Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,337 members10,533 posts

All posts for August 2013

A baby step forward?

I saw the orthopedic surgeon at Duke and he outlined the first steps in the hip ...
GinaD profile image

Fed up

Seriously fed up today. Went away to the seaside for a couple of days and ended...
panda60 profile image

Tell your story and help others to understand what being on warfarin is really like

If you are one of the 1.2 million people across the UK taking warfarin on a long...
warfarin1 profile image
Want to take advantage of all our features? Just log in!
or

Young people and unstable INR

Hi everyone! I'm new to this site, I'm 21 but was first diagnosed in 2007 when I...
lemroc profile image

Tests back negative.

Hi, so all the tests came back negative. I am really happy about that but have a...
vine55 profile image

Question regarding this site

I know it may be impossible but is there a way this site can display which recen...
Jade profile image

Does anyone with APS (Hughes Syndrome) have any suggestions for improving memory or concentration?

This past year or so I've noticed that my memory and my concentration have just ...
Tomcat profile image

one for the ladies mentral bleeding

hi this is rather horrid and embarrasing but i have aps and my periods are becom...
kezebabe profile image

A new recommended INR?

After my husband was diagnosed with APS, I found the old APS/HUGHES website, rea...
sbncmo profile image

Lopsided face.

I notice sometimes that it looks as though one cheek looks slightly more swolle...
panda60 profile image

Okay, this is a funny question I know. Has anyone else's hair changed?!

Odd question I know, but was wondering if changes to hair is a known Hughes symp...
Frhd profile image

Is Co Enzyme Q10 safe with warfarin

I am on a lot of other meds but its the possible interactions with warfarin that...

Any thoughts on a non-specific chest pain (not stabbing but dull, persistent for days) and you can't attribute to heart or lung issue?

Confirmed APS ten years ago. I believe they are suspecting Lupus but still testi...
Want2BNormal profile image

Do you follow a regular exercise programme?

I have tons of weight to lose. I am feeling pretty low. I thought some exercise ...
stillwaiting profile image

Is disabling fatigue, which can be worst 2/3 days after any overexertion and can take over a week to resolve, a common feature of Hughes?

I am newly diagnosed with Hughes, secondary to what is now being called atypical...
MrsMouseSJ profile image

Off to Duke tomorrow

. . . to see my rheumatologist and an orthopedic surgeon. After 10+ years of ki...
GinaD profile image

I started Simvastatin one month ago and have reacted positive to the cholesterollevels of LDL but have musclepain. I am not sure it is the

statin. The doctors seem to think it is a treatment of APS/Lupus. I also have wa...
Lure2 profile image

Warfarin resistance ?

Hello everyone, I've been on warfarin ever since my dignosis in 1999 but have re...
kateb81 profile image

Study on Autism and Autoimmune Disease

Article found on Thyroid Change: http://sfari.org/news-and-opinion/news/2013/l...
MaryF profile image
Administrator

Graham Hughes' July blog 2013

Another British weather record. "The sixth hottest July since records began in 1...
Hidden profile image

Hi, I have lupus and APS. Had my INR done and its low which means I get a stutter and shattered anyone got any low inr tips?

ricky_chotai profile image

Hey guys, I have received a question in my aps web site and I do not know the answer. "What teas may we drink? I know green tea is fordiden

BrazilianBade profile image

Back to Lebanon

Well all back to Lebanon -gastroenterologist-- for fatty liver ,been 7 months no...
jetjetjet profile image

Does anyone suffer from dupetren tendons in the hands and fingers???

I have awful dupetrens in my hands and fingers this started a couple of years ag...
traceylou profile image

Has anyone had there humaglobin go from 121 to 79 in the matter of days, without internal bleeding, or blood clott?

Had ct, and exray, no show of clott, or internal bleeding? Doctors have done blo...
Skyllark profile image

Hi guys I live near Swansea South Wales U.K I am looking for a specialist on Hughes Lupus /Sjogrens in my area or a blood specialist

As I am to ill to travel long distance thanks
taffydaffy profile image

hi is it possible to print these pages and has anyone got any good tips when appealing for DLA ty jean

mcbeth profile image

Drug Recall Class 3. Is this just at pharmacy level? Warfarin 3mg.

http://www.mhra.gov.uk/Publications/Safetywarnings/DrugAlerts/CON300315 Does a ...

how do you define low grade fever?

Kimu profile image

Do you think Prof K would be able to reply if I emailed him?

I saw Prof K privately at London Bridge then on the nhs at St Thomas. I'm not se...
Paleosooze profile image