Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for March 2023

APS and migraines

Can anyone here tell me how the migraines associated with APS and or testing positive for antiphospholipid antibodies manifest themselves? Are they acute...

Can anyone here tell me how the migraines associated with APS and or testing pos...

•1 year ago

some exciting research

A promising article for possible further tests and hopefully eventually better treatments....

A promising article for possible further tests and hopefully eventually better t...

•1 year ago

negative aps long term treatment

I was diagnosed 1999 with APS locally then confirmed at St Thomas’ by Hunt. After my brain scan revealed multiple infarcts I was put on blood thinners for...

I was diagnosed 1999 with APS locally then confirmed at St Thomas’ by Hunt. Afte...

•1 year ago

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Wendy

Can anyone give me any info, comments good or bad on Azathioprine please ?

Can anyone give me any info, comments good or bad on Azathioprine please ?

•1 year ago

Been a rough couple of months

I’ve had APS for over 20 years and it’s been a real pain in the ass, I’ve seen so many specialists and had so much blood taken, it’s caused joint pain and...

I’ve had APS for over 20 years and it’s been a real pain in the ass, I’ve seen s...

•1 year ago

New & confused! ACL+ results, now what?

Hello everyone. I’m new here. I went to see a private rheumatologist after years of not being “well” in November. This was after I went to the GP with...

Hello everyone. I’m new here. I went to see a private rheumatologist after years...

•1 year ago

Warfarin and anti-flammatory meds

I have APS and take warfarin, I was also diagnosed with psoriatic arthritis but due to only having minor problems and concerns about the interaction declined...

I have APS and take warfarin, I was also diagnosed with psoriatic arthritis but ...

•1 year ago

NHS covid treatment advice

I recently received a letter in the form of an email from the NHS stating that following a review of my medical records, i should immediately report to them if...

I recently received a letter in the form of an email from the NHS stating that f...

•1 year ago

Brain Aneurysm

has anyone had a Brain Aneurysm, what was your doctor’s next action for it?

has anyone had a Brain Aneurysm, what was your doctor’s next action for it?

•1 year ago

Heamatoma

In early December I had a very bad epileptic seizure and fell forwards onto concrete steps (not fun). I spent time in hospital with concussion and severe...

In early December I had a very bad epileptic seizure and fell forwards onto conc...

•1 year ago

Disability Allowance

Hi Does anybody in the UK claim any sort of benefit like ESA or PIP because APS has stopped them working? Last year I had massive problems with a new...

Hi Does anybody in the UK claim any sort of benefit like ESA or PIP because A...

•1 year ago

Lupus Anticoagulant testing while on Warfarin

I have searched the group but I do not seem to find what I need to know. If your hematologist insist on testing for Lupus Anticoagulant how many days must you...

I have searched the group but I do not seem to find what I need to know. If your...

•1 year ago

Is it common to have a reccuring sore throat with aps?

For the last 3 yrs I'm getting constant sore throat always after I do too much (this could simply be just getting dressed). I'm just exhausted from do the bare...

For the last 3 yrs I'm getting constant sore throat always after I do too much (...

•1 year ago

Patient Initiated Returns List

I last saw my rheumatologist nearly 18 months ago and it was only after I had my appointment that I realised I hadn't been given a date for my next...

I last saw my rheumatologist nearly 18 months ago and it was only after I had my...

•1 year ago

Long covid and prosthetic issues

I have not been able to get the covid omicron booster because I am allergic to an ingredient in the Moderna and Phizer. But I have had 2 JandJs, and a mild...

I have not been able to get the covid omicron booster because I am allergic to a...

•1 year ago