Great News: The National Migraine... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

Great News

MaryF profile image
MaryFAdministrator
7 Replies

The National Migraine Centre is now on HealthUnlocked. I know a lot of us have headaches/migraines due to Hughes Syndrome and Lupus... however I have many many friends who suffer from time to time with migraines and I shall be giving them links to this forum. I attended their clinic with my 11 year old son, at one stage, their help and letter writing was invaluable. I also have lady friends who have hormone related disabling migraines... I shall of course nudge them. Although some of them have already been along in person to the clinic.

The link is nearly live, but you can get on it through this.

migrainecentre.healthunlock...

Mary F

Written by
MaryF profile image
MaryF
Administrator
To view profiles and participate in discussions please or .
7 Replies
Jade profile image
Jade

Can you tell me where the migraine centre is. My son needs help with migraines.

MaryF profile image
MaryFAdministrator in reply to Jade

Yes here you go, here is charity site for them... EC1 central London I believe. I took my own son there, excellent advice and letter writing to GP and paediatrician! migraineclinic.org.uk/

This is good news - Heather Sim has done a lot to bring the Migraine Clinic forward so I hope this is as successful as her other projects :)

MaryF profile image
MaryFAdministrator in reply to

Yes, I have posted it everywhere, and had lots of enquiries! So things should lift off soon for them. I have joined that forum as a guest as I personally found them SO useful for my family, very easy access to a very good service! Mary F

paddyandlin profile image
paddyandlin

This is great news well done to them i know they will make a diffrence to people

Paddy

Suzypawz profile image
Suzypawz

Thanks for that link, I have copied & pasted it to my sister in law who also struggles with them xx

MaryF profile image
MaryFAdministrator in reply to Suzypawz

Good, their detail to attention as to working out an individual headache and treatment type for somebody's migraine is second to none. Mary F x

You may also like...

got some interesting news

one interested in talking to them let me know ? the more we can feed them trying to look for a...

My wonderful Christmas news.

breath gets suddenly worse go straight to ED) I have the go ahead to start walking and increasing...

Recommendation for the aps charity news letter

just wondering how many of u guys have signed up for the aps charity news letter? If so how useful...

More coaguchek test strip news

test strip problem! I have emailed these results to roche having contacted them last week about...

A very good news blog!

alongside me for her daily migraine.... should my son's 15 month and 4 day migraine come back, so...