Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for September 2015

US Study relating to pregnancy issues.

US Study:Biomarkers Can Help Determine Lupus Patients At Risk During Pregnancy Mentions of APL Link:...

US Study:Biomarkers Can Help Determine Lupus Patients At Risk During Pregnancy ...

tim47

•9 years ago

1 Reply

New to APS Scared but relieved

Hello. I was diagnosed 2 days ago with Hughes Syndrome and I cried. Not in fear but in that someone had finally found out what was wrong. See I live in...

Hello. I was diagnosed 2 days ago with Hughes Syndrome and I cried. Not in fear ...

medlock62

•9 years ago

13 Replies

Frustration

Hi everyone I had an appointment with a heamotogist speacilist in perth western Australia yesterday. It was a very long day and today im suffering. A 10...

Hi everyone I had an appointment with a heamotogist speacilist in perth west...

Hidden

•9 years ago

8 Replies

Want to take advantage of all our features? Just log in!

Those on Warfarin... How often is your INR tested? Also, what are the other blood thinning options?

As much knowledge as I've acquired, I am still learning. Common sense tells me my INR should be in range all the time and tested at least multiple times week,...

As much knowledge as I've acquired, I am still learning. Common sense tells me ...

mylafont

•9 years ago

33 Replies

Professor Graham Hughes August and September Blog 2015

BLOG : August and September 2015 Almost the end of September! My apologies to those who follow the BLOG for the late arrival of the August blog....

BLOG : August and September 2015 Almost the end of September! My apologies to t...

MaryF

Administrator•9 years ago

3 Replies

cannot tolerate dizziness

i cannot tolerate the dizziness any longer. none of the doctors here in Milwaukee have even tried to control it, the medicine they give me does nothing for me...

i cannot tolerate the dizziness any longer. none of the doctors here in Milwauke...

packerfan

•9 years ago

27 Replies

Follower

I have not been getting update lately

morro

•9 years ago

1 Reply

What does the 'A' mean?

Hi there :) Not asking for you to interpret my results, but can anyone tell me what the 'A' means? It is only on the first results I got, twice. I've tried...

Hi there :) Not asking for you to interpret my results, but can anyone tell me ...

Nellennium

•9 years ago

2 Replies

Ms

I have Hughes syndrome and I have suffered with depression from my teens if this helps anyone ,

I have Hughes syndrome and I have suffered with depression from my teens if this...

Sjhr

•9 years ago

2 Replies

Dreams

Just want to know does anyone get the feeling when they are in they dream when they are running a certain distance and your head feeling like its being...

Just want to know does anyone get the feeling when they are in they dream when t...

Hidden

•9 years ago

4 Replies

Help please

A while ago I had two positive beta2glycoprotein results 13 weeks apart. Even though I had symptoms of Hughes as well I was told that I did not have Hughes and...

A while ago I had two positive beta2glycoprotein results 13 weeks apart. Even th...

lorac1

•9 years ago

8 Replies

APS

Hi had my operation on Monday on my hand for carpel tunnel all whent well came off warfarin a week last Thursday then had to go to hospital ever night to have...

Hi had my operation on Monday on my hand for carpel tunnel all whent well came o...

Lesley61

•9 years ago

17 Replies

Sneddons syndrome

I was diagnosed at 38. I'm 42 . I have the purple circles on my legs. Always have. I've had blood clots. I've lost my leg. Had clots in intestines colon...

I was diagnosed at 38. I'm 42 . I have the purple circles on my legs. Always ...

jennymayt

•9 years ago

20 Replies

Partial deafness and hearing aids.

Hi guys, I have been diagnosed partial deafness and my audiologist in Westside audiology suggested me to use digital hearing aids. Does anybody have...

Hi guys, I have been diagnosed partial deafness and my audiologist in Westside ...

keithfcoleman

•9 years ago

4 Replies

My lasts analysis.

HI it's me again. Today i handed the result of my last analysis, the analysis that I made a month ago, had gone negative lupus anticoagulant, now I think not....

HI it's me again. Today i handed the result of my last analysis, the analysis th...

clapa80

•9 years ago

1 Reply

Mrs

Burning vians in arms gion to chest

briel

•9 years ago

2 Replies

Query about Warfarin version Rivaroxaban

I have heard from a good source that it's the intention to move patients who take warfarin onto Rivaroxaban . I query this is suitable for patients with APS,...

I have heard from a good source that it's the intention to move patients who tak...

bernieembleton

•9 years ago

16 Replies

So frustrated by hospital appointment

Hi all, So today was my long awaited appointment with Dr Karim (as recommended from the list on here). I wasn't sure what to expect and, as a result, probably...

Hi all, So today was my long awaited appointment with Dr Karim (as recommended ...

phoenix77

•9 years ago

18 Replies

Meeting in 2016

Does anyone know when the meeting is in May 2016. I live in California USA. Prof Hughes told me I should go but the last 2 years I have missed the date by a...

Does anyone know when the meeting is in May 2016. I live in California USA. Prof...

designer16

•9 years ago

10 Replies

Warfarin making RA worse

Is there any one else who has APS,RA & Fibromyalgia who is on warfarin. I started on warfarin in August and my symptoms with the other diseases are worse. My...

Is there any one else who has APS,RA & Fibromyalgia who is on warfarin. I starte...

Fra22-57

•9 years ago

10 Replies

I've been experiencing Allergies on my skin twice a week.

Hello I need help. I've been experiencing skin itchiness. It's been 4 months now. It comes every week, twice a week specifically. It is like a bite of a...

Hello I need help. I've been experiencing skin itchiness. It's been 4 months now...

nixespina

•9 years ago

7 Replies

Raised intra cranial pressure

Hi all, I have not been on here for a while having a number of issues that seem to have taken the limelight ! Stupidly I had not fully appreciated how these...

Hi all, I have not been on here for a while having a number of issues that seem ...

sangje

•9 years ago

12 Replies

Help Advice Needed

Ive had 7 PE's even while taking warfarin. Had a stroke and a number of TIA's and a Heart attack. But i also have a number of other health issues. Angina,...

Ive had 7 PE's even while taking warfarin. Had a stroke and a number of TIA's an...

Rose4u

•9 years ago

11 Replies

I would like your opinion

I am in a kind of dilemma (not a bad one). My health situation is that I have APS (Antiphospholipid Syndrome), ITP (my immune system is destroying the...

I am in a kind of dilemma (not a bad one). My health situation is that I have A...

david1970

•9 years ago

3 Replies

Confused!

i have been under investigation for Antiphosphilipid for 2 years now and only had three sets of bloods done. Every time I had them done the results are...

i have been under investigation for Antiphosphilipid for 2 years now and only ha...

strawberry69

•9 years ago

13 Replies

Remedies for Headaches?

Hi, I'm 17 years old. I've been having headaches since I was 12 years old. As I get older they get worse. For the past 6 months the left side of my head and...

Hi, I'm 17 years old. I've been having headaches since I was 12 years old. As I ...

Hidden

•9 years ago

4 Replies

newbie

hi,im chelle,been diagnosed with aps for six yrs,was originally on warfarin but couldnt get inr in range despite taking 27mg of warfarin,so im now injecting...

hi,im chelle,been diagnosed with aps for six yrs,was originally on warfarin but ...

x-chelle-x

•9 years ago

4 Replies

had my scan today, bad news

Unfortunately the baby didn't have a heart beat. I am devastated even though I kind of knew this would happen. I cannot bear the thought of starting all over...

Unfortunately the baby didn't have a heart beat. I am devastated even though I ...

MStiff

•9 years ago

40 Replies

Inr

Hi guys Karen again. As im so new too all of this and not having seen my hemologist speacilist as yet ( appointment booked for the 29th sep perth western...

Hi guys Karen again. As im so new too all of this and not having seen my hemolog...

Hidden

•9 years ago

12 Replies

Help

Hi Everyone, finally had my third acupuncture session on Thursday. So far not really helped which is so disappointing as the first two gave me significant...

Hi Everyone, finally had my third acupuncture session on Thursday. So far not r...

diane1428

•9 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for September 2015

US Study relating to pregnancy issues.

New to APS Scared but relieved

Frustration

Those on Warfarin... How often is your INR tested? Also, what are the other blood thinning options?

Professor Graham Hughes August and September Blog 2015

cannot tolerate dizziness

Follower

What does the 'A' mean?

Ms

Dreams

Help please

APS

Sneddons syndrome

Partial deafness and hearing aids.

My lasts analysis.

Mrs

Query about Warfarin version Rivaroxaban

So frustrated by hospital appointment

Meeting in 2016

Warfarin making RA worse

I've been experiencing Allergies on my skin twice a week.

Raised intra cranial pressure

Help Advice Needed

I would like your opinion

Confused!

Remedies for Headaches?

newbie

had my scan today, bad news

Inr

Help

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