Anyone with Pulmonary Arterial Hypertension (PAH) and APS that started with high hypertension?

After I started Warfarin my hypertension has normalized. I have had a PAH-pressure of 50 the last two years. No breathlessness. Waiting for a heartcateterization (?). Any thoughts? have you had the same?

[Manofmendip]

Hello Lure

No I haven't had this but I did have Coronary Artery Disease, whcih required bypass surgery and which Prof Hughes said was probably APS related.

Best wishes.

Dave

[Hidden in reply to Manofmendip]

Hello Dave and thank you for answer

.

I meant high blood pressure that i think led to high PAH pressure. Did you have a bypass surgery? Now my bloodpressure is almost normal but I take the same medicin. We hope, at least I hope, that Warfarin will keep the pulmonary pressure at the same level!. I have also Tricipitalisinsuffisience.

Best wishes.

Kerstin

[Manofmendip in reply to Hidden]

Hi Kirstin

Yes, I had bypass surgery in 2007 and am able to go cycling all now without any problems now.

I did have raised blood pressure and Prof Hughes asked my GP to give me Ramipril for that, which has reduced my blood pressure.

Best wishes.

Dave

[Hidden in reply to Manofmendip]

Hi agin Dave,

That sounds fantastic! I can tell you that my Uncle who I think had APS, had 2 bypassoperations and he was fine after and lived till the age of 90.

Did you have high Cholesterol? My uncle had but I has not, but the Reumatolog thinks I shall try "Statins". I think myself that the Cholesterol has its own history in our illness and medicin has perhaps no use.I feel fine when I move a lot like long walks. Do you have Lupus Anticoagulant? The Coaguhcheck machine give me a higher result than the vein lab result and it differ also from time to time.

Best wishes

[Manofmendip]

Hi Lure

Yes my cholesterol was about 6.5 before I had bypass surgery. I am now on Fluvastatin, 80mg prolonged release, which causes less side effects than instant release statins.

Prof Hughes thinks that APS causes inflamation in the coronary arteries that cause foci for the build up of plaque that then block the arteries.

I don't have Lupus.

My CoaguChek machine generally worked very well but gave wildly high readings for three months after surgery.

I have been getting 'funny turns', which an audiovestibular consultant who prof Hughes referred my too has explained is caused by sticky blood not being able to pass through the very narrow blood vessels in the ears. I have found Heparin better than Warfarin for me and I never have funny turns when I'm out cycling; I assume due to better blood flow during exercise.

Best wishes.

Dave

[Hidden]

Hi Dave and thank you for your information.

I do not have Lupus but Lupus anticoagulant in the blood.

I have a leftsided Ottolit disturbance since probably 2002. I saw prof Bergenius, an audiovestibular dr I think in 2008. I have still Tinnitus and after 10 months with Warfarin and no Aura I got it back but not so often.

I feel bad by weatherchanges and I wonder if it change our narrow blood vessels.

Best wishes and thanks again,

Kerstin