Please see question below. Sorry i wa... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,443 members10,641 posts

Please see question below. Sorry i wasnt sur ehow to enter this

lovemyheart profile image
2 Replies

Hi Everyone, I havent written in a while. I am having a terrible time with my gums they are swollen and bleeding plus the dentist said I have major bone loss due to the Hughes. My hemotologist wants to put me on DDAVP because my Factor VIII is too low due to the vonWillebrands disease, however Im scared that it will mess up the antiphospholipids! Im so confused! Any suggestions?... Teresa P.S. I had a major bleed in January. Plus i was in the hospital Feb. for dizziness

Written by
lovemyheart profile image
lovemyheart
To view profiles and participate in discussions please or .
Read more about...
2 Replies
taffydaffy profile image
taffydaffy

Hi Babe

So sorry about you gums I have Sjogren's Syndrome and this happened to me all my gums bleed and swell and all my front teeth were loose all lovely but loose I had to have them out but a fantastic job done by Hugo my Dentist on the NHS may I add thats it from me as I can't help you with the other stuff good luck sweetie x

lovemyheart profile image
lovemyheart in reply totaffydaffy

Thank you Taffy...Thats probably what im going to end up doing as well, I just need an ok with my hematologist because I have the hemophillia as well so the dentist isnt thrilled with taking my teeth out. I just done understand why they will put off the inevitable.

Not what you're looking for?

You may also like...

Anxiety.

Im going thru so much anxiety due to an unbelievable amount of stress. The husband has been out of...
lovemyheart profile image

Should I see a dr over this :-/ ?

Hi all, was diagnosed with APS last year and currently undergoing more tests after some positive...

Vax probs no access to new meds what now

Adverse reactions to Astra zenica and then Pfizer. First one im convinced clot (had 5 previous)...
Cinn987 profile image

Kidney Problesm, possible new diagnosis

Hi all I hope your all well at the moment it is a while since i posted - I was hospitalised wit...
emmaj profile image

New symptoms arrising

Ive had Aps and lupus for over ten years now and its been reasonably managed with daily steroids,...
Tomcat profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.