Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,351 members • 10,539 posts

All posts for February 2012

Here we go

Only 8 more members signing up and we will be '600'... not bad for such a short space of time! M x

Only 8 more members signing up and we will be '600'... not bad for such a short ...

MaryF

Administrator•12 years ago

7 Replies

Calcification of messenteric artery

Hello, well after being told to cut out gluten, wheat, I have told I have this condition. I had a CT scan yesterday so that a more detailed image. I am...

Hello, well after being told to cut out gluten, wheat, I have told I have this c...

daisy11

•12 years ago

4 Replies

Does APS affect men's testosterone levels?

My husband was 44 when APS suddenly appeared. Within a few months, he became impotent, lost all energy & a number of other things. When his testosterone level...

My husband was 44 when APS suddenly appeared. Within a few months, he became imp...

sbncmo

•12 years ago

21 Replies

Want to take advantage of all our features? Just log in!

Part of the community

I believe that I have had APS since I was a little child..After a year and a half of waiting for funding..I finally visited St Thomas' Hospital last Friday and...

I believe that I have had APS since I was a little child..After a year and a hal...

Rhian21

•12 years ago

14 Replies

Are we safe to take cod liver oil? My GP hasn't a clue

I used to take cod liver oil for my skin before I knew I had APS and heaard something this mornign again about how goood for you it is. Is it on our list of...

I used to take cod liver oil for my skin before I knew I had APS and heaard some...

Eliza_E

•12 years ago

10 Replies

Hate this brain fog

I hate this brain fog that blights my life. My warfarin works for the Hughes fog but not the fibro fog and it is hopeless at the moment. I don't feel...

I hate this brain fog that blights my life. My warfarin works for the Hughes fo...

panda60

•12 years ago

27 Replies

Today is a good day, diagnosis at last!

Ive decided today is a good day, I have finally had confirmation from a very top consultant in heamatology,that he is 'as sure as eggs are eggs if prof hughes...

Ive decided today is a good day, I have finally had confirmation from a very top...

emmaj

•12 years ago

7 Replies

Warfarin Cause Calcification of Arteries?

Hey all! Have any of your doctors informed you of the risks of warfarin? I just came upon some informaiton regarding the impact of warfarin on the...

Hey all! Have any of your doctors informed you of the risks of warfarin? I j...

TheKid

•12 years ago

5 Replies

Waking up & feeling like I've been hit by a bus?!!

I thought you might like this image!! I went on a 1 & 1/2 trip each way with one of my brother's to see our other brother yesterday, all we did was have...

I thought you might like this image!! I went on a 1 & 1/2 trip each way with ...

Suzypawz

•12 years ago

15 Replies

Has anyone been diagnosed with transverse myelitis as well as APS? I have APS, but wonder if symptoms are actually due to TM.

My symptoms began Dec 2005 post flu vaccine. I had serious back and leg pain, nausea and vomiting and then brief but complete paralysis of both hands. I spent...

My symptoms began Dec 2005 post flu vaccine. I had serious back and leg pain, na...

haley

•12 years ago

5 Replies

Vitamin D's Impact on Autoimmunity

Taken from Dr. Jack Kruse's website (www.jackkruse.com). I think this guy is on to something. In fact, I think this guy is on to a lot of somethings. He's...

Taken from Dr. Jack Kruse's website (www.jackkruse.com). I think this guy is on...

TheKid

•12 years ago

3 Replies

Damaging Effects of Antibodies

I have been on Coumadin since 2003 and was diagnosed with APS (positive for both types of antibodies) formally in 2010. In 2011, I had, what I and my doctors...

I have been on Coumadin since 2003 and was diagnosed with APS (positive for both...

TheKid

•12 years ago

3 Replies

Crazy time!!!! Sorry!!! :-(

Hi all I'm just writing this to say a big sorry for not being around as much. Since moving into the pub in December, life has been somewhat hectic. Even...

Hi all I'm just writing this to say a big sorry for not being around as much. ...

jessielou

•12 years ago

7 Replies

Greedy GP's check this out

latestnews.virginmedia.com/news/uk/2012/02/23/gps_over_paid_for_ghost_patients was trying to cut as the link someone had it on the thyroid site i just come...

latestnews.virginmedia.com/news/uk/2012/02/23/gps_over_paid_for_ghost_patients ...

kathyD64

•12 years ago

1 Reply

Our site will be temporarily closed on Sunday for maintenance

I expect everybody has noticed... but just in case, yellow line across top currently, a message indicating site of line for a while on Sunday. 10 -6. Mary F

I expect everybody has noticed... but just in case, yellow line across top curre...

MaryF

Administrator•12 years ago

3 Replies

Not sure what hit me!

I came down with some virus or something last weekend. Felt really good and then bang I was floored. Fever, aches, pains, nausea - the whole lot. I have spent...

I came down with some virus or something last weekend. Felt really good and then...

travelnut

•12 years ago

6 Replies

I Wish you all enough:)

Recently I overheard a Father and daughter in their last moments together at the airport. They had announced the departure. Standing near the security...

Recently I overheard a Father and daughter in their last moments together at the...

Lesley_D

•12 years ago

11 Replies

My visit to St Thomas's

Well I have been to St T's and I have to say it was rather an anticlimax I sat with the doctor who asked "well Lesley why did you want to come to this...

Well I have been to St T's and I have to say it was rather an anticlimax I ...

Lesley_D

•12 years ago

41 Replies

I'm wondering how soon into pregnancy should I start on heparin injections?

I have had APS for 10 years and was diagnosed after I had a DVT in my first pregnancy. I am now on Pregnancy number 4 and 8 weeks along. I have not had any...

I have had APS for 10 years and was diagnosed after I had a DVT in my first preg...

bones34

•12 years ago

8 Replies

Anyone out there with experience of competitive road cycling (bunch racing) whilst on warfarin?

Sometimes crashes occur in these events. Obviously this isn't great for an individual on warfarin - especially if the head is involved. So my question is...

Sometimes crashes occur in these events. Obviously this isn't great for an indi...

Christiaan

•12 years ago

8 Replies

Heart attack BBC News

Hi I was watching BBC news on the morning programme , it mentioned women and heart attacks.I told them I had one caused by a blood clot Hughes syndrome etc....

Hi I was watching BBC news on the morning programme , it mentioned women and hea...

daisyd

•12 years ago

4 Replies

Hospital Reviews

Hi All, This is just a reminder to ask you to fill in the reviews on all the hospitals you have been to, as the more information we have on these places the...

Hi All, This is just a reminder to ask you to fill in the reviews on all the ...

paddyandlin

•12 years ago

3 Replies

Daily illness made worse.

Hi all, In a number of conversations people have been talking about the fact that if they get a cold, sick, have an operation (Minoror major) or basic...

Hi all, In a number of conversations people have been talking about the f...

paddyandlin

•12 years ago

5 Replies

Feeling fed up!!!!

Hi everyone! I've been off work for five weeks after catching flu . Usually when I catch something I take a while to recover but for some reason I just...

Hi everyone! I've been off work for five weeks after catching flu . Usually...

janekins

•12 years ago

7 Replies

I take 12mg's for warfarin to achieve my target range of 2-3. Do anyone else take a dose this high?

Mummy

•12 years ago

12 Replies

lupus mentioned in the daily mail today!

Hi all, i dont have lupus (as far as i know so far) but it was mentioned today in the daily mail, cerebral lupus, and i dont know the difference but i assume...

Hi all, i dont have lupus (as far as i know so far) but it was mentioned today i...

emmaj

•12 years ago

4 Replies

warfrin of clexane?

Hi everybody just out of hospital again with a suspected clot on my kidney, the ct wasnt too clear. I have never had a stable INR since the first clot in my...

Hi everybody just out of hospital again with a suspected clot on my kidney, the ...

margaretjo

•12 years ago

5 Replies

Appointment with local paper!

I want to be listened to!!!! I have made the appointment at last with our local paper: 'The Burton Mail'!! I am right now jotting everything I want to say...

I want to be listened to!!!! I have made the appointment at last with our loc...

Suzypawz

•12 years ago

12 Replies

Dental work and warfarin ....how do you manage?

For those on warfarin, how does it impact your dental appointments? Do you have to stop the warfarin to have regular checks or just for major work? What...

For those on warfarin, how does it impact your dental appointments? Do you ha...

tassie

•12 years ago

9 Replies

Are you self managing Warfarin?

I would be very interested to hear how this is done practically, and how different clinic’s policies on self managing might differ. I bought a CoaguCheck XS...

I would be very interested to hear how this is done practically, and how differe...

Helene

•12 years ago

38 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for February 2012

Here we go

Calcification of messenteric artery

Does APS affect men's testosterone levels?

Part of the community

Are we safe to take cod liver oil? My GP hasn't a clue

Hate this brain fog

Today is a good day, diagnosis at last!

Warfarin Cause Calcification of Arteries?

Waking up & feeling like I've been hit by a bus?!!

Has anyone been diagnosed with transverse myelitis as well as APS? I have APS, but wonder if symptoms are actually due to TM.

Vitamin D's Impact on Autoimmunity

Damaging Effects of Antibodies

Crazy time!!!! Sorry!!! :-(

Greedy GP's check this out

Our site will be temporarily closed on Sunday for maintenance

Not sure what hit me!

I Wish you all enough:)

My visit to St Thomas's

I'm wondering how soon into pregnancy should I start on heparin injections?

Anyone out there with experience of competitive road cycling (bunch racing) whilst on warfarin?

Heart attack BBC News

Hospital Reviews

Daily illness made worse.

Feeling fed up!!!!

I take 12mg's for warfarin to achieve my target range of 2-3. Do anyone else take a dose this high?

lupus mentioned in the daily mail today!

warfrin of clexane?

Appointment with local paper!

Dental work and warfarin ....how do you manage?

Are you self managing Warfarin?

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