Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for December 2014

Bored with chasing my rheumatologist... Oh and happy new year!

So back on the 4th December I had an appointment with the aforementioned rheumatologist. He agreed that my INR range was too low and probably the cause of my...

So back on the 4th December I had an appointment with the aforementioned rheumat...

jojo-lianne

•10 years ago

3 Replies

Hearing loss

So I'm going deaf apparently, and so far I don't have any leads as to why. My doctor doesn't think it's related to the aps, but hasn't tried to verify that I...

So I'm going deaf apparently, and so far I don't have any leads as to why. My do...

momtomany

•10 years ago

12 Replies

Appt. Guys

Had my first NHS appt. at Guys with Proff khamashta today. What a lovely man! Had been messed around left right and centre over a period of ten years at St...

Had my first NHS appt. at Guys with Proff khamashta today. What a lovely man! Ha...

donnabrain

•10 years ago

4 Replies

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To all my fellow SLUDGE BLOODS Another year at end --May we all be looking forward to a better and Happier 2015 2014 UPS --DOWNS -OVER and under s come to...

To all my fellow SLUDGE BLOODS Another year at end --May we all be looking for...

jetjetjet

•10 years ago

6 Replies

Promising Appt w/GP

I feel hopeful tonight after today's appointment with my GP. He seemed very open to learning about APS and was willing to not just listen to my research based...

I feel hopeful tonight after today's appointment with my GP. He seemed very open...

Godstrong

•10 years ago

11 Replies

INR

DN been taking my bloods again to day cos they got it wrong yesterday so the got it right to day just had a phone call from hospital they sed my INR is bad...

DN been taking my bloods again to day cos they got it wrong yesterday so the got...

Lesley61

•10 years ago

10 Replies

Fluctuations...

Hello. I live in California, USA and tested positive for Hughes after years of chronic symptoms including muscle/joint pain, headaches, brain fog, GI issues,...

Hello. I live in California, USA and tested positive for Hughes after years of ...

ehc918

•10 years ago

19 Replies

Memory problem

I've had problems with my Memory for a good while now but it's not been a huge problem. Usually it's forgetting conversations and what to buy at the shop, that...

I've had problems with my Memory for a good while now but it's not been a huge p...

Tomcat

•10 years ago

6 Replies

APS/strok

Hi hope u all had a good Xmas I work up just over a week ago had pain in my left side of my head and Mr face gone numb then my left leg was so heavy I could...

Hi hope u all had a good Xmas I work up just over a week ago had pain in my left...

Lesley61

•10 years ago

16 Replies

Is reflexology safe with warfarin

Just wanted to ask if it's safe to have reflexology while on warfarin and if it's likely to cause bruises. Would like to try it and see if helps my lupus...

Just wanted to ask if it's safe to have reflexology while on warfarin and if it'...

Gerardina

•10 years ago

7 Replies

Who has a close relative with APLS?

Just wondering how many of us that have APLS also have a child, sibling or parent with APLS? I also have FVL and have just found out that one of my sons has...

Just wondering how many of us that have APLS also have a child, sibling or paren...

tassie

•10 years ago

10 Replies

MERRY CHRISTMAS TO aLL

It is 10;32 PM here in Concord N.H. Casey and I are off to midnight Mass The will have a 36 bell choir The vocal choir . And a real working pipe...

It is 10;32 PM here in Concord N.H. Casey and I are off to midnight Mass T...

jetjetjet

•10 years ago

3 Replies

Question about TSH numbers and Thyroid

Hey MaryF, I have a question for you about my TSH numbers. I've been doing some digging through my medical records from 2012 and I found my TSH numbers. My TSH...

Hey MaryF, I have a question for you about my TSH numbers. I've been doing some ...

Hidden

•10 years ago

4 Replies

Christmas decorations <:o{)

Sal0712

•10 years ago

6 Replies

Frustrated

I had my rheumatology appointment on 1st December and discussed the results of the bloods I had taken three months ago when my GP faxed the consultant about a...

I had my rheumatology appointment on 1st December and discussed the results of t...

lorac1

•10 years ago

4 Replies

OK

Lets see what all your Christmas tree's and or decorations from around the world look like . See how many we can get :-) :-) :-)

Lets see what all your Christmas tree's and or decorations from around the world...

jetjetjet

•10 years ago

5 Replies

Merry Christmas...

Simply felt I should shout out a Merry Christmas and Happy New Year to everyone here on the forum. I am grateful for all the support here on this forum. Am...

Simply felt I should shout out a Merry Christmas and Happy New Year to everyone ...

beccafullcircle

•10 years ago

6 Replies

Hi

HAPPY CHRISTMAS everyone !!!!!!!!!!! Hope you all have a great one.

ledlegs

•10 years ago

3 Replies

Itchy

Ok so until I haf my strokes in 2011 I didn't have any symptoms from the aps that I know of lime I said before I als have MS since 2005. But lately I have...

Ok so until I haf my strokes in 2011 I didn't have any symptoms from the aps tha...

Needsanap

•10 years ago

6 Replies

About vision problems

I just read a post about APS causing vision problems. I wanted to ask you guys a question about my own vision problems. In 2006 I was diagnosed with a slight...

I just read a post about APS causing vision problems. I wanted to ask you guys a...

Hidden

•10 years ago

12 Replies

Flu Jab

Well I asked at my GP practice about getting the flu jab with me having a long standing illness etc... I was told in no uncertain terms that I did not fit the...

Well I asked at my GP practice about getting the flu jab with me having a long s...

kateb81

•10 years ago

5 Replies

I hope everybody is getting ready for Christmas?

https://www.youtube.com/watch?v=6Agr3PiPJEM http://youtu.be/6Agr3PiPJEM MaryF

MaryF

Administrator•10 years ago

13 Replies

Thank you & Merry Christmas to all

Hi all, especially the main responders on here I just wanted to say 'Thank you' for just being there. I have only recently found the forum and it has helped me...

Hi all, especially the main responders on here I just wanted to say 'Thank you' ...

CheddarAddict

•10 years ago

10 Replies

Update...

Hello everyone, I haven't been on here that often over the last 3 months, but i just wanted to update you all. My partner and I went to the hospital thursday...

Hello everyone, I haven't been on here that often over the last 3 months, but i ...

kirstyleigh

•10 years ago

15 Replies

Newly diagnosed & seeking guidance

I'm a 37 yr old woman newly diagnosed with hughes syndrome after DVT and postive lupus anticoagulant test. I have had Mixed Connective Tissue Disease (MCTD)...

I'm a 37 yr old woman newly diagnosed with hughes syndrome after DVT and postive...

Godstrong

•10 years ago

8 Replies

My son has passed on his sickness bug to me. Should i just rest and let nature take its course or should i see gp.

I was sick 12 hours after taking my warfarin so think Im ok with that one but was worried about my next dose. Also if i can't eat will that make my inr drop :-(

I was sick 12 hours after taking my warfarin so think Im ok with that one but wa...

Hidden

•10 years ago

11 Replies

Information for my GP

As a chronic migraine sufferer I am going to ask my GP to carry out blood tests for Hughes Syndrome. He always talks about evidence based practice, so what...

As a chronic migraine sufferer I am going to ask my GP to carry out blood tests ...

Hidden

•10 years ago

4 Replies

Questioning correct medication

I was diagnosed with APS about 10 years ago by my Rheumatologist who took a history on me at our first visit. With my menstrual history pregnancy problems and...

I was diagnosed with APS about 10 years ago by my Rheumatologist who took a hist...

granmyty

•10 years ago

4 Replies

Pain/ warfarin

Has anyone experienced lower left chest pain due to warfarin ?

Lorraine44

•10 years ago

12 Replies

Can low INR cause depression/mood swings/anxiety?

Hi, with the help of my clinic nurse we are nearly on track with getting the correct warfarin dose to get my INR within its target range (2.5-3.5), however my...

Hi, with the help of my clinic nurse we are nearly on track with getting the cor...

Tess43

•10 years ago

17 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2014

Bored with chasing my rheumatologist... Oh and happy new year!

Hearing loss

Appt. Guys

Last post

Promising Appt w/GP

INR

Fluctuations...

Memory problem

APS/strok

Is reflexology safe with warfarin

Who has a close relative with APLS?

MERRY CHRISTMAS TO aLL

Question about TSH numbers and Thyroid

Christmas decorations <:o{)

Frustrated

OK

Merry Christmas...

Hi

Itchy

About vision problems

Flu Jab

I hope everybody is getting ready for Christmas?

Thank you & Merry Christmas to all

Update...

Newly diagnosed & seeking guidance

My son has passed on his sickness bug to me. Should i just rest and let nature take its course or should i see gp.

Information for my GP

Questioning correct medication

Pain/ warfarin

Can low INR cause depression/mood swings/anxiety?

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