Thanks 4 the support :-): I just wanna... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Thanks 4 the support :-)

lollie profile image
4 Replies

I just wanna say thanks to all of you out,you've all helped me in so many... Thank you. All so very much :-) DZ

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lollie profile image
lollie
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4 Replies

I think I know how you feel. How very grateful you are. . .

I live in Sweden and I have never spoken to anyone having APS. Some of the doctors said to me to try Warfarin but as I had nothing showing on MRI I thought if was useless. Warfarin was a dangerous medicin. I had difficulties to read. I saw double and strange.

I am a lucky person who understands English. I bought "Sticky Blood Explained" by Kay Thackray from the Hughes Syndrome Foundation. I had to read a couple of lines and then take a pause. When I came to page 55 I did not believe what I was reading! ! EXACTLY like me.

I went to my hematolog and said i wanted to start Warfarin as I knew I had APS. I have all the 4 different antibodies since 10 years ago.

After 10 minutes with warfarin all went clear and bright. In 4 months most of the neurological problems had vanished. I say Thank you Kay Thackray and Hughes Syndrome Foundation and I hope you allow me to be in your group here in England. Now I know quite a lot of this illness.

jessielou profile image
jessielou in reply to

Hi lure

You are very welcome on here, we're quite an international group, Sweden, America, Australia, Spain etc! :-) :-)

Lots of lovely people around the world that we can all reach out to, when in need!

Soft gentle hugs love Sheena xxxxx :-) :-) :-)

in reply to jessielou

Thank you Jessielou! I have followed the forum for at least half a year but i think I am the only person from Sweden. I am so grateful that i can be here with these wonderful nice persons who are so willing to help others.

jessielou profile image
jessielou

Hi lollie

I'm sorry I've not been around to add my support, but its lovely of you to thank all the great people who give so much!

For all our darkest and brightest days it's a great place to come for support!

Glad to hear you're getting through, another Hughie fighter!

Sending gentle hugs n love Sheena xxxxxx :-) :-) :-)

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