Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,349 members • 10,537 posts

All posts for November 2012

Copy cat clot jet!!! :-)

Hi Well I have finally given in and closed the restaurant and taken to my bed!! Which I should have done last weekend!! Joined the transatlantic clot club...

Hi Well I have finally given in and closed the restaurant and taken to my bed...

jessielou

•11 years ago

5 Replies

Is it possible to take Lovenox injections (heparin) to treat APS? Instead of Warfarin. I don't think my insurance will pay for it.

I am on Warfarin for my diagnosis of APS. I had a clot in 2008. I also have Lupus, and fibromyalgia. I have had horrible stomach problems since being on...

I am on Warfarin for my diagnosis of APS. I had a clot in 2008. I also have Lupu...

smjohn

•11 years ago

7 Replies

more clots

after some pretty hard bouts with sharp throbbing pain in left leg- got to Dc.'s and had it checked out ,i knew something was wrong as this pain was in the...

after some pretty hard bouts with sharp throbbing pain in left leg- got to Dc...

jetjetjet

•11 years ago

17 Replies

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Does anyone else with Clotting Risk, Hughes Syndrome, Antiphospholipid Syndrome have a history of dental problems?

smjohn

•11 years ago

11 Replies

AF: Useful article seen on TUK recently

http://www.bmj.com/content/345/bmj.e7895 Mary F x

MaryF

Administrator•11 years ago

1 Reply

Has anyone had a dental implant?

How did it go? What about such things as swelling, bruising, bleeding, infection, stress, fatigue, pain, flare afterwards etc.? Did you have conscious...

How did it go? What about such things as swelling, bruising, bleeding, infectio...

Coppernob

•11 years ago

12 Replies

Is Hughes Syndrome the same as having positive lupus anticoagulants?

hoping someone can shed some more light on this, my drs dont seem to know too much.. 10 years ago, I had 4 miscarriages, and after some blood tests was told...

hoping someone can shed some more light on this, my drs dont seem to know too mu...

nuddle

•11 years ago

13 Replies

Need a dr.

I have APS-had pulmonary embolism, 5 miscarriages, bowel obstruction. Now I have MS like symptoms. Dr are confused because there are no Brian lesions, spine...

I have APS-had pulmonary embolism, 5 miscarriages, bowel obstruction. Now I have...

designer16

•11 years ago

1 Reply

Does anyone have a dr. To dx and treat APS

I know I have APS and some MS symptoms. All the neurologist I have went to have no experience with Hughes syndrome. Can anyone help?

I know I have APS and some MS symptoms. All the neurologist I have went to have ...

designer16

•11 years ago

6 Replies

Article - Pregnancy related!

http://www.telegraph.co.uk/health/9704974/Quarter-of-stillbirths-could-be-avoided.html#disqus_thread Mary F x

http://www.telegraph.co.uk/health/9704974/Quarter-of-stillbirths-could-be-avoide...

MaryF

Administrator•11 years ago

1 Reply

i have aps can't go to sleep at night dr gave me a script for valium has anyone else tried this to help fall asleep?

strawberryblonde

•11 years ago

4 Replies

AMPUTATION OR MEDICATION?

Group, you have been kind and helpful since I discovered this site a few weeks ago. I mentioned that I am facing amputation of a leg, after I have open-heart...

Group, you have been kind and helpful since I discovered this site a few weeks a...

pinkcollar

•11 years ago

6 Replies

black and blue marks

my inr was 2.9 then dr checked week later it was 19 thanks for your responses

strawberryblonde

•11 years ago

6 Replies

Am I going mad

hi since I last wrote to ask about symptoms I went to see my neurologist and he basically said he's not worried about my over active nerves in my leg and I...

hi since I last wrote to ask about symptoms I went to see my neurologist and he ...

Missdaisy

•11 years ago

6 Replies

Brain cognition test

Went for this test today on the advice of prof Hunt. Unfortunately I wouldn't be surprised if my results aren't up in London by my appointment on 5 dec,...

Went for this test today on the advice of prof Hunt. Unfortunately I wouldn't be...

janekins

•11 years ago

13 Replies

A very special birthday today

Morning everyone, Lovely nice warm sunny day today .......NOT! Actually, it is a nice day today............ look who's birthday it is! (see below)...

Morning everyone, Lovely nice warm sunny day today .......NOT! Actually, it ...

SuzanneJ

•11 years ago

10 Replies

im on coumidon i have several black and blue marks with a hard bumps is this common in hughes syndrome?

strawberryblonde

•11 years ago

4 Replies

bumps on bruises is this common

strawberryblonde

•11 years ago

4 Replies

Thanks for comments.

Well, I had another series of episodes this morning. Each lasting about 1-2 minutes - for a total of about 20 minutes all together. Yes, I have had several...

Well, I had another series of episodes this morning. Each lasting about 1-2 min...

Willa

•11 years ago

12 Replies

1 Year and Counting

In June 2011 I started having unusal movement episodes - very similar to seizures, although I was always aware of my surroundings before, during and after each...

In June 2011 I started having unusal movement episodes - very similar to seizure...

Willa

•11 years ago

8 Replies

To those who have a faith based support

I know this may not be a place to talk about Faith based support, but it really does help. Having faith based support does, and can help. I am asking to see...

I know this may not be a place to talk about Faith based support, but it really ...

Skyllark

•11 years ago

5 Replies

Article

http://www.guardian.co.uk/politics/2012/nov/25/sham-listening-exercise-nhs-reform?fb=optOut Mary F

http://www.guardian.co.uk/politics/2012/nov/25/sham-listening-exercise-nhs-refor...

MaryF

Administrator•11 years ago

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Lyrica

Has anyone else had a bad reaction to Lyrica? If so, what were your symptoms? I feel really ill today and am wondering if it could be the Lyrica I have been...

Has anyone else had a bad reaction to Lyrica? If so, what were your symptoms? ...

InSpain

•11 years ago

4 Replies

Referrals!

Why dont our GP want to refer patients, my Granddaughter is 27 tomorrow and has APS, ITP and Lupus. She has had to Strokes and numerous TIA's and for the past...

Why dont our GP want to refer patients, my Granddaughter is 27 tomorrow and has ...

jjandsj

•11 years ago

13 Replies

Feeling so weird even in INR range.

I just don't know whats wrong with me. I thought I knew myself and all my symptoms but over recent week I have felt so weird and mostly my INR has been in...

I just don't know whats wrong with me. I thought I knew myself and all my sympto...

Jade

•11 years ago

10 Replies

B12...

...when will I feel alive again? Has anyone has experience with the injection? Had my first of 6 today and if I'm honest. I'm expecting miracles! Ha!...

...when will I feel alive again? Has anyone has experience with the injection? H...

Tannyah

•11 years ago

9 Replies

TIA's?

Sorry to sound a bit dense, but when you have a TIA what symptoms do you get and can you recognise that this is what has happened? Or do you go to a GP/...

Sorry to sound a bit dense, but when you have a TIA what symptoms do you get and...

janekins

•11 years ago

10 Replies

Visiting our lovely Professor.

Well I ended up with flu and nearly no voice in time for going down to London to see Prof Hughes. With train delays etc we spent about 7 hours in all...

Well I ended up with flu and nearly no voice in time for going down to London to...

Jade

•11 years ago

4 Replies

I have a new (quote from dr) very rare antibody.....

Well i went for an unplanned visit to the antenatal clinic today after starting with a flare during the same wk that i lost my last bubs.... Ive been getting...

Well i went for an unplanned visit to the antenatal clinic today after starting ...

kateb81

•11 years ago

2 Replies

Stroke like symptoms

Hi everyone I have posted this question on the Hughes and Lupus sites. Please could anyone who has had stroke like symptoms but nothing has shown on scans...

Hi everyone I have posted this question on the Hughes and Lupus sites. Plea...

janekins

•11 years ago

9 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for November 2012

Copy cat clot jet!!! :-)

Is it possible to take Lovenox injections (heparin) to treat APS? Instead of Warfarin. I don't think my insurance will pay for it.

more clots

Does anyone else with Clotting Risk, Hughes Syndrome, Antiphospholipid Syndrome have a history of dental problems?

AF: Useful article seen on TUK recently

Has anyone had a dental implant?

Is Hughes Syndrome the same as having positive lupus anticoagulants?

Need a dr.

Does anyone have a dr. To dx and treat APS

Article - Pregnancy related!

i have aps can't go to sleep at night dr gave me a script for valium has anyone else tried this to help fall asleep?

AMPUTATION OR MEDICATION?

black and blue marks

Am I going mad

Brain cognition test

A very special birthday today

im on coumidon i have several black and blue marks with a hard bumps is this common in hughes syndrome?

bumps on bruises is this common

Thanks for comments.

1 Year and Counting

To those who have a faith based support

Article

Lyrica

Referrals!

Feeling so weird even in INR range.

B12...

TIA's?

Visiting our lovely Professor.

I have a new (quote from dr) very rare antibody.....

Stroke like symptoms

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