Almost two years after moving 1500 miles, and having to find new doctors, two months ago I finally got into a rhematlogist. It is unbelievable that in the area of the US where I now live, there is only one within a 150 mile radius. Well what has happened is, he suggested that my INR should be reduced back down to 2-3, it had been kept at 3-4 for close to 8 year. I feel worse everyday. My leg that had the clot now swells and aches, my muscles and joints ache, my headaches, it just goes on and on. I feel dreadful! I was so active despite the fact that I also have MS, dx in '86 (relapsing/remitting), fibromyalgia, 2 total knee replacements, lower back surgery and of course the clot in my right leg resulting in 2 PE and dx of APS 9 years ago.
Some things I have read suggest that reducing my INR may be my problem. I need some input please. I thank you for any suggestions.
God Speed, Barb