Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for April 2020

Interesting Summary of research around blood clots found in Covid-19 patients

https://youtu.be/qoJ4VDaGSfY

a_schaider

•5 years ago

11 Replies

Migraine

Hi guys I have had the worst migraine for two days now . Does anyone know what can be taken stronger than co codamol when on warfarin 🙏

Hi guys I have had the worst migraine for two days now . Does anyone know what ...

amy1808

•5 years ago

26 Replies

ANA

Thank you so much for your replies and advice. The blood tests I had done are the first since I was diagnosed with APS in 2007. I’ve learned more here than...

Thank you so much for your replies and advice. The blood tests I had done are th...

Stereolover

•5 years ago

1 Reply

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Which brand of clopidogrel do you take?

My usual brand is Plavix as a named drug on my prescription but the pharmacy can’t get it now. So I need another brand. Can anyone tell me which other brand...

My usual brand is Plavix as a named drug on my prescription but the pharmacy can...

Jumper99

•5 years ago

18 Replies

Injectables replacing inr testing and warfarin

Hiya. Hope u all doing ok. I'm on 6 weeks climbing walls and talking to myself. Normally test every 10 days.. Gp says leave it 6 to 8 weeks. The staff doing...

Hiya. Hope u all doing ok. I'm on 6 weeks climbing walls and talking to myself. ...

Cinn987

•5 years ago

19 Replies

Antinuclear Antibody

Hi, can anybody tell me what this means please? It’s in a letter from a rheumatologist. Blood tests show no significant abnormalities apart from an antinuclear...

Hi, can anybody tell me what this means please? It’s in a letter from a rheumato...

Stereolover

•5 years ago

9 Replies

Anyone else have INR readings like this?

This constant swinging is ruining my life. It makes me so ill. Getting very down and depressed. My diet is as advised. I’m Lupus anticoagulant positive. Here...

This constant swinging is ruining my life. It makes me so ill. Getting very down...

WendyWoo50

•5 years ago

27 Replies

COVID-19 causes clotting

Hi all! I hope all of you are well! We already knew that COVID-19 causes clotting. But now they decided to give patients preventative blood-thinning agents....

Hi all! I hope all of you are well! We already knew that COVID-19 causes clot...

Annie5678

•5 years ago

14 Replies

Sneddons syndrome?

Hi all, been researching Livedo Reticularis again because I've had it all my life and it is driving me mad now (think it might be getting worse and my feet are...

Hi all, been researching Livedo Reticularis again because I've had it all my lif...

Hidden

•5 years ago

11 Replies

Self isolate ?

I have not received a letter from NHS or GP, but people around me keep saying that I should be self isolating, I’m a frontline worker and my job is essential,...

I have not received a letter from NHS or GP, but people around me keep saying th...

Atkins106

•5 years ago

9 Replies

Beware if on keppra and taking riveroxaban

It may make anticoag effect ineffective per medscape.com

Wittycjt

•5 years ago

1 Reply

Hi all this is a poem my wife wrote to say thank you to our heroes keeping us safe in these difficult times, please pass it on KEEP SAFE ALL

OUR HERO`S HOW CAN THIS BE HAPPENING HOW CAN THIS BE TRUE A VIRUS THAT IS OUT THERE IS HARMING ME AND YOU DOCTOR`S...

OUR HERO`S HOW CAN THIS BE HAPPENING HOW CAN T...

dexters

•5 years ago

6 Replies

Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19

APRIL 9, 2020 Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19, and...

APRIL 9, 2020 Sudden loss of smell as a possible symptom of COVID-19, coagulopat...

lupus-support1

Administrator•5 years ago

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Mepacrine (older Ani-malarial)

Thank you for the information posted Re Plaquinil. I cannot take Plaquinil due to a genetic, electrical heart condition (Long QT Syndrome) therefore I am on...

Thank you for the information posted Re Plaquinil. I cannot take Plaquinil due t...

WendyWoo50

•5 years ago

8 Replies

Lupus Research Alliance of America: Hydroxychloroquine (Plaquenil) Shortage

As you know, because of the possibility that Plaquenil (hydroxychloroquine) might be useful as a treatment for COVID-19, a serious shortage has...

As you know, because of the possibility that Plaquenil (hydroxychloroquine) migh...

lupus-support1

Administrator•5 years ago

3 Replies

Emotional Health During the Coronavirus

“If you watch the news and see the empty streets, it looks like doomsday. But we have to bear in mind that we are not all going to die.” So says Dr. Zahi...

“If you watch the news and see the empty streets, it looks like doomsday. But we...

lupus-support1

Administrator•5 years ago

1 Reply

Coronavirus snd ? Vulnerable with aps and stroke

Should having aps and having a stroke. Be putting me in the vulnerable list during the Coronavirus pandemic I’m finding it difficult to go out shopping gor...

Should having aps and having a stroke. Be putting me in the vulnerable list duri...

teresahunter

•5 years ago

3 Replies

Just been diagnosed

Hello all . I’ve just been diagnosed with aps, I’ve been on clopidgroil for past 9 months . My blood has tested twice for lupus anticoagulant and I’ve had a...

Hello all . I’ve just been diagnosed with aps, I’ve been on clopidgroil for past...

SimonHunter

•5 years ago

10 Replies

Does Eliquis affect APS test results?

Hi everyone, I'm currently recovering from my second DVT in 9 months and am on Eliquis. I've had low positive Igg anti cardiolipin tests in the past, but had...

Hi everyone, I'm currently recovering from my second DVT in 9 months and am on E...

annabanana23

•5 years ago

4 Replies

hydroxychloroquine

Has anyone found a research paper or something that would inform my Doctor or pharmacist about the importance of having the medication from Zentiva, as it is...

Has anyone found a research paper or something that would inform my Doctor or ph...

daisyd

•5 years ago

13 Replies

wondering

How many of my fellow APS people have had issues with cellulitis with out a bite ,{ with me Spider -tick- bee's Etc.} or wound or skin penetration of any...

How many of my fellow APS people have had issues with cellulitis with out a bite...

jetjetjet

•5 years ago

13 Replies

Appointment Cancelled and Discharged from Guys

Hey folk. What ghastly times these Virus Days are. Hope everyone is staying safe. Last year at my APS appointment with the Lupus Unit I was informed they...

Hey folk. What ghastly times these Virus Days are. Hope everyone is staying sa...

marco_mustard

•5 years ago

3 Replies

advice please

Morning every one hope your all happy and trying to stay positive. Do any of you ever get dreadful pins and needles at night in your arms and legs?I have...

Morning every one hope your all happy and trying to stay positive. Do any of y...

pinkyandperky

•5 years ago

10 Replies

CoaguCheck XS

I haven’t been on this site n a while and was wondering if most people who self test are still using the CoaguCheck XS? Or have they come out with something...

I haven’t been on this site n a while and was wondering if most people who self ...

SoulRebel-APS

•5 years ago

16 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2020

Interesting Summary of research around blood clots found in Covid-19 patients

Migraine

ANA

Which brand of clopidogrel do you take?

Injectables replacing inr testing and warfarin

Antinuclear Antibody

Anyone else have INR readings like this?

COVID-19 causes clotting

Sneddons syndrome?

Self isolate ?

Beware if on keppra and taking riveroxaban

Hi all this is a poem my wife wrote to say thank you to our heroes keeping us safe in these difficult times, please pass it on KEEP SAFE ALL

Sudden loss of smell as a possible symptom of COVID-19, coagulopathy and antiphospholipid antibodies in patients with COVID-19

Mepacrine (older Ani-malarial)

Lupus Research Alliance of America: Hydroxychloroquine (Plaquenil) Shortage

Emotional Health During the Coronavirus

Coronavirus snd ? Vulnerable with aps and stroke

Just been diagnosed

Does Eliquis affect APS test results?

hydroxychloroquine

wondering

Appointment Cancelled and Discharged from Guys

advice please

CoaguCheck XS

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