Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,443 members•10,641 posts

All posts for March 2015

Fear of the unknown

Good evening all, firstly thank you to everyone being so kind to me yesterday and addressing some of my concerns. Unfortunately I have kinda worked myself...

Good evening all, firstly thank you to everyone being so kind to me yesterday an...

bobbywgirl3

•10 years ago

8 Replies

INR shot to bits

Brief timeline DVT & PE 2012 warfarin target INR 2.5 just started plaquenil with St Thomas's 2 months in of 3 trial. Oh joy ..... Was meant to go 8 weeks but...

Brief timeline DVT & PE 2012 warfarin target INR 2.5 just started plaquenil with...

CheddarAddict

•10 years ago

9 Replies

OHSU anyone?

I am curious if anyone from Oregon goes to OHSU for APS. What have your experiences been? I'm wanting to get a feel for my upcoming appointment. It is an...

I am curious if anyone from Oregon goes to OHSU for APS. What have your experien...

AngieRae

•10 years ago

1 Reply

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Understanding INR?

Hi I have only recently been diagnosed after having 4 miscarriages, although have now found that most of the symptoms of "depression/anxiety " I have had...

Hi I have only recently been diagnosed after having 4 miscarriages, although ha...

CharH

•10 years ago

6 Replies

Your therapeutic laugh for the day:

Church Ladies With Typewriters They're Back! Those wonderful Church Bulletins! Thank Goodness for the church ladies with typewriters. These sentences...

Church Ladies With Typewriters They're Back! Those wonderful Church Bulletins...

GinaD

•10 years ago

5 Replies

APS Diagnosis

Hi, I was finally diagnosed with Hughes Syndrome 16 years ago after 15 miscarriages. My daughter who is now 27 is experiencing a lot of classic symptoms like...

Hi, I was finally diagnosed with Hughes Syndrome 16 years ago after 15 miscarria...

Jolevans

•10 years ago

2 Replies

Scared and lonely

Hi everyone, Been very unwell for many years and as I suffer with severe anxiety due to my health problems doctors have been quick to palm me off. I have since...

Hi everyone, Been very unwell for many years and as I suffer with severe anxiety...

bobbywgirl3

•10 years ago

14 Replies

APS? and Surgery

Hi Everyone, Greetings. So from my previous posts I have stated I have been diagnosed with MS but also tested positive for Cardiolipin IgG (35). I have not...

Hi Everyone, Greetings. So from my previous posts I have stated I have been diag...

Preserved

•10 years ago

13 Replies

APS and progesterone

Hello. I was diagnosed with APS a week ago. I am supposed to start taking Duphasatone (progesterone) because I did't have my period for 3 months. For APS I...

Hello. I was diagnosed with APS a week ago. I am supposed to start taking Duphas...

AncaS

•10 years ago

5 Replies

The Wonderful World of Blood

Sorry if you are not able to get this outside of the UK, recent BBC television programme with Michael Mosley...

Sorry if you are not able to get this outside of the UK, recent BBC television p...

MaryF

Administrator•10 years ago

1 Reply

Is there a APS support group in South West London?

I live in Putney and have been diagnosed with APS since October 2008, when I suffered a TIA. I am under the care of Dr Cohen at UCH and try to maintain INR of...

I live in Putney and have been diagnosed with APS since October 2008, when I suf...

Hidden

•10 years ago

4 Replies

Pregnant and frightened

Hi there everyone, my name is Beverley and I'm new here. I'm writing this post to get ideas of how I can cope with what is happening to me at the moment. I'm...

Hi there everyone, my name is Beverley and I'm new here. I'm writing this post t...

bubblybev

•10 years ago

10 Replies

Aps miscarriages levels foodintolerance

After two early miscarriages I tested positive on cardiolipin IgG (35) and b2gp1 IgG (32). At this point I also did a foodintolerance test, they test different...

After two early miscarriages I tested positive on cardiolipin IgG (35) and b2gp1...

Pektosa

•10 years ago

4 Replies

A positive update

HI all, I just wanted to post and share something positive that happened. I was able to get in touch with my specialist and get a treatment plan that allowed...

HI all, I just wanted to post and share something positive that happened. I was...

Sandrapanda

•10 years ago

5 Replies

APS and ANA of 2560

I just got some doctor's test results (via a network computer site linking my doctors and test results). My ANA was 320 before my stroke with a diagnosis of...

I just got some doctor's test results (via a network computer site linking my do...

loretta1106

•10 years ago

1 Reply

I have Sle and Hughes syndrome

I first was diagnosed December 25th 2014 with SLE Lupus about six weeks later after blood work i was told I have Hughes . I am only being treated with low dose...

I first was diagnosed December 25th 2014 with SLE Lupus about six weeks later af...

Luppiegirl

•10 years ago

7 Replies

MS and lupus anticoagulant

Hello, I'm new here and have a question. Has anyone ever been misdiagnosed with MS and in fact had Hughes instead? Or, have both? Any experiences or...

Hello, I'm new here and have a question. Has anyone ever been misdiagnosed with ...

AngieRae

•10 years ago

17 Replies

Is it possible false negative test for lupus anticoagulant?

Hello everyone I am surprised because this time test show negative lupus anticoagulant. But I am not peaceful at all because from April needed to start therapy...

Hello everyone I am surprised because this time test show negative lupus anticoa...

dea29

•10 years ago

13 Replies

Warfarin and Missed Dose

For the first time since I started taking warfarin a year ago, I forgot my dose last night. Waiting for a call from my MD. I believe that from what I've...

For the first time since I started taking warfarin a year ago, I forgot my dose ...

loretta1106

•10 years ago

21 Replies

Any suggestions?

My inr keeps on fluctuation , was 4.6 and was on 11 mg of warfrain blood test Monday inr 3.3 so now on 12 mg , seem to be going 1-2 times a week for inr venous...

My inr keeps on fluctuation , was 4.6 and was on 11 mg of warfrain blood test Mo...

Hidden

•10 years ago

8 Replies

Should I get checked?

Hi all - I am on warfarin and have maintained around 2.5 INR for about 5 months now taking 6.5 milligrams a day. I woke up this morning feeling like I sprained...

Hi all - I am on warfarin and have maintained around 2.5 INR for about 5 months ...

UKWendy

•10 years ago

13 Replies

Mind over medicine

" There is no illness of the body apart from the mind" - Socrates What if you have the power to heal your body just by changing how your mind thinks and...

" There is no illness of the body apart from the mind" - Socrates What if you h...

Danimgw

•10 years ago

2 Replies

I need some advice on what type of doctor I am looking for

I have been looking at lists of doctors on the site APS Foundation of America, and have found several that are fairly close to my home, within 3 or 4 hours...

I have been looking at lists of doctors on the site APS Foundation of America, a...

becca10

•10 years ago

6 Replies

Haven't posted in quite awhile

Thought I had better update everyone since I haven't posted in such a long time. I recently had a knee replacement of a knee replacement. This surgery was on...

Thought I had better update everyone since I haven't posted in such a long time....

becca10

•10 years ago

17 Replies

Good morning every peoples

Well today I'm very excited I'm going to see the Hughes specialist in my area - it's took lots of battling to get to see her but I got there eventually I...

Well today I'm very excited I'm going to see the Hughes specialist in my area - ...

bevjane74

•10 years ago

4 Replies

Unrefreshing sleep?

Does anyone have unrefreshing sleep? You can sleep 9 or 10 hours, and wake up feeling tired like you need more sleep? I'm just wondering what causes this.

Does anyone have unrefreshing sleep? You can sleep 9 or 10 hours, and wake up f...

drob32

•10 years ago

11 Replies

Balancing your immune system for Hughes and autoimmune conditions

Since we know that APA is autoimmune, we can deduce that our immune systems are malfunctioning. A current area of research in immunology is with the "TH"...

Since we know that APA is autoimmune, we can deduce that our immune systems are ...

drob32

•10 years ago

2 Replies

Puzzled

My brain can no longer retain anything for longer than 20 minutes. My inr is 3.2. I have very little energy or get up and go. I am so tired my short term...

My brain can no longer retain anything for longer than 20 minutes. My inr is 3.2...

addz

•10 years ago

8 Replies

Professor Graham Hughes January Blog 2015

January 2015 We are in the thick of preparations for this year’s annual ‘Ten Topics in Rheumatology’ meeting, to be held on Thursday 2nd and Friday 3rd July....

January 2015 We are in the thick of preparations for this year’s annual ‘Ten To...

MaryF

Administrator•10 years ago

2 Replies

TSH result

Hi All Recently saw Dr D'Cruz which was useful. One of the things he has noted in the letter to my Rheumatologist is a TSH elevated at 6.91. He is suggesting...

Hi All Recently saw Dr D'Cruz which was useful. One of the things he has noted ...

Elaine77c

•10 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2015

Fear of the unknown

INR shot to bits

OHSU anyone?

Understanding INR?

Your therapeutic laugh for the day:

APS Diagnosis

Scared and lonely

APS? and Surgery

APS and progesterone

The Wonderful World of Blood

Is there a APS support group in South West London?

Pregnant and frightened

Aps miscarriages levels foodintolerance

A positive update

APS and ANA of 2560

I have Sle and Hughes syndrome

MS and lupus anticoagulant

Is it possible false negative test for lupus anticoagulant?

Warfarin and Missed Dose

Any suggestions?

Should I get checked?

Mind over medicine

I need some advice on what type of doctor I am looking for

Haven't posted in quite awhile

Good morning every peoples

Unrefreshing sleep?

Balancing your immune system for Hughes and autoimmune conditions

Puzzled

Professor Graham Hughes January Blog 2015

TSH result

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