Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for March 2020

Must BOTH tests be pos to have APS?

Hi all, New to this community and looks like a lot of great information from you all! I have had an "undeclared connective tissue disorder" or something in the...

Hi all, New to this community and looks like a lot of great information from you...

starluna3

•4 years ago

3 Replies

Ongoing nosebleed with ibuprofen and aspirin

Hi I have APS ( Fibro also ) was just wondering as I was always told to avoid ibuprofen.. but rheumatologist recently said I was okay to take ibuprofen with...

Hi I have APS ( Fibro also ) was just wondering as I was always told to avoid ib...

Linda80OL

•4 years ago

6 Replies

Do you understand Coronavirus, COVID-19?

This is one of the best explanations: https://youtu.be/BtN-goy9VOY

lupus-support1

Administrator•4 years ago

4 Replies

Want to take advantage of all our features? Just log in!

New York & Coronavirus

Hi it’s getting real crazy here in NY! I’m only a few miles from City in Long Island close to Queens the largest area of the Virus in NY! If u have symptoms u...

Hi it’s getting real crazy here in NY! I’m only a few miles from City in Long Is...

Debbweb01

•4 years ago

9 Replies

Severe Bloating in Abdomen of Injection Site?

Hello All, I am a new member to this forum having just been diagnosed with APS. I have been started on bridging therapy with Lovanox injections (100 mg...

Hello All, I am a new member to this forum having just been diagnosed with APS. ...

kebber1223

•4 years ago

4 Replies

AZATHIOPRINE OR HCQ IN APS TREATMENT?

hello all, I have been diagnosed with catastrophic antiphospholipid syndrome and had a brain stroke in juky 2017. Sinve then i am taking warfarin and...

hello all, I have been diagnosed with catastrophic antiphospholipid syndrome an...

Rajatnijh12

•4 years ago

1 Reply

Lupus anticogulant confusion

Hi. A few years ago i was tested for lupus SLE as i have majority of symptoms. Turned out it wasnt lupus SLE it was in fact lupus anticogualant. I was changed...

Hi. A few years ago i was tested for lupus SLE as i have majority of symptoms. T...

xSarahx

•4 years ago

4 Replies

aps

I had dvd and pe 7 years ago when I found out that I have aps which was told that why I had them and lupus but for the last 3 years I keep getting ulcers on...

I had dvd and pe 7 years ago when I found out that I have aps which was told t...

johncarver

•4 years ago

4 Replies

Covid 19 risk factor or not?

Hi this is my first post but on here trying to work out what risk covid 19 is to me so I can work out if to offer my help on the front line. I had 6 pregnancy...

Hi this is my first post but on here trying to work out what risk covid 19 is to...

Downtime13

•4 years ago

7 Replies

Have you experienced a sudden shortage of plaquenil/hydroxycholoquine since the coronavirus?

I am very worried about not being able to get hydroxychoroquine since it's now being used for the coronavirus.

I am very worried about not being able to get hydroxychoroquine since it's now b...

loretta1106

•4 years ago

11 Replies

Numb and tingling hands/arm. Should I be concerned?

Hi everyone, I'm 28 years old and was diagnosed with a DVT 6 days ago (currently on 20 mg eliquis and 81mg aspirin daily), this is my second DVT in 8 months....

Hi everyone, I'm 28 years old and was diagnosed with a DVT 6 days ago (currently...

annabanana23

•4 years ago

3 Replies

Keeping safe during COVID 19

Wondering if anyone can help us understand how APS PATIENTS might be more at risk of COVID 19. I’m a teacher and being asked to care for key workers and...

Wondering if anyone can help us understand how APS PATIENTS might be more at ris...

Vespa1

•4 years ago

21 Replies

Back on here again been out for over a week- bad leg infection ??

I'm Back - I have been every day in the ER fir a real bad case of cellulitis, heavy antibiotics from I V every day . Blood has been bad so testing every...

I'm Back - I have been every day in the ER fir a real bad case of cellulitis, ...

jetjetjet

•4 years ago

16 Replies

HELP for individuals and families self isolating

Around my area, various groups have sprung up, to help people, these can be accessed by Facebook and if you don't use that many are getting a phone line...

Around my area, various groups have sprung up, to help people, these can be acce...

MaryF

Administrator•4 years ago

2 Replies

Covid 19 and aps

Anyone had advice from their practitioner on self isolating please

Turner71

•4 years ago

5 Replies

Covid 19

Should people on warfarin for a ps be self isolating. Been trying to contact gp for advice all day but had no luck

Should people on warfarin for a ps be self isolating. Been trying to contact gp ...

Turner71

•4 years ago

10 Replies

Coronavirus

Obviously I’m 38 and got APS , I’m I classed under the vulnerable list or has anyone had any information, Thanks in advance Mark

Obviously I’m 38 and got APS , I’m I classed under the vulnerable list or has an...

Markgammon06

•4 years ago

14 Replies

Arnica/Dalterparin interactions?

Hi all, I’m having bilateral mastectomy soon & the surgeon wants me to start oral arnica. I’m on daily dalterparin (& hydroxychloroquine). I know arnica...

Hi all, I’m having bilateral mastectomy soon & the surgeon wants me to start ora...

Jensgoldenpig

•4 years ago

6 Replies

How does high INR make u feel?

So last week INR 16.8 Monday. Retest Tuesday 5.4. This Monday 7.3 vein (6.9 finger prick) I don’t have a headache 🤕 amazing but my body hurts so much. And I’m...

So last week INR 16.8 Monday. Retest Tuesday 5.4. This Monday 7.3 vein (6.9 fing...

WendyWoo50

•4 years ago

11 Replies

NHS updates/advice Coronavirus-covid-19

https://www.nhs.uk/conditions/coronavirus-covid-19/ MaryF

MaryF

Administrator•4 years ago

4 Replies

Finally getting somewhere... hopefully

So I haven't posted in 4 months as I was waiting until I had something more to report. I had my 12 week lupus anticoagulant follow up test and this came back...

So I haven't posted in 4 months as I was waiting until I had something more to ...

Mifford

•4 years ago

9 Replies

What to do if GP won't refer to specialist

Hi can you advise Dr wouldn't review to see hematology not had INR checked for years on apixiban and struggling with memory and fatigue.

Hi can you advise Dr wouldn't review to see hematology not had INR checked for y...

rankin1st

•4 years ago

7 Replies

Finger Prick & Vein draw trial

My anti Coag team think it would be a good idea to have a months trial whereby I have a finger prick then vein draw one after the other once a week to compare...

My anti Coag team think it would be a good idea to have a months trial whereby I...

WendyWoo50

•4 years ago

6 Replies

At home with INR of 16.8

And the saga goes on... Today out patients finger prick reading 8+ (X 4) Vein reading - unobtainable (X2) They resorted to the old fashioned method using a...

And the saga goes on... Today out patients finger prick reading 8+ (X 4) Vein re...

WendyWoo50

•4 years ago

22 Replies

My nose bleeding blood transfusion and apixaban

Just an update about my continuous nose bleeding. (7months) for the past few weeks they went crazy, with blood streaming out, half filling a bucket. I had my...

Just an update about my continuous nose bleeding. (7months) for the past few wee...

mariamoo1

•4 years ago

10 Replies

Coronavirus: Information from UK

What is the Coronavirus? The coronavirus belongs to a large family of viruses identified as the cause of certain animal diseases and can cause disease...

What is the Coronavirus? The coronavirus belongs to a large family of viruses i...

lupus-support1

Administrator•4 years ago

6 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2020

Must BOTH tests be pos to have APS?

Ongoing nosebleed with ibuprofen and aspirin

Do you understand Coronavirus, COVID-19?

New York & Coronavirus

Severe Bloating in Abdomen of Injection Site?

AZATHIOPRINE OR HCQ IN APS TREATMENT?

Lupus anticogulant confusion

aps

Covid 19 risk factor or not?

Have you experienced a sudden shortage of plaquenil/hydroxycholoquine since the coronavirus?

Numb and tingling hands/arm. Should I be concerned?

Keeping safe during COVID 19

Back on here again been out for over a week- bad leg infection ??

HELP for individuals and families self isolating

Covid 19 and aps

Covid 19

Coronavirus

Arnica/Dalterparin interactions?

How does high INR make u feel?

NHS updates/advice Coronavirus-covid-19

Finally getting somewhere... hopefully

What to do if GP won't refer to specialist

Finger Prick & Vein draw trial

At home with INR of 16.8

My nose bleeding blood transfusion and apixaban

Coronavirus: Information from UK

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