Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for February 2013

I have had gradually increasing but fluctuating numbness in the front of my thigh some lower back discomfort - nothing terrible -any ideas?

sangje

•11 years ago

6 Replies

Help! Gyno said i should have 3 miscarriages to have aps!

Just posted yesterday a question about getting heparine/ clexane. I was just phoned by the hospital saying they didnt want to treat me as APS since i had a...

Just posted yesterday a question about getting heparine/ clexane. I was just pho...

Flyingdutchie

•11 years ago

13 Replies

Anyone else get pains in feet??

I can't believe the pain I get in my feet, they get so painfull at times I can't even wear socks or slippers. Standing and walking is soon pain full, the pain...

I can't believe the pain I get in my feet, they get so painfull at times I can't...

lollie

•11 years ago

11 Replies

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Does anybody else experience bad tremors?

hmpowell

•11 years ago

7 Replies

why are my irn levels not going up

thomas70

•11 years ago

7 Replies

Sensation of brain vibration? Has anyone experienced this?

I was sitting on the ground listening to family talk when I started to get very dizzy, & fuzzy I had the sensation that my brain was vibrating & I was about to...

I was sitting on the ground listening to family talk when I started to get very ...

SassyOne

•11 years ago

5 Replies

Weird sensation of heat

Hi everyone... has anyone ever had this before? I have a weird sensation of heat around the center of my chest and in lower abdomen area. It doesnt hurt or...

Hi everyone... has anyone ever had this before? I have a weird sensation of heat...

lovemyheart

•11 years ago

6 Replies

Just having a good old whinge in to my computer!

Im sat up wondering if anyone else is up at this time feeling just as miserable as I do - with one symptom or another! Been feeling quite good recently,...

Im sat up wondering if anyone else is up at this time feeling just as miserable ...

emmaj

•11 years ago

4 Replies

Just pregnant. Is it ok to wait with clexane injections after ultra sound with heart beat?

Hi there After 2 miscarriages last year I was diagnosed with APS this january. I had a positive pregnancy test last week, hurray and scared, and started...

Hi there After 2 miscarriages last year I was diagnosed with APS this january...

Flyingdutchie

•11 years ago

3 Replies

Ginkgo

Have been looking at supplements and came across ginkgo - any thoughts or experience? http://www.nlm.nih.gov/medlineplus/druginfo/natural/333.html

Have been looking at supplements and came across ginkgo - any thoughts or experi...

Maybells

•11 years ago

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Is there any reason why professor Hughes would not make an appointment @ the lupus center? Freaking out waiting

I am freaking out waiting for Professor Hughes to review my medical report for an appointment. I have had such a bad time from other drs., being ignored, being...

I am freaking out waiting for Professor Hughes to review my medical report for a...

designer16

•11 years ago

3 Replies

Graham Hughes' blog February 2013

February 2013 Recently, the Times of London featured a couple who had tragically lost a baby late in pregnancy. A 'stillbirth'. The Times railed against the...

February 2013 Recently, the Times of London featured a couple who had tragica...

Hidden

•11 years ago

4 Replies

Blury vision

I have blury vision, sometimes its perfect other times I struggle to read from the tv screen. It feels blury round the edges and makes me feel a bit sick. Its...

I have blury vision, sometimes its perfect other times I struggle to read from t...

louise78

•11 years ago

6 Replies

To Bridge or Not to Bridge?

I am about to shut the door now the horse has bolted but I am wondering if someone out there can help me find a firm answer. My husband was diagnoised with...

I am about to shut the door now the horse has bolted but I am wondering if someo...

Tiggercat

•11 years ago

6 Replies

Does taking plaquenil affect blood test results?

If I start plaquenil before I have my bloods done again (Prof K said he wants to re-run the lupus tests etc), will it affect the results?

If I start plaquenil before I have my bloods done again (Prof K said he wants to...

Paleosooze

•11 years ago

2 Replies

Neuro doctors

Tried to explain to the Neuro doctor about my sided weakness and head pain. He said I only have a migraine, and should go on migraine meds, explained tried...

Tried to explain to the Neuro doctor about my sided weakness and head pain. He s...

KarenOR

•11 years ago

15 Replies

Is this another clot?

I have started to experience pain in my leg hip within the last 24 hours. This pain is the same as what I had in my past 2 DVT's in the opposite leg. I am on...

I have started to experience pain in my leg hip within the last 24 hours. This p...

MJLS

•11 years ago

8 Replies

Plaquenil

Hello, I was diagnosed with APS after a stroke and a few tia's 12 years ago and am quite stable on warfarin. My rheumy started me on Plaquenil 10 months ago,...

Hello, I was diagnosed with APS after a stroke and a few tia's 12 years ago and...

Mair

•11 years ago

6 Replies

flying

hi everyone i want to go on holiday this summer but am unsure where to go, my point is is it safe to fly with APS or should i stay on the ground or maybe...

hi everyone i want to go on holiday this summer but am unsure where to go, my po...

kimmi9

•11 years ago

7 Replies

Any treatment for Anti-phospholipid Syndrome related skin bumps and nodules?

paulus010101

•11 years ago

15 Replies

A&E TERROR AS APS NOT KNOWN OR UNDERSTOOD!!!!

I have aps but unfortunately for me I have suffered multiple infarcs and a cva stroke and am and have been unable to work since late 2010, I am on warfarin...

I have aps but unfortunately for me I have suffered multiple infarcs and a cva ...

traceylou

•11 years ago

11 Replies

First visit to guys under Dr k Breen , what to expect

Hi guys Well Tuesday is my first appointment at guys under Karen Breen 9am appointment so have an early start . Slightly worried as to what to expect ....

Hi guys Well Tuesday is my first appointment at guys under Karen Breen 9am ap...

Dann

•11 years ago

12 Replies

What is a 'low grade connective tissue disorder'?

Sorry, me again ;) Prof K said I have borderline bloods like a low positive ANA and symptoms that show I've got a low grade/mild connective tissue disorder,...

Sorry, me again ;) Prof K said I have borderline bloods like a low positive A...

Paleosooze

•11 years ago

2 Replies

Do viruses cause you to flare?

I'm really struggling with loads of pain and really bad fatigue. I think I might be fighting off a virus that the kids have got. It always seems to be this way...

I'm really struggling with loads of pain and really bad fatigue. I think I might...

Paleosooze

•11 years ago

5 Replies

Any good sjogrens forums?

My sister is on her way to a sjogrens diagnosis but is most likely sero-negative and she's been finding it hard to find a support group that she can join...

My sister is on her way to a sjogrens diagnosis but is most likely sero-negative...

Paleosooze

•11 years ago

4 Replies

Post-stroke fed-up ness NOT depression

Dear all, Ben feeling propper fed up recently - stroke was 2 1/2 years ago almost and INR largely satablw since then. Been back working full time from June...

Dear all, Ben feeling propper fed up recently - stroke was 2 1/2 years ago almo...

Eliza_E

•11 years ago

8 Replies

What are the options for joint and muscle pain?

When I saw Dr K on Thursday, we spoke briefly about amitriptyline (which I tried years ago and gave me nightmares) and plaquenil. We didn't come to any...

When I saw Dr K on Thursday, we spoke briefly about amitriptyline (which I tried...

Paleosooze

•11 years ago

3 Replies

Help please!!!!

Hello I'm having blood tests done ana and thromb and I don't know what they are for I thought the antipholispid was factor v something because my doctor thinks...

Hello I'm having blood tests done ana and thromb and I don't know what they are ...

hartnell5

•11 years ago

4 Replies

? Dr. @ lupus center London

Hi I have decided to go see Professor Hughes in London, but he booking appointments in June. This is a problem for me because airfare from USA, my daughters...

Hi I have decided to go see Professor Hughes in London, but he booking appoint...

designer16

•11 years ago

6 Replies

How long should it take for antibiotics to leave the system?

Long story short.... I was prescribed 500mg amoxicillin 3/day for 10 days. Which is a lot! Anyhow, I thought I'd try 2/day and see how I got on, so I took 2...

Long story short.... I was prescribed 500mg amoxicillin 3/day for 10 days. Whic...

Coppernob

•11 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2013

I have had gradually increasing but fluctuating numbness in the front of my thigh some lower back discomfort - nothing terrible -any ideas?

Help! Gyno said i should have 3 miscarriages to have aps!

Anyone else get pains in feet??

Does anybody else experience bad tremors?

why are my irn levels not going up

Sensation of brain vibration? Has anyone experienced this?

Weird sensation of heat

Just having a good old whinge in to my computer!

Just pregnant. Is it ok to wait with clexane injections after ultra sound with heart beat?

Ginkgo

Is there any reason why professor Hughes would not make an appointment @ the lupus center? Freaking out waiting

Graham Hughes' blog February 2013

Blury vision

To Bridge or Not to Bridge?

Does taking plaquenil affect blood test results?

Neuro doctors

Is this another clot?

Plaquenil

flying

Any treatment for Anti-phospholipid Syndrome related skin bumps and nodules?

A&E TERROR AS APS NOT KNOWN OR UNDERSTOOD!!!!

First visit to guys under Dr k Breen , what to expect

What is a 'low grade connective tissue disorder'?

Do viruses cause you to flare?

Any good sjogrens forums?

Post-stroke fed-up ness NOT depression

What are the options for joint and muscle pain?

Help please!!!!

? Dr. @ lupus center London

How long should it take for antibiotics to leave the system?

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