Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,335 members10,532 posts

All posts for September 2017

Not sure if i had or am having strokes or TIA's

i've had 7 or 8 stroke like attacks in 2 weeks time i have sle lupus i'm 26. i ...
diva035 profile image

Coumadin question???

I was diagnosed with lupus and secondary aps 16 years ago. Placed on plaquanil ...
kjjj76 profile image

Wrong Diagnosis

According to my medical records I was told that I had a CVA. Then this last Thur...
Prophetess profile image
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What do you say?!

I just met with a hematologist. While he listened, he basically chalked up my f...
TxMama79 profile image

Unprovoked DVT

Had this (left leg) back in March, was on Apixaban for 3 months, then resumed my...

Vasculitis?

Hi! I'm new here. I was diagnosed with Undifferentiated Conective Tissue disease...

Outside of medication

You have all been quite helpful since I found this group. Outside of medication,...
APS1993 profile image

So tired!

I’m exhausted. ALL.THE.TIME. I’m 37, I have 3 small kids & work. What has work...
TxMama79 profile image

Low INR again

Hi guys me again . INR still fluctuating gone from 4.1 ,3.7, 3.1 and now 2.6 thi...
amy1808 profile image

New here, may be in wrong place?

I'm not sure if I am in the right place. I have had Rheumatoid Arthritis since a...
PurpleMom524 profile image

I am new on this site

I am migrated joint and muscle pain not getting any reliable medical support.On...

Cognitive Impairment and head pains

Hello all, First off I want to say what a gift it is to have this forum and to ...
APS1993 profile image

Desiree

Hi am 73 and take 2 warfarin at night would like to know what diet does one fol...
Tootsie73 profile image

Hughes syndrome.... very anxious

Hi all, I have been browsing this site while being under investigation at the re...
Rachel-c profile image

APS & Extreme Fatigue

Hello, I've had APS for awhile and usually just take a baby aspirin except durin...
TxMama79 profile image

UPDATE

Well it's been a long time since being on here , but after months and months of ...
jilly50 profile image

Who to see at London Lupus Clinic

Hi I wonder if anyone could please advice on who to see at the London Lupus Cli...
charlieab profile image

Locating APS specialist

I live in Oklahoma City and my daughter was recently diagnosed with APS. We hav...
Mml519 profile image

Pregnancy with Hughes Syndrome

Hello! I am currently pregnant and diagnosed with Hughes Syndrome. Would you con...
INCR profile image

Small vasculitis patches on leg?

Hello, I have APS and according to my rheumatologist, light lupus. Ive been g...
Sketcher1980 profile image

Sicca/ Sjögrens interpretation and council?

Professor Hughes / Jordan did advise that Sjögrens and accompanying hypo thyroid...
KellyInTexas profile image
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Fibromyalgia

I have finally been diagnosed with fibromyalgia which is a relief to finally no ...
Helen72 profile image

Aps and aorta

Ive been diagnosed with APS about the yrs ago. Lately Ive experienced a bloated...
Nadiart profile image

Guys - frustration

Just on my way back from having my annual check up at Guys - was seen 1.5 hours ...
NicBay profile image

Hi can you get to see consultant from Ireland to st thomas see Prof Hunt r Dr Breen ?Hughes syndrome patient

Prof Hunt does not take private patients ..
fitzyc profile image

Lovenox

Has anyone tried this long term instead of warafin, for over 4 years since diagn...

Thyroid

I have been experiencing hair loss on my head and eyebrows along with fatigue/fe...
starships profile image

When will my leg get better?

I've had quite a traumatic time and my story could take a while so I'll do a sho...
Avydoo profile image

Questions about getting my wife pregnant, while having APS...

I know this sounds like a weird question, but my wife and I had our first child ...
jaymacz28 profile image

Update on my appointment for my hand etc

Hi all, I'm still waiting for a hospital appointment for my hand, now reached to...
Teanna profile image