Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for July 2024

Is there a link between hemangiomas and Hughes Syndrome.

Hi, I have many autoimmune diseases as well as triple positive APs. Spinal scans have shown five hemangiomas on my spine. Another appeared on my trunk when...

Hi, I have many autoimmune diseases as well as triple positive APs. Spinal sca...

•25 days ago

Debbie

Recently come out of hospital after 3 months following an unexpected bowel operation (fortunately not cancer related)Just wanted to big up the NHS. The...

Recently come out of hospital after 3 months following an unexpected bowel opera...

•27 days ago

Triple Positive, High Titres, no event yet. Prevention?

Hi all - On the one hand, I feel very fortunate to know that I have the APL antibodies (just tested as persistent at 12 weeks) before anything dire has...

Hi all - On the one hand, I feel very fortunate to know that I have the APL ant...

•1 month ago

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Having a bad day

This is my third post in this group and I’m hoping to get some positive testimonials from long term APS patients. I’m 38, my partial diagnosis started a month...

This is my third post in this group and I’m hoping to get some positive testimon...

•1 month ago

Eliquis

This may be a little long. On June 9, I went to the ER with shortness of breath, a CT scan showed multiple bilateral pulmonary embolisms. The doctor started me...

This may be a little long. On June 9, I went to the ER with shortness of breath,...

•1 month ago

Recently diagnosed

I was diagnosed about a month ago. I was hospitalized with bilateral PEs. I have been on eliquis since but my pulmonologist is putting me on warfarin which I...

I was diagnosed about a month ago. I was hospitalized with bilateral PEs. I have...

•2 months ago

Pneumococcal vaccine

Hi everyone , can anyone tell me if the pneumococcal vaccine is safe ? I have uctd and triple positive APS thanks Elfie

Hi everyone , can anyone tell me if the pneumococcal vaccine is safe ? I have uc...

•2 months ago

APS and leaky gut

Hello all, I am writing regarding my daughter who has APS. She has been taking rather large doses of Coumadin for about 20 years now. She eats a very healthy...

Hello all, I am writing regarding my daughter who has APS. She has been taking ...

•2 months ago