Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for April 2018

Headache and head pain

Getting lots of head pain just behind my right ear thought in the past it was ear ache but been to my gp many times says there’s nothing wrong with ear 👂...

Getting lots of head pain just behind my right ear thought in the past it was ea...

Tim_Thorpe

•7 years ago

6 Replies

New APS Diagnosis

I am from United States and I was just diagnosed with APS after having abnormal PTT tests. I have never had symptoms that I know of, have had surgeries before...

I am from United States and I was just diagnosed with APS after having abnormal ...

leamercedes22

•7 years ago

10 Replies

Is Cogucheck accurate?

Hi, does cogucheck show accurate results compared to a lab test?

Kushaal

•7 years ago

5 Replies

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Haematologist says I don’t have APS...

I’m in the UK and I had my first appointment with a Haematologist a couple of days ago - after chasing my GP For a referral since December... I had two tests...

I’m in the UK and I had my first appointment with a Haematologist a couple of da...

MemmaJ

•7 years ago

7 Replies

In Colorado, what is everyone else doing about losing Jill Schofield as a provider? I'm devastated and lost.

I received a letter she was taking time off from practice and I don't see anyone at her practice as a replacement. Thanks

I received a letter she was taking time off from practice and I don't see anyone...

orygun66

•7 years ago

24 Replies

dental implants

im Jackie and have been having breathing and other problems since having dental implants 9 month ago has anyone else had this and does it get better no problem...

im Jackie and have been having breathing and other problems since having dental ...

samuel13

•7 years ago

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Excellent haematologist and Rheumatologist in Kent, Uk

We all know how hard real help is to find in the form of specialists so I wanted to share my recent experiences. Yesterday I saw Dr Gillian Evans at Kent and...

We all know how hard real help is to find in the form of specialists so I wanted...

WendyWoo50

•7 years ago

9 Replies

Undiagnosed for 17 years

I have been sick for 17 years with an undiagnosed illness. I am not feeling well, so I won't go into all the details of my illness. In fact, Im feeling so...

I have been sick for 17 years with an undiagnosed illness. I am not feeling well...

shefab

•7 years ago

5 Replies

APS advice

Hi everyone, I've tested positive for aps. The doctor said it was at 1.4. I have no idea what this means? Would anyone know what the 1.4 means? From research...

Hi everyone, I've tested positive for aps. The doctor said it was at 1.4. I hav...

Heidi2791

•7 years ago

12 Replies

Collecting research/knowledge

Medical history practically nonexistent prior to 65. Dx’d hypo (2015) of blood test and started mylan levo. First reaction in eyes and a sort of full body...

Medical history practically nonexistent prior to 65. Dx’d hypo (2015) of blood t...

phirestar

•7 years ago

2 Replies

Anyone that has or is dealing with mental issues, such as panic,anxiety, depression and possibly seizures? Anyone else? Never before APS!

Any info would be appreciated

edgewater100

•7 years ago

6 Replies

A little off topic: can anyone name any books that have kept them laughing?

Or anything that has gotten you laughing. Even some good jokes or riddles? I need a good pick me up.

Or anything that has gotten you laughing. Even some good jokes or riddles? I nee...

Wittycjt

•7 years ago

8 Replies

Hello I'm new here

Congratulations to Professor Hughes for creating this excellent Charity GHIC and support network. It can be very lonely when you are suffering with symptoms...

Congratulations to Professor Hughes for creating this excellent Charity GHIC and...

Linpin22

•7 years ago

27 Replies

Tinnitus and pulsating tinnitus

I have lupus and APS... Just wanted to check to see if anyone with APS has these symptoms or if it’s something else ... anyone have ringing in your ears or...

I have lupus and APS... Just wanted to check to see if anyone with APS has these...

Steph626

•7 years ago

9 Replies

INR Ranges

I again am in a battle with my INR people here. I thought that Dr. Hughes did an article on where people should be . And as i remember 3.5 to 4.5 was the...

I again am in a battle with my INR people here. I thought that Dr. Hughes did ...

jetjetjet

•7 years ago

19 Replies

Allergic reactions-help on finding what is in medications

Recently I saw Dr. Jill Schofield for my APS. She studied under Prof. Hughes & is very knowledgeable. I have been having lots of problems with reactions to...

Recently I saw Dr. Jill Schofield for my APS. She studied under Prof. Hughes & i...

designer16

•7 years ago

6 Replies

Thyroid tests

What are the more thorough Thyroid tests that can be done? Where can I get this done as unlikely my GP will do it. I have an underactive thyroid, Sjogrens and...

What are the more thorough Thyroid tests that can be done? Where can I get this ...

AvsG

•7 years ago

4 Replies

Heavy legs

I’ve been experiencing heavy, painful/burning & fatigued feeling in my legs for years now... I was recently diagnosed with lupus, have had a positive LA in my...

I’ve been experiencing heavy, painful/burning & fatigued feeling in my legs for ...

Steph626

•7 years ago

25 Replies

Should I take aspirin?

Hi everyone! After suffering a missed miscarriage and 2 chemical pregnancies, I had bloods done. The test came back positive for LA. I unerstand a further...

Hi everyone! After suffering a missed miscarriage and 2 chemical pregnancies, I ...

Heidi2791

•7 years ago

12 Replies

Specialists in mountain west of the USA?

I am newly diagnosed with APS and Factor 5 Leiden. The Coumadin clinic has my target inr at 2-3. Everything I am reading on this site notes most are at 3-4. I...

I am newly diagnosed with APS and Factor 5 Leiden. The Coumadin clinic has my ta...

Ciche

•7 years ago

10 Replies

Vision problems ?

Wondering if and what type of vision issues people have when INR is low / if anyone is only on aspirin ? I have had vision problems off and on for the last...

Wondering if and what type of vision issues people have when INR is low / if any...

Bsharon

•7 years ago

12 Replies

Does anyone have experience if phlebitis regarding APS and SLE

Last night I thought I had broken my elbow not having done anything at all. The sharp pain was excruciating. I could not lift or move my arm comfortably...

Last night I thought I had broken my elbow not having done anything at all. The...

LindaMorrell

•7 years ago

4 Replies

Weather & APS

Does anyone have more symptoms when the hot weather comes? If so, what are your symptoms?

Does anyone have more symptoms when the hot weather comes? If so, what are your ...

missygirl0130

•7 years ago

7 Replies

Micro Blood clotting

Do Any of you have or have seen more micro clotting , kelly in texas has given me some - just wondering is there more out there ....

Do Any of you have or have seen more micro clotting , kelly in texas has ...

jetjetjet

•7 years ago

10 Replies

Micro clots

I had a stroke in 2011 and many mini strokes . Then had an operation in 2016 and felt funny afterwards lucky under the care of prof hunt at st Thomas hospital...

I had a stroke in 2011 and many mini strokes . Then had an operation in 2016 and...

Tim_Thorpe

•7 years ago

6 Replies

AFIB

I have AFIB and had to go to the hospital to get my heart back in sync. I think I caught a bad flu bug which dehydrated me. Can anyone tell me how long you can...

I have AFIB and had to go to the hospital to get my heart back in sync. I think ...

Ryman2007

•7 years ago

9 Replies

PLEASE HELP ME WITH APS, STICKY BLOOD

I have Antihphorpholipid syndrome, only diagnosed last year, but after Years of silently suffering because of ignorance of so meny doctors. My symptoms have...

I have Antihphorpholipid syndrome, only diagnosed last year, but after Years of ...

mariamoo1

•7 years ago

8 Replies

Antibodies

Hello could someone please explain why my anti ro antibodies were positive last year,but now there is no sign of them, I can't understand this xx

Hello could someone please explain why my anti ro antibodies were positive last ...

Gilliansimba

•7 years ago

4 Replies

Just saw this article and thought others might be interested in it.

https://medicine.yale.edu/whr/news/article.aspx?id=17076

dogtail

•7 years ago

2 Replies

Massage whilst on Warfarin?

I wondered if anyone has had a massage whilst on warfarin? I have Hughes Syndrome and my INR range is 3.5 - 4.5. My GP was unsure and thought I may get...

I wondered if anyone has had a massage whilst on warfarin? I have Hughes Syndrom...

AvsG

•7 years ago

14 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2018

Headache and head pain

New APS Diagnosis

Is Cogucheck accurate?

Haematologist says I don’t have APS...

In Colorado, what is everyone else doing about losing Jill Schofield as a provider? I'm devastated and lost.

dental implants

Excellent haematologist and Rheumatologist in Kent, Uk

Undiagnosed for 17 years

APS advice

Collecting research/knowledge

Anyone that has or is dealing with mental issues, such as panic,anxiety, depression and possibly seizures? Anyone else? Never before APS!

A little off topic: can anyone name any books that have kept them laughing?

Hello I'm new here

Tinnitus and pulsating tinnitus

INR Ranges

Allergic reactions-help on finding what is in medications

Thyroid tests

Heavy legs

Should I take aspirin?

Specialists in mountain west of the USA?

Vision problems ?

Does anyone have experience if phlebitis regarding APS and SLE

Weather & APS

Micro Blood clotting

Micro clots

AFIB

PLEASE HELP ME WITH APS, STICKY BLOOD

Antibodies

Just saw this article and thought others might be interested in it.

Massage whilst on Warfarin?

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