Blood results back: Well this is the... - Hughes Syndrome A...

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Blood results back

Jade profile image
Jade
4 Replies

Well this is the first time I have been tested by my GP I believe. I was tested by Tommys back in 2004 and Prof Hughes said we could get Anticardiolipn tests done again but with the GP.

So when I rang they said no further action. I insisted I would like to know all the values. She said it said 43gt. So I dont have a clue nothing on the net corresponds with that. I have rung the Lupus Centre and the secretary said to get them faxed to the Prof, but that their tests did not correspond to that.

the GP also chose to check my INR (never had that done either in 8 years) well 1 hour before the blood test it read 3.3 (on my machine) but it seems the test showed 2.8. Oddly despite the fact my records show it should 3.5 they still said no further action required.

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Jade
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Jade profile image
Jade

Now I have spoken to the GP secretary who thinks 43gt is the name of the test!. It says deeper in the file that the range is 0-10 and mine is 7. I am still no wiser.

Jade profile image
Jade

Thanks for that, not that I could make head nor tail of it. I think knowing my luck you will be right and I am negative again.

My son had the test done from my Drs and they said it was negative and Prof Hghes did it and said it was positive.

I amcurious about the INR I know Ifelt my INR was in range that day and 3.3 seemed right but for their system to come up with 2.8 and say no action was necessary is odd.

I feel quite deflated now and wish I had not bothered.

Can you explain what the INR levels mean? Not had my INR checked in such a long time (or at least not advised to me other than to say everything is ok) so not sure what is high/low, good/bad. Thanks.

AlisonT2 profile image
AlisonT2 in reply to

Hi Lissylou I am quite new to this INR testing after developing a PE following surgery in September. I was told my range should be between 2 and 3. Several people on here talk about their range being between 4 and 5 so I was a bit confused and as I was treated by my local hospital (in whom I don't have much faith) I rang St Tommies and was assured that the 2 - 3 range was correct for me due to the type of clot I had. So I think it depends on how the medication you are on works for you and where and what type of clot you have. Before surgery I had never had a clot and was only on 75mg aspirin daily.

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