Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for June 2016

Lupus SLE also Lupus anticoagulant

I was diagnosed with Lupus nearly 5 years ago. I was 48. Lupus SLE rheumatoid overlap. My ESR was 69 my neutrophils were 0.1. Was put on plaquenil and steroid...

I was diagnosed with Lupus nearly 5 years ago. I was 48. Lupus SLE rheumatoid ov...

mona1163

•9 years ago

14 Replies

Fantastic news - a new centre in Portugal named after Professor Graham Hughes

As you are aware to help with communication and awareness raising, both in the UK and across Europe and beyond, our name change of Sticky Blood Hughes...

As you are aware to help with communication and awareness raising, both in the U...

MaryF

Administrator•9 years ago

35 Replies

Maybe APS....maybe not

Hi All, I'm after a bit of advice please...? Apologies, as you must have been asked this so many times! I've previously had a provoked DVT after an operation...

Hi All, I'm after a bit of advice please...? Apologies, as you must have been as...

HellyD

•9 years ago

3 Replies

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Hughes

Both my daughter and and I have Hughes and my parentage is Eire. We now know there is a lot of cases in County Kerry .

Both my daughter and and I have Hughes and my parentage is Eire. We now know th...

Hamy

•9 years ago

4 Replies

Heredity and Scottish Decent

I have been doing some research into heredity and Hughes Syndrome. I've found a couple of studies that show a significant prevalence for people of Scottish...

I have been doing some research into heredity and Hughes Syndrome. I've found a...

smartboredgirL

•9 years ago

25 Replies

Newly diagnosed with APS/Hughes

Hi,recently diagnosed male,42 yrs old. Suffered multiple P.E last May,was taken off anti-coagulants on November,then suffered a clot on my leg in March. Been...

Hi,recently diagnosed male,42 yrs old. Suffered multiple P.E last May,was taken ...

incontrol1

•9 years ago

13 Replies

Fragmin injection site issues

Hi, Since having a very traumatic late miscarriage last December (coil failed),I've been on fragmin injections. Last month I developen an awful infection in...

Hi, Since having a very traumatic late miscarriage last December (coil failed),I...

Bonnie39

•9 years ago

5 Replies

Dave, balance problems

I'm finally getting someone to test for APA. My niece transiently threw out these antibodies, I had Graves' autoimmunity when I was a teenager, since 12 my...

I'm finally getting someone to test for APA. My niece transiently threw out the...

annabettina

•9 years ago

8 Replies

Diabetes vs aps

Hi, any type 1 diabetes sufferes on here find that if their warferin levels are dodgy so are your blood sugars? Hubby has been having lots of low sugar levels...

Hi, any type 1 diabetes sufferes on here find that if their warferin levels are ...

Grsmith1982

•9 years ago

4 Replies

aps positive and feeling like an old man I am 37

hi all I had a stroke 3 years ago and I was tested several times over a period of months and I tested positive for anti phospholipid antibodies on each...

hi all I had a stroke 3 years ago and I was tested several times over a period o...

colinhoose

•9 years ago

16 Replies

My warfarin challenge, please help!

My dilemma is I since being on warfarin/ Coumadin I have been monitoring the vit k content of each morsel of food I put in my mouth. I suffer from OCD. My Dr...

My dilemma is I since being on warfarin/ Coumadin I have been monitoring the vit...

Wittycjt

•9 years ago

12 Replies

From Monday... I may be a little less available!

This is only for one week, but when I am able to answer your posts or engage I will be up to my waist in mud and answering you from Glastonbury Festival!...

This is only for one week, but when I am able to answer your posts or engage I w...

MaryF

Administrator•9 years ago

14 Replies

APS Fibromyalgia and what else

Hello all, it's been a while since I last posted but have been having a stressful time. After my initial diagnosis of fibro I was told to just read a leaflet...

Hello all, it's been a while since I last posted but have been having a stressf...

ccurrey79

•9 years ago

10 Replies

My story online

Hi everyone, if anyone is interested my story is the second one on this online article. Hughes syndrome is mentioned. All the best. Catherine...

Hi everyone, if anyone is interested my story is the second one on this online a...

Hopingforababy

•9 years ago

2 Replies

APS and arthritis go hand in hand?

Someone had posted about neck and arm pain. It had me thinking about my own issues. I do have a partial fusion in my neck, as well as arthritis in my hips and...

Someone had posted about neck and arm pain. It had me thinking about my own issu...

Kalykrill

•9 years ago

2 Replies

I Was diagnosed with Lupus Anticoagulant

I was diagnosed with lupus anticoagulant(LA) over 6 years ago. I suffered from blood clots all over, and suffer every day because of it. Now I know some people...

I was diagnosed with lupus anticoagulant(LA) over 6 years ago. I suffered from b...

Kalykrill

•9 years ago

10 Replies

Provoked or Unprovoked Clot

Do the circumstances surrounding a clotting episode (whether it was provoked or unprovoked) determine whether an APS patient should take blood thinners...

Do the circumstances surrounding a clotting episode (whether it was provoked or ...

Switch81

•9 years ago

6 Replies

when wil i feel any normality again

hi i have been recently diagnosed With APS., there are so many things have happened that im feeling lost, it has taken 6 months so far to recover from dvt and...

hi i have been recently diagnosed With APS., there are so many things have happe...

dawnzy

•9 years ago

8 Replies

Patients day

I recently watched a video of Professor Graham Hughes where he spoke at the Patients day, I was thinking it is from this year and now I can't find it, I am...

I recently watched a video of Professor Graham Hughes where he spoke at the Pati...

MarleneFlorrie

•9 years ago

4 Replies

Amytriptiline

I've been prescribed amytriptiline for pain associated with spinal/lumbar stenosis and endometriosis/adenomyosis (or APS- nobody knows for sure what causes...

I've been prescribed amytriptiline for pain associated with spinal/lumbar stenos...

janeingirona

•9 years ago

9 Replies

Hughes syndrome??

I think I made a mistake joining the community here, I don't understand what H.S. Is exactly but I don't think I have it!! I've discovered I have PMR and...

I think I made a mistake joining the community here, I don't understand what H....

isabella2015

•9 years ago

8 Replies

Pain Management

I have been having those aches & pains for bout as long as I can take it. Tylenol just isn't fixing it anymore. I went to see my GP who is the main mgr of my...

I have been having those aches & pains for bout as long as I can take it. Tyleno...

GirlfromTennessee

•9 years ago

10 Replies

The fight goes on !

Those of you that know me know of my many problems - I have been doing well as expected till about Three week ago when i started having trouble with my feet...

Those of you that know me know of my many problems - I have been doing well as ...

jetjetjet

•9 years ago

9 Replies

Flight socks

Just a bit of info on flight socks Do we have to get them measured from gp or we just buy them from chemist . Not sure which way to get them .. I'm aware...

Just a bit of info on flight socks Do we have to get them measured from gp ...

stargazer5761

•9 years ago

5 Replies

Come and go

Can anyone help saw the doctor and she said my last blood test showed no antiphospholipiid antibodies but that I would still be on wafren because they can...

Can anyone help saw the doctor and she said my last blood test showed no anti...

spider7

•9 years ago

7 Replies

A round up from the newspapers:

Articlea found from the press: 1....

MaryF

Administrator•9 years ago

Guess who's back!

Hey guys/girls, It's been a while since I posted or even viewed the forum and just wanted to drop in and say hope your all ok. Xxx

Hey guys/girls, It's been a while since I posted or even viewed the forum and j...

MJLS

•9 years ago

2 Replies

Low Drvvt

I just found this community while I was trying to research what a low DRVVT means. Most of my blood work came back normal but my drvvt was very low. It is...

I just found this community while I was trying to research what a low DRVVT mean...

AmyHR38

•9 years ago

6 Replies

Blood in Urine Anyone?

Hi all. I've had significant blood in my urine (along with occasional bits of bloody tissue) for the last two weeks. Of course, I assume my APS is...

Hi all. I've had significant blood in my urine (along with occasional bits of b...

mburns1401

•9 years ago

15 Replies

Weak positive

Due to low grade problems including chronic migraine, but no history of blood clots my gp arranged for the three tests. Only one, Igm has come back, weak...

Due to low grade problems including chronic migraine, but no history of blood cl...

Lingiz

•9 years ago

2 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for June 2016

Lupus SLE also Lupus anticoagulant

Fantastic news - a new centre in Portugal named after Professor Graham Hughes

Maybe APS....maybe not

Hughes

Heredity and Scottish Decent

Newly diagnosed with APS/Hughes

Fragmin injection site issues

Dave, balance problems

Diabetes vs aps

aps positive and feeling like an old man I am 37

My warfarin challenge, please help!

From Monday... I may be a little less available!

APS Fibromyalgia and what else

My story online

APS and arthritis go hand in hand?

I Was diagnosed with Lupus Anticoagulant

Provoked or Unprovoked Clot

when wil i feel any normality again

Patients day

Amytriptiline

Hughes syndrome??

Pain Management

The fight goes on !

Flight socks

Come and go

A round up from the newspapers:

Guess who's back!

Low Drvvt

Blood in Urine Anyone?

Weak positive

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