Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,354 members • 10,542 posts

All posts for March 2022

APS and lung/muscular pain

Hi, is anyone having lung / muscular pain in upper right quadrant. I was diagnosed with APS almost nine years ago and am really suffering with pain under my...

Hi, is anyone having lung / muscular pain in upper right quadrant. I was diagnos...

•2 years ago

IgG levels

Just been diagnosed and a bit confused. Would anyone mind sharing their igG levels with me? Thanks

Just been diagnosed and a bit confused. Would anyone mind sharing their igG leve...

•2 years ago

My blood tests always haemolyse which is making diagnosis difficult

My London NHS haematologist strongly suspects APS with haemolytic anaemia, after DVT in both legs and pulmonary embolism August 2020. I am currently on...

My London NHS haematologist strongly suspects APS with haemolytic anaemia, after...

•2 years ago

Want to take advantage of all our features? Just log in!

or

Trouble with cannulation.

My regular Rheumy is away for 3 months and I saw his Locum (possibly joining the practice). I have been having problems with pain in my right hand and he felt...

My regular Rheumy is away for 3 months and I saw his Locum (possibly joining the...

•2 years ago

Taken off blood thinners, told I don’t have APS 14 years after being diagnosed. 22 years to find out what was wrong, now don’t know

I was diagnosed as low positive 14 years ago by a Dr from the lupus centre at Tommies and have been treated with warfarin and was changed to fondaparinux 2...

I was diagnosed as low positive 14 years ago by a Dr from the lupus centre at To...

•2 years ago

APS but do I have something else as well?

Obviously I have APS but not sure if I’m suffering a flare up or if something else is wrong. I had a bad day Tuesday and have not been able to work since. I...

Obviously I have APS but not sure if I’m suffering a flare up or if something el...

•2 years ago

Painful joints due to see rheumatologist

Hi everyone I saw my haematologist and discussed my painful joints and asked if I could be prescribed hydroxychloroquine anyway he said that I should see a...

Hi everyone I saw my haematologist and discussed my painful joints and asked if ...

•2 years ago

Anyone have non epileptic seizures caused by aps?

Just wondering if anyone has non epileptic seizures with aps? I've been having seizures for 2 yrs and diagnosed with fnd. Only recently from having a lupus...

Just wondering if anyone has non epileptic seizures with aps? I've been having s...

•2 years ago

APS, Covid and pregnant

Hi, I was diagnosed with APS after 3 miscarriages. I have now conceived through IVF and I am 15 weeks pregnant. I am taking 150g aspirin and 5000 fragmin. I've...

Hi, I was diagnosed with APS after 3 miscarriages. I have now conceived through ...

•2 years ago

Sticky Blood and Covid

Hi I had positive antibody tests for two out of the three causing APS and was told by a rheumatologist in Newcastle I had sticky blood. I was going to be...

Hi I had positive antibody tests for two out of the three causing APS and was t...

•2 years ago

APS medication( warfarin) and plaquinel for lupus

Hi everyone, I have had APS and been on warfarin for a little over a year now . My rheumatologist wants to prescribe plaquinel for mild lupus . Does anyone...

Hi everyone, I have had APS and been on warfarin for a little over a year now . ...

•2 years ago

MRI Results

So I'm not sure when I last posted but I have a telephone consultation with Proff D'cruz on 24 March In anticipation of this he had ordered Brain and Spinal...

So I'm not sure when I last posted but I have a telephone consultation with Prof...

•2 years ago

APS and balance

Hi, I have suspected APS as I have had high Igg Cardiolipin for 12 months now, 2 previous miscarriages. I am having severe balance issues. I’m off balance...

Hi, I have suspected APS as I have had high Igg Cardiolipin for 12 months now, 2...

•2 years ago

Vax probs no access to new meds what now

Adverse reactions to Astra zenica and then Pfizer. First one im convinced clot (had 5 previous) height of lockdown so didnt go hospital. Ddimer was ok but i...

Adverse reactions to Astra zenica and then Pfizer. First one im convinced clot ...

•2 years ago