Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,538 posts

All posts for October 2020

Question regarding soft tissue and aps

I have a fibromatosis on my foot arch and was wondering if anyone else has suffered or suffers with it also I also suffer from dupreton disease also...as is...

I have a fibromatosis on my foot arch and was wondering if anyone else has suffe...

•3 years ago

Hosp pt 2!

Well, I’d never thought I would be writing a follow up about an e mail I’m still in hosp feeling very much under the weather and even thinking hosp food is...

Well, I’d never thought I would be writing a follow up about an e mail I’m sti...

•3 years ago

Australian APS specialist- researcher

Hello everyone... I’ve been diagnosed since 2012 Previously I asked the group if there was a specialist in APS in Qld and I’m informed, of a rheumatologist...

Hello everyone... I’ve been diagnosed since 2012 Previously I asked the group if...

•3 years ago

Want to take advantage of all our features? Just log in!

or

Coming soon, another Question and Answer session with Professor Graham Hughes.

Via the GHIC charity page and GHIC Facebook Page! https://www.facebook.com/TheGrahamHughesInternationalCharity https://twitter.com/ghicworldorg Tune in for...

Via the GHIC charity page and GHIC Facebook Page! https://www.facebook.com/TheG...

Administrator•3 years ago

DOAC anticoagulants

Are any of you on DOAC instead of Warfarin and if so ho well have you done

Are any of you on DOAC instead of Warfarin and if so ho well have you done

•3 years ago

Turn of events

well.what a strange turn of events. during lockdown I asked my granddaughter(who lives with me) to go and get the gazebo out of the attic. This was because...

well.what a strange turn of events. during lockdown I asked my granddaughter(who...

•3 years ago

15 Years of Warfarin

Been on warfarin which has always been up and down but am blessed with a great group of Phlebotomists at beacon medical in Plymstock who have all been very...

Been on warfarin which has always been up and down but am blessed with a great g...

•3 years ago

Another possibly silly question.

Hi. So we all have at some point or other had our antibodies tested, and mine are negative, or rather they were the last time they were tested which I believe...

Hi. So we all have at some point or other had our antibodies tested, and mine ar...

•3 years ago

Fragmin and warfarin pt 2

Thank you one and all for all your kind messages it means a lot to me, and have felt very much supported. I’m still in hosp, awaiting various test results,...

Thank you one and all for all your kind messages it means a lot to me, and have ...

•3 years ago

sticky blood

hi. I want to ask a question that may seem a bit thick, but I am feeling confused so here goes. can your blood be sticky and you not have APS? I shall...

hi. I want to ask a question that may seem a bit thick, but I am feeling confuse...

•3 years ago

Fragmin and warfarin

I have calmed down enough to write this post, took me a couple of hours. I’m currently in hosp with nasty pneumonia not for the first time this year, my heart...

I have calmed down enough to write this post, took me a couple of hours. I’m cu...

•3 years ago

Email.

Has anyone else contacted the lupus unit at Guys and St Thomas? How long should I give them to reply? Will they reply?

Has anyone else contacted the lupus unit at Guys and St Thomas? How long should...

•3 years ago

Lost

I live in Denmark. I had bleding PE’s in 2014, in 2015 i Got my diagnose aps. The hospital send a card with my conditions aps and faktor ll and a few leflets...

I live in Denmark. I had bleding PE’s in 2014, in 2015 i Got my diagnose aps. Th...

•3 years ago

Anyone know a specialist in the area of APLS

I have Hughes Syndrome and live in Qld. Does anyone know a specialist who knows about this condition. My haematologist reads up on it, my heart surgeon does...

I have Hughes Syndrome and live in Qld. Does anyone know a specialist who knows...

•4 years ago

Hydroxchloroquine

Hydroxchloquine Hoe does it help What are the possible side effects ?

Hydroxchloquine Hoe does it help What are the possible side effects ?

•4 years ago

Paramedics

Mums fine and so I am, ambulance called for mums neck pain I, just thought I would inform you all that the paramedic had no idea what antiphospholipid syndrome...

Mums fine and so I am, ambulance called for mums neck pain I, just thought I wou...

•4 years ago

Self testing

Just wondering how often do you self test, I have proven several times that if I had just weekly clinic blood tests my inr would be under range I test myself...

Just wondering how often do you self test, I have proven several times that if I...

•4 years ago

Tattoo Done ? Ink

Hi everyone was looking at getting a tattoo done but when I ask around I get told it's to dangerous and risky, as I'm on warafin for life does this mean it's...

Hi everyone was looking at getting a tattoo done but when I ask around I get tol...

JohnnySouthside

•4 years ago

Bleeding gums

Hi I ha e just started taking warfirin it’s been almost a month . My INR should be between 3-3.5 although I haven’t reached the range yet I had gone up to 4...

Hi I ha e just started taking warfirin it’s been almost a month . My INR should ...

•4 years ago

Arm pains

Most of us have joint pains but does anyone have constant arm pain. Mine stated about a year ago

Most of us have joint pains but does anyone have constant arm pain. Mine stated ...

•4 years ago

Confused

Hi. My doctor has ordered lupus anticoagulant and antiphospholipid antibody blood tests. I have been diagnosed with rheumatoid arthritis. When I asked why I...

Hi. My doctor has ordered lupus anticoagulant and antiphospholipid antibody bloo...

MapsavvyTraveller

•4 years ago

Tomorrow, Wednesday, another question and answer session with Professor Graham Hughes

Via GHIC Facebook and Twitter, MaryF

Via GHIC Facebook and Twitter, MaryF

Administrator•4 years ago

Come off Warfarin

Hi , I have Occipital neuralgia which is agony . The problem I have is that the can give me the correct medication to treat it because if the warfarin , my gp...

Hi , I have Occipital neuralgia which is agony . The problem I have is that the ...

•4 years ago

APLS specialist in Brisbane Qld Australia

Hello, does anyone know a specialist in this area in Brisbane?

Hello, does anyone know a specialist in this area in Brisbane?

•4 years ago