Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for March 2018

INR

When your INR is off, what type of symptoms do y'all have?

missygirl0130

•7 years ago

8 Replies

APS positive - seek advise to start IVF treatment after failed implantation

Hi, I am recently diagnosed with APS (B2 Glycoprotein IgG >150) after one failed IVF attempt. For my next attempt, I am torn between just depending on baby...

Hi, I am recently diagnosed with APS (B2 Glycoprotein IgG >150) after one failed...

jtay2002

•7 years ago

6 Replies

Government benifits

Does any one know if you suffer from antiphosolipid syndrome and lupus sle what government benefits might you be able to claim ??

Does any one know if you suffer from antiphosolipid syndrome and lupus sle what ...

Tim_Thorpe

•7 years ago

9 Replies

Want to take advantage of all our features? Just log in!

Back to the machines

After a couple of not so good instances . a few of my Doc's have decided it's time for a MRA that may or may not lead to a MRI and this will be tonight at...

After a couple of not so good instances . a few of my Doc's have decided it's ...

jetjetjet

•7 years ago

38 Replies

interview transcript women and autoimmunity

https://www.npr.org/templates/transcript/transcript.php?storyId=597159133 Interesting. Medical me too?

https://www.npr.org/templates/transcript/transcript.php?storyId=597159133 Inter...

GinaD

•7 years ago

8 Replies

Sed rate

Does anyone else have a high sed rate with their APS? My last see rate was 105. My rheumatologist saidf APS can cause high inflammatory marker and stopped...

Does anyone else have a high sed rate with their APS? My last see rate was 105....

missygirl0130

•7 years ago

40 Replies

Plastic surgery

15 years ago I had a breast augmentation. I had never even heard of Hughes back then or worried about my health. I was young healthy etc. I am now petrified...

15 years ago I had a breast augmentation. I had never even heard of Hughes back ...

Kittybaker

•7 years ago

4 Replies

Recent APS "flare up"

Hello everyone . I'm a 28 year old female from the praires of Canada . Was diagnosed with Lupus Anticoagulant & APS after miscarriage and positive blood work...

Hello everyone . I'm a 28 year old female from the praires of Canada . Was diag...

Bsharon

•7 years ago

2 Replies

APS

Hi all, new here and glad I ran across site. I've been diagnosed less than a year and don't know much about it. Does anyone get severe dizziness that results...

Hi all, new here and glad I ran across site. I've been diagnosed less than a yea...

missygirl0130

•7 years ago

10 Replies

Hoping for a diagnosis

Hi everyone, I'm hoping to get a diagnosis for my wife (F, 33). We have an appointment with our GP on Wednesday and I'm just trying to get everything straight...

Hi everyone, I'm hoping to get a diagnosis for my wife (F, 33). We have an appoi...

bpyoung999

•7 years ago

17 Replies

Newcomer

Hi, was diagnosed with APS on Monday. I'm 47, healthy, had an unprovoked dvt last june, that dispersed and travelled to my lung and created 3 new clots on the...

Hi, was diagnosed with APS on Monday. I'm 47, healthy, had an unprovoked dvt las...

ann1970

•7 years ago

13 Replies

Clear MRI/mra odd symptoms

So it's been a rough two weeks, we lost a baby at 9 weeks and then had a d&c a couple days later. Somewhere in there I began getting headaches and feeling...

So it's been a rough two weeks, we lost a baby at 9 weeks and then had a d&c a c...

Saralmac

•7 years ago

11 Replies

Vertigo type symptoms

Hi all Sorry it’s been a long time since I’ve been able to post . I’ve been finding that my symptoms have been getting more frequent and new ones in the past...

Hi all Sorry it’s been a long time since I’ve been able to post . I’ve been fin...

Linda80OL

•7 years ago

13 Replies

Breathing

Hi guys Anybody had breathing difficulties when INR low ?

amy1808

•7 years ago

12 Replies

APS and contraception and Warfarin and breastfeeding

Hello everyone! I was diagnosed with APS during pregnancy. I had my healthy baby 7 weeks ago :) I am wondering what contraception is adequate, since the pill...

Hello everyone! I was diagnosed with APS during pregnancy. I had my healthy baby...

INCR

•7 years ago

3 Replies

Migranes and Medication

I recently saw Dr Holmes regarding my ongoing and increasingly dibilitating headaches and migranes. After examination and discussion I am awaiting an MRI this...

I recently saw Dr Holmes regarding my ongoing and increasingly dibilitating head...

chelb29

•7 years ago

16 Replies

Canadian APS/CAPS

Hi I am looking for APS/CAPS people in Canada... Ontario and in BC

Skyllark

•7 years ago

5 Replies

reason behind brain fog?

This link comes from a brain health email link concerning impaired thinking when one has the flu. But I wouldn't be surprised if this also explains the brain...

This link comes from a brain health email link concerning impaired thinking whe...

GinaD

•7 years ago

7 Replies

Sharp constant pain lower right rib area

Hello to everyone, hoping for some feed back please. Was in ER tonight, the last four days I have had major pain without seizing in the lower right rib,...

Hello to everyone, hoping for some feed back please. Was in ER tonight, the las...

beccafullcircle

•7 years ago

24 Replies

Metformin and warfarin

I have APS and take warfarin to keep my INR between 3-4. I have recently been diagnosed as Type 2 diabetic and put on Metformin. Since being on Metformin my...

I have APS and take warfarin to keep my INR between 3-4. I have recently been d...

MaryH

•7 years ago

8 Replies

Theranos

Good morning! In terms of background here, I have primary APS, am an almost-daily reader, and I learn something about our health situations EVERY DAY. For...

Good morning! In terms of background here, I have primary APS, am an almost-dai...

Hidden

•7 years ago

2 Replies

Small water blisters below my knees.

I’ve got APS and since being diagnosed with it my circulation is very poor and both legs (below the knees have discoloured and are almost black). My problem...

I’ve got APS and since being diagnosed with it my circulation is very poor and b...

Teanna

•7 years ago

20 Replies

Sjögren’s syndrome Hope

A new study carried out by my local Rheumatologists: https://www.birmingham.ac.uk/university/colleges/mds/news/2018/02/sjogrens-treatment-findings.aspx

A new study carried out by my local Rheumatologists: https://www.birmingham.ac.u...

kjkjkjhh

•7 years ago

4 Replies

Professor Graham Hughes' Monthly Blog February 2018

BLOG : February 2018 Earlier this month, I took part in the 20th ‘Ten Topics in Rheumatology’ meeting in Barcelona. Over these past 2 decades, the ‘Ten Topics...

BLOG : February 2018 Earlier this month, I took part in the 20th ‘Ten Topics in...

MaryF

Administrator•7 years ago

8 Replies

Menieres and Hughes Syndrome

Got chronically ill 2012 after a Norovirus infection. GP not interested. Family history of Ménière's disease. GP not interested. Eventually saw top ENT...

Got chronically ill 2012 after a Norovirus infection. GP not interested. Family ...

Barbara7

•7 years ago

5 Replies

Feeling terrible

Feeling terrible last few weeks feel like I have hang over plus aches and pains any ideas ? Aziophrine was put up to 200mg daily from 150 in February for my...

Feeling terrible last few weeks feel like I have hang over plus aches and pains ...

Tim_Thorpe

•7 years ago

9 Replies

Keto diet and aps

Hi I joined a while back. I find this site very informative I did a lot of reading about aps. I was diagnosed with lupus SLE back in 1990 and two or three...

Hi I joined a while back. I find this site very informative I did a lot of readi...

Kooldog

•7 years ago

25 Replies

Lung Issues with APS?

Hi, Does anyone have trouble breathing with APS? When I first had the double vision and was hospitalized, my first symptoms were trouble breathing (asthma...

Hi, Does anyone have trouble breathing with APS? When I first had the double vi...

rottiro1

•7 years ago

21 Replies

Home monitor for APS patients chasing clarification

Hi all, Question on CoaguChek (Roche). I am investigating this home monitoring INR device. My local hospital clinic refused to use the device because I have...

Hi all, Question on CoaguChek (Roche). I am investigating this home monitoring I...

maximus31

•7 years ago

38 Replies

Auto-immune Hepatitis and Mercaptopurine

Hi I was diagnosed with SLE and APS about 25 years ago. Last year I was also diagnosed with Auto-immune Hepatitis. I was told this is very rare in people with...

Hi I was diagnosed with SLE and APS about 25 years ago. Last year I was also di...

KerryA

•7 years ago

3 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2018

INR

APS positive - seek advise to start IVF treatment after failed implantation

Government benifits

Back to the machines

interview transcript women and autoimmunity

Sed rate

Plastic surgery

Recent APS "flare up"

APS

Hoping for a diagnosis

Newcomer

Clear MRI/mra odd symptoms

Vertigo type symptoms

Breathing

APS and contraception and Warfarin and breastfeeding

Migranes and Medication

Canadian APS/CAPS

reason behind brain fog?

Sharp constant pain lower right rib area

Metformin and warfarin

Theranos

Small water blisters below my knees.

Sjögren’s syndrome Hope

Professor Graham Hughes' Monthly Blog February 2018

Menieres and Hughes Syndrome

Feeling terrible

Keto diet and aps

Lung Issues with APS?

Home monitor for APS patients chasing clarification

Auto-immune Hepatitis and Mercaptopurine

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