Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,350 members • 10,538 posts

All posts for January 2021

Cerebral APS just getting worse a rant

Hi all needed a rant as am really struggling. I have not slept properly for about two weeks. Prof D Cruz diagnosed my numb hands as Thoracic Outlet Syndrome...

Hi all needed a rant as am really struggling. I have not slept properly for abou...

Greenmil3

•3 years ago

26 Replies

Going stir crazy

Lock down is getting to me help!!! Had to ventilate☹️

Wittycjt

•3 years ago

15 Replies

APS and blood work

Hi :) I have a question to those knowledgable in the topic. Besides the positive antibodies does APS show in the blood work? Thank you!

Hi :) I have a question to those knowledgable in the topic. Besides the positive...

Or81

•3 years ago

14 Replies

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I GOT MY COVID VACCINE 6 months after a mild version of COVID-19 in July.

Hi there. I have APS with Asthma, anemia, Raynards, & Carpal Tunnel. I am a Psychatric Nurse in patient psych hospital in Florida, USA. My Rheumatologist...

Hi there. I have APS with Asthma, anemia, Raynards, & Carpal Tunnel. I am a P...

nurse_ninja

•3 years ago

4 Replies

Warfarin substitute

Are there any new findings on the use of Xarelto in place of Warfarin?

albie360

•3 years ago

10 Replies

APS people

APS people - How has any of you that have gotten the vaccine . Is there any info out there pro or con about getting the vaccine .

APS people - How has any of you that have gotten the vaccine . Is there any i...

jetjetjet

•3 years ago

45 Replies

St.Thomas London

Can I ask if anyone goes to St.Thomas lupus clinic in London please? My lovely doctor was so helpful and supportive but doesn't think she'd be able to refer me...

Can I ask if anyone goes to St.Thomas lupus clinic in London please? My lovely d...

JemJJ

•3 years ago

9 Replies

Lab results

Hi - I’ve posted recently about strongly positive Antiphospholipid antibodies. I just wonder I’d someone could interpret figures at all?? I’ve gone from double...

Hi - I’ve posted recently about strongly positive Antiphospholipid antibodies. I...

Daisyyellow

•3 years ago

7 Replies

Teeth

Hi everyone. Does anyone know if APS affects your teeth for some reason mine seem to be rotting at an incredible rate even though I brush and floss etc. My...

Hi everyone. Does anyone know if APS affects your teeth for some reason mine see...

margaretjo

•3 years ago

7 Replies

GHIC COVID-19 VACCINE STATEMENT

Hi everybody, on the GHIC Facebook page there is a recent question and answer session with Dr Arind Kaul, around the subject of vaccinations, and this is...

Hi everybody, on the GHIC Facebook page there is a recent question and answer ...

MaryF

Administrator•3 years ago

2 Replies

Vitamin D3

Just wondering if anyone taking vit D 3 has noticed an increase in their inr it doesn’t contain any vit K, just thought it might be good to take the...

Just wondering if anyone taking vit D 3 has noticed an increase in their inr it ...

daisyd

•3 years ago

10 Replies

Does the covid vaccine affect INR?

I just got the first dose of the covid vaccine and wondering if anyone who’s gotten the vaccine noticed that it affected their INR.

I just got the first dose of the covid vaccine and wondering if anyone who’s got...

loretta1106

•3 years ago

8 Replies

Ape and leg problem!

Happy and a better new year to everyone. Wondering if anyone has had a problem like I had. I have APS and on warfarin. On news year’s day I woke up with a...

Happy and a better new year to everyone. Wondering if anyone has had a problem l...

Hedwig-68

•3 years ago

3 Replies

MC Trigger warning...

. . . . . . On Friday I was told at my 8 week scan that the baby had stopped growing at 5 weeks and there was no heartbeat. I have to go back for a...

. . . . . . On Friday I was told at my 8 week scan that the baby had stopped gro...

JemJJ

•3 years ago

25 Replies

Posts

I posted a very emotional heartfelt post on here earlier but it hasn't shown up, does it need to be accepted by admin first please? I'm desperate at the moment...

I posted a very emotional heartfelt post on here earlier but it hasn't shown up,...

JemJJ

•3 years ago

5 Replies

APS Specialist in Florida.

Hi there :) I am Orlando and I have just been diagnosed with primary APS. I am trying to find an APS specialist in the Miami area (Florida, USA). Can anyone on...

Hi there :) I am Orlando and I have just been diagnosed with primary APS. I am t...

Or81

•3 years ago

45 Replies

Low INR despite increasing warfarin dose?

Hi All, Happy New Year! I hope 2021 is better than the last one and everyone stays healthy and safe. My INR has been stable at 1.8 (recommended range 3.5-4.0)...

Hi All, Happy New Year! I hope 2021 is better than the last one and everyone sta...

Sophia

•3 years ago

6 Replies

Surgery

Hi guys & dolls Can I just ask if any of you have had surgery whilst on Warfarin. I need to have a breast operation and the surgeon is a bit “twitchy” about...

Hi guys & dolls Can I just ask if any of you have had surgery whilst on Warfari...

amy1808

•3 years ago

11 Replies

Are there Australians out there?

I'm feeling lonely as most doctors I meet know very little about APLS. I live in Qld and have only heard of one other case of the disease.

I'm feeling lonely as most doctors I meet know very little about APLS. I live ...

rockcats4

•3 years ago

17 Replies

Numbness?

Hi there, I’ve posted a few times about strange symptoms snd blood test results. I’m still not medicated or really been diagnosed with anything. Briefly my...

Hi there, I’ve posted a few times about strange symptoms snd blood test results....

Daisyyellow

•3 years ago

16 Replies

Osteoporosis & Fosamax

I’ve had osteopenia for years & was recently told at 74 that I have osteoporosis on my left hip. I have always taken calcium supplements, exercise etc My...

I’ve had osteopenia for years & was recently told at 74 that I have osteoporosis...

loretta1106

•3 years ago

3 Replies

Symptoms please

Help everyone, I don't know if I have this, so doing a little research, would anyone be willing to tell me the symptoms of APS please, I understand it can...

Help everyone, I don't know if I have this, so doing a little research, would an...

Webster322

•3 years ago

11 Replies

Can I have the Vaccine?

Hi All, I’ve not been online for quite a while. Can anyone tell me if I can have the Vaccine while I’m having 2 injections of blood thinner per day? I am...

Hi All, I’ve not been online for quite a while. Can anyone tell me if I can have...

Teanna

•3 years ago

16 Replies

Covid-19 injection

Just wondering if anyone on here has any experience of someone that is taking warfarin and the injection.? I have read on the government advice that people...

Just wondering if anyone on here has any experience of someone that is taking wa...

Vespa1

•3 years ago

15 Replies

I am in hospital with a lung clot and I have low oxygen was 87 now up to 92 anyone else had this. I still have pain in my left side on Morph

What pain relief can I take when I get home.

Souter

•3 years ago

6 Replies

Wishing everybody all the best for 2021

Best wishes for a great 2021, we all deserve a much better year to come! Lots love love to you all x MaryF

Best wishes for a great 2021, we all deserve a much better year to come! Lots l...

MaryF

Administrator•3 years ago

17 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for January 2021

Cerebral APS just getting worse a rant

Going stir crazy

APS and blood work

I GOT MY COVID VACCINE 6 months after a mild version of COVID-19 in July.

Warfarin substitute

APS people

St.Thomas London

Lab results

Teeth

GHIC COVID-19 VACCINE STATEMENT

Vitamin D3

Does the covid vaccine affect INR?

Ape and leg problem!

MC Trigger warning...

Posts

APS Specialist in Florida.

Low INR despite increasing warfarin dose?

Surgery

Are there Australians out there?

Numbness?

Osteoporosis & Fosamax

Symptoms please

Can I have the Vaccine?

Covid-19 injection

I am in hospital with a lung clot and I have low oxygen was 87 now up to 92 anyone else had this. I still have pain in my left side on Morph

Wishing everybody all the best for 2021

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