Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,442 members•10,641 posts

All posts for January 2016

Just had a fall

Just some advice please.with having APS and other auto immune diseases am concerned. This morning I had a fall and hurt my left arm which is very painful thou...

Just some advice please.with having APS and other auto immune diseases am concer...

Fra22-57

•9 years ago

25 Replies

Plaquinil is that a good drug?

I don't remember if I told u that Dr. EKRAM said he may put me on Plaquinil! My sister also, after researching, also suggested Plaquinil! How r you doing...

I don't remember if I told u that Dr. EKRAM said he may put me on Plaquinil! My ...

Debbweb01

•9 years ago

8 Replies

Autonomic neuropathy?

Hi, I've not posted for a while but was wondering if anyone has been told they have autonomic neuropathy? I'm being referred to a specialist centre in London...

Hi, I've not posted for a while but was wondering if anyone has been told they h...

SammyJ

•9 years ago

10 Replies

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How do I stop worrying?!?!

I'm having a really hard time lately worrying that every twinge in my legs is a blood clot. I was diagnosed with APS in August 2015 after 2 positive...

I'm having a really hard time lately worrying that every twinge in my legs is a ...

JessNY

•9 years ago

19 Replies

1 positive test, pregnant -advice please...!

Hi all, I am fairly new to all this and would love some advice on my current situation. I have a 5 year old son and a 2 year old son. I then had 3 miscarriages...

Hi all, I am fairly new to all this and would love some advice on my current sit...

Pregnantk

•9 years ago

8 Replies

Anyone else had blood clots in arm?

I've just been diagnosed with Hughes (have had Sjogrens & hypothyroidism for years) after suddenly & with no warning developing blood clots in my left arm...

I've just been diagnosed with Hughes (have had Sjogrens & hypothyroidism for yea...

Janeh1960

•9 years ago

23 Replies

Is antiphospholipid syndrome hereditary?

I have just get diagnosed to APS after my second test. I wonder do my children need to get testet for aps ?

I have just get diagnosed to APS after my second test. I wonder do my children n...

Jonr

•9 years ago

29 Replies

APS UPDATE! New Rheumotologist in NYC at Hospital For Special Surgery

Hi hope all well with all my APS FRIENDS! Thank you for your unwavering support! This Dr. DORUK EKRAM, I got from this forum and he had a conference the day I...

Hi hope all well with all my APS FRIENDS! Thank you for your unwavering support!...

Debbweb01

•9 years ago

16 Replies

In pain

Every month when I get my period im in tears, it feels like I have labor pain. I have been to the emergency every time cos I also have very big lumps of blood...

Every month when I get my period im in tears, it feels like I have labor pain. I...

murphylotte

•9 years ago

13 Replies

Lupus confused?!

Hi everyone. I'm new to this even though my first positive for lup anticoagulant was 16 years ago. My baby was born full term at 2k! Due to my blood clotting....

Hi everyone. I'm new to this even though my first positive for lup anticoagulant...

Popper

•9 years ago

5 Replies

PET scan of brain

I am Having this next week, also another MRI (referred by Paul Holmes) and then shoulder surgery the week after Feeling a bit overwhelmed

I am Having this next week, also another MRI (referred by Paul Holmes) and then ...

Fusch

•9 years ago

9 Replies

Anti-coagulants and induction

Hi Everyone. I am brand new to this forum and only just learning about HS. I should start by saying that I don't have HS; I'm a healthunlocked user from...

Hi Everyone. I am brand new to this forum and only just learning about HS. I sh...

Hidden

•9 years ago

18 Replies

IGM Cardiolipin Positive, low vitamin D and fluctuating calcium levels (low normal PTH)

Hi folks, I have just been found to be positive for IGM Cardiolipin, but not for the other cardiolipin antibody, and I'm due to be re-tested in few weeks'...

Hi folks, I have just been found to be positive for IGM Cardiolipin, but not for...

Heytch

•9 years ago

1 Reply

Pinball

Hi all! I've been lurking here for a while without posting. I have a question. Does anyone have twitching in both legs that you can actually see (sort of like...

Hi all! I've been lurking here for a while without posting. I have a question. ...

Pinball

•9 years ago

15 Replies

hydralizine and aps

has anyone taken the blood pressure medication hydralizine. i was on it along with many other medications for my BP. hydralizine causes aps, a medicine...

has anyone taken the blood pressure medication hydralizine. i was on it along wi...

packerfan

•9 years ago

3 Replies

Marsie

Hi I'm new to this group was just wondering if anyone is on warfarin and also taking vitamin k2 I have been on warfarin for 15 year now and I have just...

Hi I'm new to this group was just wondering if anyone is on warfarin and also ta...

marsie61

•9 years ago

5 Replies

Slight Escalation.....

Hi all, hope everyone is 'coping' or seeking an easier way to be well enough. So I had to have a little bit of surgery New Years Eve, not expected or planned...

Hi all, hope everyone is 'coping' or seeking an easier way to be well enough. So...

CheddarAddict

•9 years ago

9 Replies

Neurologist, cardiologist and others

Hi there I have my appointment with the cardiologist tommorow. I was refered by the rheumy on diagnosis of hughes. But since then I've been getting chest...

Hi there I have my appointment with the cardiologist tommorow. I was refered b...

hanbur

•9 years ago

5 Replies

Miscarriage clinic

Hi after 4 failed ivf and 1 fet I have asked to be referred to the miscarriage clinic as I have unexplained fertility. They have been testing me for sticky...

Hi after 4 failed ivf and 1 fet I have asked to be referred to the miscarriage c...

Smithkin

•9 years ago

5 Replies

Please help, newly diagnosed and scared!

Hi all I'm so scared with my results stating I have tested positive for lupus anti coagulant after suffering two miscarriages, one at 19 weeks last May! I have...

Hi all I'm so scared with my results stating I have tested positive for lupus an...

Lisamoule1985

•9 years ago

10 Replies

I'm so confused :(

Hello everyone. After scouring the internet for far too long I've come across this site which seems like a great resource. Here is what is going on.. I have...

Hello everyone. After scouring the internet for far too long I've come across th...

hrprsmom

•9 years ago

21 Replies

Aziothiaprine

Hi, Has anyone had an experience in coming off Aziothiaprine? if so what were ? and over what timescale did you withdraw. I am on 150mg and have been asked to...

Hi, Has anyone had an experience in coming off Aziothiaprine? if so what were ? ...

LesJames

•9 years ago

3 Replies

Article from the press

http://www.independent.co.uk/news/science/dissolvable-brain-implant-the-size-of-a-grain-of-rice-invented-by-scientists-a6820001.html MaryF

http://www.independent.co.uk/news/science/dissolvable-brain-implant-the-size-of-...

MaryF

Administrator•9 years ago

4 Replies

Self testing inr

Hi all! I've had APS for years and have now developed Lupus also. Doctor says it will be a few more months before I know if the Plaquinil is working for me. My...

Hi all! I've had APS for years and have now developed Lupus also. Doctor says it...

finnhop

•9 years ago

22 Replies

An INR so low with meds! Depressed, disgusted and pain beyond words!

Why r some people so hard to treat this disease! I'm just exhausted! I go Wednesday to Hosp for special surgery! I'm just disappointed in med profession! It's...

Why r some people so hard to treat this disease! I'm just exhausted! I go Wednes...

Debbweb01

•9 years ago

6 Replies

APS

Hi had some blood test done got them all back but don't under stand them dose any one know what they mean not been on for a long time had a good holls in Egypt...

Hi had some blood test done got them all back but don't under stand them dose an...

Lesley61

•9 years ago

5 Replies

So Sick of Warfarin & Too Low INR'S! Way too low! Plus docs playing GAMES!

Hi It's been a couple weeks I think! My memory getting worse! After Dec.20th Hosp stay, I started Lovenox 100 mg and Plavix and 10 mg Warfarin for 5 days and...

Hi It's been a couple weeks I think! My memory getting worse! After Dec.20th Hos...

Debbweb01

•9 years ago

4 Replies

Amazing Partners and it's not all bad :-)

Hi there, It's been a while since I was on here last but just wanted to say it means so much to have an understanding wife/husband/ partner. Many times...

Hi there, It's been a while since I was on here last but just wanted to say i...

MASuk10

•9 years ago

4 Replies

APS "almost" diagnosed after stroke

Hi everyone. I have not posted on here before, but have been an avid (almost obsessive) reader! In a nutshell, I live in Yorkshire, 43 years old, fit and...

Hi everyone. I have not posted on here before, but have been an avid (almost ob...

ClaireDibb

•9 years ago

14 Replies

Xarelto

Hi from Norway 😀. This is my first post here. I got APS and PE in both lungs this summer and have been using Xarelto since that happened. The last Month thow,...

Hi from Norway 😀. This is my first post here. I got APS and PE in both lungs th...

Jonr

•9 years ago

35 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2016

Just had a fall

Plaquinil is that a good drug?

Autonomic neuropathy?

How do I stop worrying?!?!

1 positive test, pregnant -advice please...!

Anyone else had blood clots in arm?

Is antiphospholipid syndrome hereditary?

APS UPDATE! New Rheumotologist in NYC at Hospital For Special Surgery

In pain

Lupus confused?!

PET scan of brain

Anti-coagulants and induction

IGM Cardiolipin Positive, low vitamin D and fluctuating calcium levels (low normal PTH)

Pinball

hydralizine and aps

Marsie

Slight Escalation.....

Neurologist, cardiologist and others

Miscarriage clinic

Please help, newly diagnosed and scared!

I'm so confused :(

Aziothiaprine

Article from the press

Self testing inr

An INR so low with meds! Depressed, disgusted and pain beyond words!

APS

So Sick of Warfarin & Too Low INR'S! Way too low! Plus docs playing GAMES!

Amazing Partners and it's not all bad :-)

APS "almost" diagnosed after stroke

Xarelto

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