of the blue had a small stroke at age 48. Drs were perplexed as B...
INR soars with antibiotics
jeffreycampbella day ago
Just returned from a stay at the hospital for deverticulitus. They gave me antibiotics of course and a regimen of them once I got home. Th...
INR and Coumadin dosage
ndstephens49a day ago
You all with INR Meters: when you get results from your INR Meter, who adjusts your dosage of Coumadin based on meter results? Do you call y...
I'm new here with Schamberg's Purpura
Mothersh1pa day ago
I have been told I have Schamberg's Purpura. I'm 63. It is mainly on my lower legs and comes and goes but never goes away completely. It sta...
Professor Graham Hughes' Monthly Blog March 2017
MaryFa day ago
BLOG March 2017
This week we welcomed to the London Lupus Centre a visiting group of 10 nurses from Daytona State College, Florid...
4 Replies6 Likes
dan23662 days ago
hi all I need help, had a stroke last year recovered well and luckly I am back at work, I have had trouble with symptom of aps for avery lon...
New and a little scar(r)ed - I have APS and I'm going for an IUI in a little over 3 weeks...
RosyPeaches232 days agoPOPULAR
Long story short: I had 14 miscarriages between 2000 and 2006. The 1st 11 were a combo of home tries and IUI's. Then, I did IVF twice, and a...
Funnel web spider from Australia
Wittycjt3 days ago
They are researching this spider's venom for possible help for disabilities caused by strokes...they think it may help the brain's injury. I...
1 Reply3 Likes
APS-Antiphospholipid Antibody Syndrome/Osteoporosis/BPH.
mxmxer3 days ago
Yes, Does anyone know of a good Doctor/Doctors for these Conditions. Thanks !!!
Hughes Doc in Colorado?
Mancoca3 days ago
Anyone know of a Hughes/APS friendly, knowledgeable or even tolerable doctor in the Colorado Springs, Colorado, USA area?
Karin aka Mancoca
Hrt from Specialist
Lozzaa4 days ago
Hi I thought I would post the results from seeing the Gyny Consultant. First let me be clear, not for everyone, go see your own specialist e...
Maybe paroxetine for menopause
Wittycjt4 days ago
Newly approved, maybe this will work for those of you out there needing something. I believe it helps for hot flashes and sleep. Check it o...
Seizures, Shaking &/or Intentional Tremors Anyone?
Mancoca5 days ago
Does anyone else struggle with seizure "like" activity, as my docs call it, or nervous system stuff like shaking & stuttering or...
Menapause and no sleep
Lind86 days ago
Hi I am at a loss what to do, on warfarin and starting the menapause. The hot sweats and constant migraines I am experiencing are bad & ke...
Vespa16 days ago
Hi All, does anyone know if there is a link with low iron to APS or is it long term warfrin use. Husbands iron levels have suddenly dropped ...
Heart involvement in the Antiphospholid syndrome
Wittycjt6 days ago
Check it out on google- American Heart Assoc Journal
American Brands of Plaquinil/ Adverse side effects/ Having trouble tolerating
KellyInTexas6 days agoPOPULAR
I know Mary F is guru level on this subject- I took her pip and manufacture info to pharmacist and we are having trouble with translation. W...
Just for fun, not planning to move there yet!
MaryF6 days ago
5 Replies1 Like
Newly told I have this disease to add to all my other issues
Janetorlando93117 days ago
I have followed everything I have been told to do to keep my inr levels normal and I can't seem to stay therapeutic 2 weeks in a row. I have...
Long term possible side effects from taking Warfarin
jagessar7 days ago
Hi,I have been taking Warfarin for twelve years to control my APS. A recent unusual small rash is being investigated but has made me wonder ...
Heart problems and APS
orygun667 days agoPOPULAR
I never thought much about how Sticky Blood can affect the heart. Without a family history of heart disease I expected to be free of major h...
An interesting paper pinched from TUK's forum
MaryF7 days ago
A thyroid/vascular connection
2 Replies1 Like
Physio deep tissue massage
Tinythepanda7 days ago
I've been suffering for some months with sciatica (prolapsed disc) and have recently started Physio (paid privately)
So far it has be...
Aps and mild lupus
Tim_Thorpe8 days ago
Been on hydrocloxaquine for 2 to 3 yrs now due to extremely painful cramp like pains all over my body .
Just recently been but on to aziophri...
SueH218 days ago
Hi All, has anyone heard of the above? Having been dismissed by GP last week he did blood tests because my spleen enlarged again and told h...
Coumadin for AFIB
3dogmom8 days ago
I am new here. 72 year old female and have been taking Coumadin for 3 years due to AFIB. Also have type 2 diabetics. Trying to eat healthy...
Advice please on anticoagulation medication.
Jillymo9 days ago
At present I am on clopidogrel for my hughes diagnosed by Prof Hughes.
I have been feeling very unwell mentally and physically to the point o...
Good news for a change
ndstephens499 days ago
Am making appointment with endocrinologist.
Good news- my daughter has won Fulbright Scholarship to study laws in India that affect nonprofi...
1 Reply6 Likes
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