Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for September 2017

Not sure if i had or am having strokes or TIA's

i've had 7 or 8 stroke like attacks in 2 weeks time i have sle lupus i'm 26. i took gabapentin for nerve pain and the next day started having the shakes...

i've had 7 or 8 stroke like attacks in 2 weeks time i have sle lupus i'm 26. i ...

diva035

•7 years ago

16 Replies

Coumadin question???

I was diagnosed with lupus and secondary aps 16 years ago. Placed on plaquanil and baby aspirin for treatment. 1 year ago I had a stroke. I am now on warfin....

I was diagnosed with lupus and secondary aps 16 years ago. Placed on plaquanil ...

kjjj76

•7 years ago

11 Replies

Wrong Diagnosis

According to my medical records I was told that I had a CVA. Then this last Thursday I was admitted to the hospital with the same symptoms after a CT and MRI...

According to my medical records I was told that I had a CVA. Then this last Thur...

Prophetess

•7 years ago

8 Replies

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What do you say?!

I just met with a hematologist. While he listened, he basically chalked up my fatigue to Fibromyalgia. I got him to run additional thyroid tests (tsh 4 and...

I just met with a hematologist. While he listened, he basically chalked up my f...

TxMama79

•7 years ago

8 Replies

Unprovoked DVT

Had this (left leg) back in March, was on Apixaban for 3 months, then resumed my squash training and had a leg injury which I thought may have been a...

Had this (left leg) back in March, was on Apixaban for 3 months, then resumed my...

MoonBassAlpha

•7 years ago

13 Replies

Vasculitis?

Hi! I'm new here. I was diagnosed with Undifferentiated Conective Tissue disease ("mild"lupus like thing!) Last October but now i have tested positive for...

Hi! I'm new here. I was diagnosed with Undifferentiated Conective Tissue disease...

Thereisalight

•7 years ago

4 Replies

Outside of medication

You have all been quite helpful since I found this group. Outside of medication, has anyone been given a treatment plan to improve cognitive impairment?...

You have all been quite helpful since I found this group. Outside of medication,...

APS1993

•7 years ago

7 Replies

So tired!

I’m exhausted. ALL.THE.TIME. I’m 37, I have 3 small kids & work. What has worked for you? The exhaustion is so overwhelming, I am at a breaking point & it...

I’m exhausted. ALL.THE.TIME. I’m 37, I have 3 small kids & work. What has work...

TxMama79

•7 years ago

11 Replies

Low INR again

Hi guys me again . INR still fluctuating gone from 4.1 ,3.7, 3.1 and now 2.6 this morning. Feel rough and worried . Still waiting for vein test . Thank gif I'm...

Hi guys me again . INR still fluctuating gone from 4.1 ,3.7, 3.1 and now 2.6 thi...

amy1808

•7 years ago

23 Replies

New here, may be in wrong place?

I'm not sure if I am in the right place. I have had Rheumatoid Arthritis since about March 2011. I was 29 and terrified because the doctor I was originally...

I'm not sure if I am in the right place. I have had Rheumatoid Arthritis since a...

PurpleMom524

•7 years ago

9 Replies

I am new on this site

I am migrated joint and muscle pain not getting any reliable medical support.Only getting temporary relief while taking caflam 50mg.I am having bad medical...

I am migrated joint and muscle pain not getting any reliable medical support.On...

syedtariq3658

•7 years ago

2 Replies

Cognitive Impairment and head pains

Hello all, First off I want to say what a gift it is to have this forum and to get the support that is so much needed. Thank you - I am going for neuro...

Hello all, First off I want to say what a gift it is to have this forum and to ...

APS1993

•7 years ago

44 Replies

Desiree

Hi am 73 and take 2 warfarin at night would like to know what diet does one follow on sticky blood disease have other problems as well and what pain tablet...

Hi am 73 and take 2 warfarin at night would like to know what diet does one fol...

Tootsie73

•7 years ago

4 Replies

Hughes syndrome.... very anxious

Hi all, I have been browsing this site while being under investigation at the recurrent miscarriage clinic. I have had a miscarriage at 7 weeks then I had a...

Hi all, I have been browsing this site while being under investigation at the re...

Rachel-c

•7 years ago

17 Replies

APS & Extreme Fatigue

Hello, I've had APS for awhile and usually just take a baby aspirin except during pregnancy when I've taken heparin too. I'm in the Dallas, TX area. Recently,...

Hello, I've had APS for awhile and usually just take a baby aspirin except durin...

TxMama79

•7 years ago

11 Replies

UPDATE

Well it's been a long time since being on here , but after months and months of injections and months of the dreaded RAT POISON=WARFARIN ..... it's been a long...

Well it's been a long time since being on here , but after months and months of ...

jilly50

•7 years ago

13 Replies

Who to see at London Lupus Clinic

Hi I wonder if anyone could please advice on who to see at the London Lupus Clinic at London Bridge Hospital. My consultant is refering me to teh London...

Hi I wonder if anyone could please advice on who to see at the London Lupus Cli...

charlieab

•7 years ago

10 Replies

Locating APS specialist

I live in Oklahoma City and my daughter was recently diagnosed with APS. We have a hematologist we like pretty well, but would like to see someone who...

I live in Oklahoma City and my daughter was recently diagnosed with APS. We hav...

Mml519

•7 years ago

5 Replies

Pregnancy with Hughes Syndrome

Hello! I am currently pregnant and diagnosed with Hughes Syndrome. Would you consider this a high risk pregnancy? My doctor believes there is no reason to be...

Hello! I am currently pregnant and diagnosed with Hughes Syndrome. Would you con...

INCR

•7 years ago

9 Replies

Small vasculitis patches on leg?

Hello, I have APS and according to my rheumatologist, light lupus. Ive been getting about 3 small patches less than a centimeter of what I think is...

Hello, I have APS and according to my rheumatologist, light lupus. Ive been g...

Sketcher1980

•7 years ago

5 Replies

Sicca/ Sjögrens interpretation and council?

Professor Hughes / Jordan did advise that Sjögrens and accompanying hypo thyroid should be checked for. I asked my GP to run the " advanced " thyroid panel on...

Professor Hughes / Jordan did advise that Sjögrens and accompanying hypo thyroid...

KellyInTexas

Administrator•7 years ago

45 Replies

Fibromyalgia

I have finally been diagnosed with fibromyalgia which is a relief to finally no wot is wrong with me and that I'm not totally going around the twist, I've been...

I have finally been diagnosed with fibromyalgia which is a relief to finally no ...

Helen72

•7 years ago

12 Replies

Aps and aorta

Ive been diagnosed with APS about the yrs ago. Lately Ive experienced a bloated abdomen. It starts under my ribcage and causes alot of discomfort. There is...

Ive been diagnosed with APS about the yrs ago. Lately Ive experienced a bloated...

Nadiart

•7 years ago

6 Replies

Guys - frustration

Just on my way back from having my annual check up at Guys - was seen 1.5 hours after appt time and was with consultant for under 10 mins. Whilst symptoms...

Just on my way back from having my annual check up at Guys - was seen 1.5 hours ...

NicBay

•7 years ago

23 Replies

Hi can you get to see consultant from Ireland to st thomas see Prof Hunt r Dr Breen ?Hughes syndrome patient

Prof Hunt does not take private patients ..

fitzyc

•7 years ago

10 Replies

Lovenox

Has anyone tried this long term instead of warafin, for over 4 years since diagnosis and TIA's my INR is inconsistent, from 1.3 all the way up to 8

Has anyone tried this long term instead of warafin, for over 4 years since diagn...

edgewater100

•7 years ago

22 Replies

Thyroid

I have been experiencing hair loss on my head and eyebrows along with fatigue/feeling slow and hyper pigmentation on my face. My GP finally tested my thyroid...

I have been experiencing hair loss on my head and eyebrows along with fatigue/fe...

starships

•7 years ago

5 Replies

When will my leg get better?

I've had quite a traumatic time and my story could take a while so I'll do a shortened version- I have aps and was diagnosed due to miscarriages and...

I've had quite a traumatic time and my story could take a while so I'll do a sho...

Avydoo

•7 years ago

10 Replies

Questions about getting my wife pregnant, while having APS...

I know this sounds like a weird question, but my wife and I had our first child two years ago with no problems. I was not on any medications at the time and I...

I know this sounds like a weird question, but my wife and I had our first child ...

jaymacz28

•7 years ago

8 Replies

Update on my appointment for my hand etc

Hi all, I'm still waiting for a hospital appointment for my hand, now reached to my shoulder. No feelings at all now in the last 3 fingers, can't close the...

Hi all, I'm still waiting for a hospital appointment for my hand, now reached to...

Teanna

•7 years ago

25 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2017

Not sure if i had or am having strokes or TIA's

Coumadin question???

Wrong Diagnosis

What do you say?!

Unprovoked DVT

Vasculitis?

Outside of medication

So tired!

Low INR again

New here, may be in wrong place?

I am new on this site

Cognitive Impairment and head pains

Desiree

Hughes syndrome.... very anxious

APS & Extreme Fatigue

UPDATE

Who to see at London Lupus Clinic

Locating APS specialist

Pregnancy with Hughes Syndrome

Small vasculitis patches on leg?

Sicca/ Sjögrens interpretation and council?

Fibromyalgia

Aps and aorta

Guys - frustration

Hi can you get to see consultant from Ireland to st thomas see Prof Hunt r Dr Breen ?Hughes syndrome patient

Lovenox

Thyroid

When will my leg get better?

Questions about getting my wife pregnant, while having APS...

Update on my appointment for my hand etc

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