Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for January 2019

Back with some flareups

Hi Everyone it's been way too long! It's Debbie! Nanny 23's sister! I've been busy for last almost 2 years with my hubby that had bladder cancer! He had 2...

Hi Everyone it's been way too long! It's Debbie! Nanny 23's sister! I've been bu...

Debbweb01

•5 years ago

17 Replies

INR etc

Hello all Following yet another hospital with pneumonia my INR is bouncing all over the place from 1.2 to 9.3 all in the space of a week or two. I’ve been...

Hello all Following yet another hospital with pneumonia my INR is bouncing all ...

judes

•5 years ago

12 Replies

Please Go Away!!

Has anyone ever gotten Gastric problems from having a Chest Cold that has lasted over 2 weeks? I started out with a horrible chest cold was out on antibiotics,...

Has anyone ever gotten Gastric problems from having a Chest Cold that has lasted...

GirlfromTennessee

•5 years ago

4 Replies

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Lupus anticoagulant positive update

Hi everyone. Finally got response from hospital in Sheffield, a meeting is been set up with haematology and neurology on a Thursday. Unfortunately the neuro...

Hi everyone. Finally got response from hospital in Sheffield, a meeting is been ...

geoff0702

•5 years ago

22 Replies

Stents

Hubby has APS and was on warfarin but was removed from it to insert 2 stents. They stopped the warfarin, and then put him on aspirin after stents inserted. He...

Hubby has APS and was on warfarin but was removed from it to insert 2 stents. Th...

Debbiesue63

•5 years ago

27 Replies

Sympathy

Now that I am a little more 'in charge of my emotions' I would like to thank all members that sent me messages on the death of my son Michael. It was so very...

Now that I am a little more 'in charge of my emotions' I would like to thank all...

Zimmer

•5 years ago

5 Replies

Support groups

Are there any support groups located around? South Wales Area. Sometimes the overwhelming questions, fears and symptoms just catch up with you. It would be...

Are there any support groups located around? South Wales Area. Sometimes the ove...

Kittybaker

•5 years ago

10 Replies

Cerebral APS

Had this finally diagnosed early last year after a visit to ST Thomas’s. read lots and lots about all the typical symptoms but apparently mine only affects my...

Had this finally diagnosed early last year after a visit to ST Thomas’s. read lo...

Greenmil3

•5 years ago

38 Replies

Lupus vs APS

How do you tell the difference between a Lupus Flare vs APS flare?

Mera5103

•5 years ago

14 Replies

Joint pain and neuro referral

Hi folks. My joint pain is getting worse, I've had pains in all joints in and off building for a year now. In the last week my knee is starting to feel a...

Hi folks. My joint pain is getting worse, I've had pains in all joints in and of...

Anabanana25

•5 years ago

6 Replies

ASPIRIN RISK OF BLEED IN NEWS

Hi all have you seen this in the news on line , Study links aspirin to increased bleeding. Anyone like me positive no known clots will have to twist docs arm...

Hi all have you seen this in the news on line , Study links aspirin to increased...

dexters

•5 years ago

27 Replies

Lupus Anticoagulant Query- part 2

Several of you were kind enough to offer advice on my last post, where I have had 2 positive Lupus Anticoag results, but my rheumatologist has dismissed it as...

Several of you were kind enough to offer advice on my last post, where I have h...

Chris1802p

•5 years ago

16 Replies

Those with Hughes Syndrome - Do you have a history of taking many antibiotics in your lifetime?

Dr Kriegel out Yale university has shown that preliminary results from his Laboratory suggest a role for gram positive commensal bacteria in the development of...

Dr Kriegel out Yale university has shown that preliminary results from his Labor...

nmousdic

•5 years ago

15 Replies

Angry with St Thomas's

So as some of you may recall, I had a visit back to St Thomas's just before Christmas after being discharged years ago asking them for help with my digestive...

So as some of you may recall, I had a visit back to St Thomas's just before Chri...

veganworld

•5 years ago

137 Replies

Return to support

I was diagnosed APS 19 yrs ago. Since then have DVT's PE PVD Ms Angina type 2 diabetes frontal lobe damage, memory loss, arthritis, postural hypotension, right...

I was diagnosed APS 19 yrs ago. Since then have DVT's PE PVD Ms Angina type 2 di...

Kmbh

•5 years ago

3 Replies

Psoriatic arthritis

Hello all... hope everyone is well / coping / happy.. I’ve been dipping in and out reading post and this is the first place I turn too for friendly advice as I...

Hello all... hope everyone is well / coping / happy.. I’ve been dipping in and o...

kathyD64

•5 years ago

15 Replies

HI, I am new here.

Hello, this is my first post. I am not officially diagnosed with APS yet. I had a stroke while on vacation. I am 49 years old, had flown two days prior to the...

Hello, this is my first post. I am not officially diagnosed with APS yet. I had ...

Roarah

•5 years ago

37 Replies

Help interpreting bloods

Hi Please see my thrombopheilia screen attached. The doctor says results as normal but there are two factors which look above range to me but I am no expert....

Hi Please see my thrombopheilia screen attached. The doctor says results as no...

Holly100792

•5 years ago

11 Replies

Lupus Anticoagulant query

Hi, I wonder if anyone can help? My GP recently ran blood tests to look into my ongoing issues of tiredness, headaches, skin rashes etc, as per my previous...

Hi, I wonder if anyone can help? My GP recently ran blood tests to look into my...

Chris1802p

•5 years ago

26 Replies

THE PATIENT PATIENT

If you enjoyed please click on the thumbs up like. Regards Dexters

dexters

•5 years ago

5 Replies

THE PATIENT PATIENT an ode to aps

Oh whats the matter with me Why am i feeling so fatigued The brain is a fog I can"t walk the dog Then i get muddled and it"s a fact Don"t know where i"m...

Oh whats the matter with me Why am i feeling so fatigued The brain is a fog I ...

dexters

•5 years ago

29 Replies

Anyone on Eliquis?

Hey guys. Is anyone else on Eliquis? How is it working for you? I have been on it for 2 years, but lately, I my heart has been jumping and my BP is slightly...

Hey guys. Is anyone else on Eliquis? How is it working for you? I have been on i...

Brenty54

•5 years ago

20 Replies

APS - pregnancy loss with treatment - advice moving forward

Hi Everyone I’m new and so glad I came across this group on Health Unlocked. I’m looking for some advice/support/others that have experienced what I have. I...

Hi Everyone I’m new and so glad I came across this group on Health Unlocked. I’...

Hollyhughes

•5 years ago

47 Replies

I'm new :)

I was diagnosed with APS (and possibly a connective tissue disease) in November 2018. It was discovered after a miscarriage. I am glad I found this online...

I was diagnosed with APS (and possibly a connective tissue disease) in November ...

RubyAndBlue

•5 years ago

11 Replies

IGG APS / IGM NOT. HELP

Hi all Recently diagnosed by stroke doc. anticardiolipin igm 132.8 anti-b2GP1 igm 121.9 lupus anticoagulant positive on two occasions. so triple positave?...

Hi all Recently diagnosed by stroke doc. anticardiolipin igm 132.8 anti-b2GP1 ig...

dexters

•5 years ago

12 Replies

Glad to be here!

I am so glad I happened on this community. I look forward to connecting with people who are coping with this condition and finding ways to live a vibrant life.

I am so glad I happened on this community. I look forward to connecting with peo...

Brenty54

•5 years ago

18 Replies

Seizures related to aps and lupus?

I have been tested positive with aps and lupus twice with the tests being 12 weeks apart, I also have unreasoned seizures and have been told they can be...

I have been tested positive with aps and lupus twice with the tests being 12 wee...

Purplecherrios

•5 years ago

12 Replies

Indeterminate

I have been tested for aps 4 times throughout the past 6 years , everything is negative besides the igm which always comes back as indeterminate ranging from...

I have been tested for aps 4 times throughout the past 6 years , everything is ...

Phoenix-Fire

•5 years ago

14 Replies

Professor Graham Hughes' Monthly Blog - January 2019

https://ghic.world/self-help/blog/january-2019 Mary F

MaryF

Administrator•5 years ago

14 Replies

PAIN

For the couple of months and getting worse I am in so much pain, just below the elbow, my back and also in legs (Knees I have had knee replacement done in...

For the couple of months and getting worse I am in so much pain, just below th...

teadonna

•5 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2019

Back with some flareups

INR etc

Please Go Away!!

Lupus anticoagulant positive update

Stents

Sympathy

Support groups

Cerebral APS

Lupus vs APS

Joint pain and neuro referral

ASPIRIN RISK OF BLEED IN NEWS

Lupus Anticoagulant Query- part 2

Those with Hughes Syndrome - Do you have a history of taking many antibiotics in your lifetime?

Angry with St Thomas's

Return to support

Psoriatic arthritis

HI, I am new here.

Help interpreting bloods

Lupus Anticoagulant query

THE PATIENT PATIENT

THE PATIENT PATIENT an ode to aps

Anyone on Eliquis?

APS - pregnancy loss with treatment - advice moving forward

I'm new :)

IGG APS / IGM NOT. HELP

Glad to be here!

Seizures related to aps and lupus?

Indeterminate

Professor Graham Hughes' Monthly Blog - January 2019

PAIN

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