Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for January 2015

Newly diagnosed, saying hi!

Hello all. After a year of referrals, dead ends and wrong turns I have finally had APS diagnosed by a lovely rheumatologist in Kent. She actually got quite...

Hello all. After a year of referrals, dead ends and wrong turns I have finally h...

minnime63

•9 years ago

17 Replies

Can I have a prescription given by prof. Hughes for Clexane filled in Paris?

I live in the United States & for the past 2 years I travel to London to see Prof Hughes. I can't tolerate the medications in the US. Thankfully CLEXANE...

I live in the United States & for the past 2 years I travel to London to see Pr...

designer16

•9 years ago

7 Replies

CAPS?!?!?

My question is, has anyone got any first hand experience or information on CAPS (Chronic Anti phospholipid Syndrome)??? I have experienced some of the...

My question is, has anyone got any first hand experience or information on CAPS ...

Chef_Spartacus

•9 years ago

16 Replies

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I have MS, but I think it might be Hughes

Hello, This is my first post here, I have had MS symptoms for about 20 years, it's 10 years since I was diagnosed with MS and it's now progressive affecting...

Hello, This is my first post here, I have had MS symptoms for about 20 years, i...

Hidden

•9 years ago

10 Replies

Hughes Syndrome + Moringa powder = ???

Hi, I have Hughes syndrome which i take aspirin daily for. I have been recommended by someone to use Moringa powder as it has lots of benefits and is natural......

Hi, I have Hughes syndrome which i take aspirin daily for. I have been recommend...

Katiekate

•9 years ago

10 Replies

Worst I've felt

Hi everyone,it serves me right ! ! But I've felt a fraud for ages. I felt quite well until yesterday. When I got up,my chest was sore and tight. I put that...

Hi everyone,it serves me right ! ! But I've felt a fraud for ages. I felt quite ...

Totallysick

•9 years ago

7 Replies

Strange feeling in head. Derealization.

Hi everyone. Hope you are all doing as well as you can. I had the MS or APS question in the past. To date I have been dx with MS but I have doubts. I have no...

Hi everyone. Hope you are all doing as well as you can. I had the MS or APS ques...

Preserved

•9 years ago

23 Replies

Newbie

Hello everyone, my name is Paul I have suspected APS not fully diagnosed as of yet, it's been about 10 months since I've been on warfarin it's a great drug it...

Hello everyone, my name is Paul I have suspected APS not fully diagnosed as of y...

Chef_Spartacus

•9 years ago

27 Replies

Question

Hi, a question please, has anyone heard of ANA?

Lesley_D

•9 years ago

4 Replies

INR

Hi, just looking at some old posts regarding INR levels I am only on aspirin, so have I got it right? that mine would be the same as a person NOT being...

Hi, just looking at some old posts regarding INR levels I am only on aspirin, so...

donnabrain

•9 years ago

3 Replies

Important new from Hughes Syndrome Foundation regarding European Forum on Antiphospholipid Antibodies.

The European Forum on Antiphospholipid Antibodies has just published the results from a European multi centre trial with good news. It provides evidence that...

The European Forum on Antiphospholipid Antibodies has just published the results...

MaryF

Administrator•9 years ago

5 Replies

Recommend me a specialist in NW UK please

After self medicating for the past 5 years or so my health is starting to decline, latley my memory has gotten really bad (along with my concentration) and I'm...

After self medicating for the past 5 years or so my health is starting to declin...

Tomcat

•9 years ago

5 Replies

HEPARIN

Hi im 23 years old' Im 2months pregnant with my 4th baby and the doctor put me on HEPARIN and BABY ASPRIN. I started my injections yesterday my husband is the...

Hi im 23 years old' Im 2months pregnant with my 4th baby and the doctor put me ...

nellyc

•9 years ago

8 Replies

A question????

Can anyone advise or even reply if they know or indeed are medical professionals, consultants, proffessors, research scientists etc on Healthunlocked please?...

Can anyone advise or even reply if they know or indeed are medical professionals...

lloydyuk

•9 years ago

7 Replies

New PoTS leaflet

PoTS UK have just published their new leaflet and it's now available to download. Postural Tachycardia Syndrome (PoTS) has now been associated with APS/Hughes...

PoTS UK have just published their new leaflet and it's now available to download...

Hidden

•9 years ago

10 Replies

problems going out

Hi Everyone I have APS and various other health problems but recently have been having trouble leaving the house. My main reason seems to be fear of taking ill...

Hi Everyone I have APS and various other health problems but recently have been ...

margaretjo

•9 years ago

23 Replies

Please be aware I may be slower at answering questions and posts!

Last night I sauntered out for dinner, when I came back I found a grinning tabby tiger looking very pleased with herself, having found that she could sit bolt...

Last night I sauntered out for dinner, when I came back I found a grinning tabby...

MaryF

Administrator•9 years ago

13 Replies

Got a date for pip assessment

Hi, thought I would let you all know, I HAVE my date for my pip assessment. 10th Feb. I've been waiting since Jan 2014. So fingers crossed ! I have learned to...

Hi, thought I would let you all know, I HAVE my date for my pip assessment. 10th...

Totallysick

•9 years ago

7 Replies

Hughes, Sjogrens and Ehlers Danlos Syndrome

Hi, Just wondered if anyone else has been diagnosed with Ehlers-Danlos Syndrome (inheritable connective tissue disorder) along with their Hughes, Sjorgrens...

Hi, Just wondered if anyone else has been diagnosed with Ehlers-Danlos Syndrome...

floss112

•9 years ago

5 Replies

APS and chemical pregnancies

Hi, i recently found out I'm positive on cardiolipin and beta2 antibodies. I haven't got my second test done yet but I also have sjögrens syndrome and I've had...

Hi, i recently found out I'm positive on cardiolipin and beta2 antibodies. I hav...

Pektosa

•9 years ago

21 Replies

Plaquenil/hydroxychloroquine&Prevention of Diabetes

This is an interesting study regarding Plaquenil/hydroxycholoroquine & the connection between taking the drug and prevention of diabetes in Lupus patients....

This is an interesting study regarding Plaquenil/hydroxycholoroquine & the conn...

loretta1106

•9 years ago

4 Replies

Can i just walk in lupus center or dr must refer?

Hi, could you please someone inform me about Lupus Centre. Can I just walk in or Dr needs to refer me?

Hi, could you please someone inform me about Lupus Centre. Can I just walk in or...

esen

•9 years ago

1 Reply

APS appears significantly associated with markers of subclinical atherosclerosis and cardiovascular risk.

My take from this study is that since the markers for cardiovascular risk in APS patients are worse, that we (APS patients as a whole) need to do a better job...

My take from this study is that since the markers for cardiovascular risk in APS...

Tranquility1

•9 years ago

1 Reply

Many APS patients develop neurological symptoms in the absence of ischemia (stroke)

In reading this study on APS induced mice, the researchers made this blanket statement. "Many patients develop neurological symptoms in the absence of...

In reading this study on APS induced mice, the researchers made this blanket sta...

Tranquility1

•9 years ago

2 Replies

Study:Antiphospholipid antibodies correlate with stroke severity and outcome in patients with antiphospholipid syndrome

"Conclusions: In young stroke patients with APS, serum levels of IgM aCL within 48 h are correlated with stroke severity and levels of IgG anti-β2GPI within...

"Conclusions: In young stroke patients with APS, serum levels of IgM aCL within ...

Tranquility1

•9 years ago

2 Replies

Could these neuro symptoms be Hughes Syndrome?

Hi all. I'm struggling to get a diagnosis for neurological symptoms that hit me suddenly 3 months ago. I tested positive for anticardiolipin IGM about a month...

Hi all. I'm struggling to get a diagnosis for neurological symptoms that hit me ...

nadias1987

•9 years ago

7 Replies

Heparin Trial

Hi, Haven't posted for a while as life has been... interesting... but have a question that I am sure some of you lovely people out there can help me with. My...

Hi, Haven't posted for a while as life has been... interesting... but have a que...

floss112

•9 years ago

12 Replies

can anyone help please

Hi I'm really sorry I haven't been around for a while, like many of us I've been struggling and with my diagnosis of AVN to both legs, and having undergone my...

Hi I'm really sorry I haven't been around for a while, like many of us I've been...

Lesley_D

•9 years ago

3 Replies

Professor Graham Hughes' Blog December 2014

December 2014 The past year has been busy for all of us in the London Lupus Centre. We are now seeing 400 cases a month – patients not only from all corners...

December 2014 The past year has been busy for all of us in the London Lupus Cen...

MaryF

Administrator•9 years ago

3 Replies

Question

How many people out there have a problem with Fatty Liver ??

jetjetjet

•9 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2015

Newly diagnosed, saying hi!

Can I have a prescription given by prof. Hughes for Clexane filled in Paris?

CAPS?!?!?

I have MS, but I think it might be Hughes

Hughes Syndrome + Moringa powder = ???

Worst I've felt

Strange feeling in head. Derealization.

Newbie

Question

INR

Important new from Hughes Syndrome Foundation regarding European Forum on Antiphospholipid Antibodies.

Recommend me a specialist in NW UK please

HEPARIN

A question????

New PoTS leaflet

problems going out

Please be aware I may be slower at answering questions and posts!

Got a date for pip assessment

Hughes, Sjogrens and Ehlers Danlos Syndrome

APS and chemical pregnancies

Plaquenil/hydroxychloroquine&Prevention of Diabetes

Can i just walk in lupus center or dr must refer?

APS appears significantly associated with markers of subclinical atherosclerosis and cardiovascular risk.

Many APS patients develop neurological symptoms in the absence of ischemia (stroke)

Study:Antiphospholipid antibodies correlate with stroke severity and outcome in patients with antiphospholipid syndrome

Could these neuro symptoms be Hughes Syndrome?

Heparin Trial

can anyone help please

Professor Graham Hughes' Blog December 2014

Question

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