I have APS, MS. Pernicious Anaemia.
My Uncle who died aged 50 about 20 years ago had recurrent blood clots in his leg from age 30, the first resulting in the amputation of his toe after dropping something on it causing gangrine. Anyway, he had progressive amputations until his leg was removed at the hip.
So, I believe he must have had APS. I have just learned that he died from multiple organ failure. There were no clear reasons why - the Dr's put it everything down to the fact that he was a smoker...
I am now assuming he must have had undiagnosed Lupus.
Of course, I am making assumptions and guess work, but it seems the most likely thing to me. And, if I have lupus "like syndrome" can that progress into Lupus? And what actually is Lupus "Like" syndrome?
I was only diagnosed with APS etc. maybe two, three months ago, symptoms began one year ago, and in that time I have had a stroke, arterial clots in my leg requiring major surgery and PE's.
Maybe it's too early to tell my prognosis?
Thank you for any replies; of course I will let my Dr at Tommy's know this, but I won't be seeing her for about a month.