Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,392 members • 10,588 posts

All posts for December 2011

how to be taken seriously by your relatives

I come from a large family, but don't see them very often as most live in Scotland and I live in Surrey. And when we do fly up for a short visit I make a big...

I come from a large family, but don't see them very often as most live in Scotla...

panda60

•13 years ago

6 Replies

When antibodies are on vacation, where do they go?

So I was reading a post over at the Lupus Foundation of America website...

TheKid

•13 years ago

1 Reply

What type of doctors do u see?

Hi, I was wondering what type of specialist do you all see? I have a wonderful pulmonary doctor that monitors my inr and warfarin. I really liked the...

Hi, I was wondering what type of specialist do you all see? I have a wonderful...

KellyO

•13 years ago

11 Replies

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Neurologist Fatigue

I have heard of a medication ? discussed on here to help with fatigue, I think it is a one that also protects against maleria, I am off to see my Neurologist...

I have heard of a medication ? discussed on here to help with fatigue, I think i...

daisyd

•13 years ago

9 Replies

I'le be back!!!!! Lol!! Xxxx

Hi all the great n talented telecommunications company, can get internet n phone line set up on 23rd dec. Mmmmmm. If we made a customer wait two minutes they...

Hi all the great n talented telecommunications company, can get internet n phon...

jessielou

•13 years ago

4 Replies

is it really life-threatening??

You know, when diagnosed i was told APS was life threatening and i would need medications & monitoring from now on...well if this is so, why do i only get...

You know, when diagnosed i was told APS was life threatening and i would need me...

lollierai

•13 years ago

14 Replies

The bar with the best service

A quick note to say you can now find the (growing) list of HealthUnlocked’s condition-focussed communities by clicking on the new bar at the top of your...

A quick note to say you can now find the (growing) list of HealthUnlocked’s cond...

Hidden

•13 years ago

6 Replies

jerking arms and legs at night

Hi , i'm new to this site and was wonder if anybody has uncontrolable mostly arms but also my legs lately , I only get this at night and usually within 45 to...

Hi , i'm new to this site and was wonder if anybody has uncontrolable mostly arm...

sr56

•13 years ago

15 Replies

plz help

anybody help me ive been bleedin for 7 days constant headache n pain all over.....inr is 1.2 n checked every other day.... im takin 16mg warfrin and takin...

anybody help me ive been bleedin for 7 days constant headache n pain all over......

rach1081985

•13 years ago

7 Replies

Fatigue and overlapping conditions

Having been up half the night reading useful books - combined with Paddy's latest upload on Fatigue, I have a terrible urge to go back to sleep. However a...

Having been up half the night reading useful books - combined with Paddy's lates...

MaryF

Administrator•13 years ago

3 Replies

i want to find out about treatments for hughes

hi i want know what meds people r on for hughes syndrome, as im on 300mg of asprin but my doctor keeps saying that is no longer working for me, but doesnt seem...

hi i want know what meds people r on for hughes syndrome, as im on 300mg of aspr...

claireloliver

•13 years ago

12 Replies

sensory polyneuropathy/i

does anyone have pins and numbness in their feet with difficulty walking thanks from iwas arunner girl until

does anyone have pins and numbness in their feet with difficulty walking ...

iwasaruunergirluntil

•13 years ago

2 Replies

Has anyone tried a natural approach

Hi all, I am new to the group, been on warfarin for about a year and a half - and had a bleeding ulcer a few months back. I am now thinking that I might like...

Hi all, I am new to the group, been on warfarin for about a year and a half - an...

christylee

•13 years ago

5 Replies

Antibiotics

Hi I am arrlergic to a lot of antibiotics and the only group I know i can take is cefalexins. When i went to my GP on friday it was a new one who I hadnt seen...

Hi I am arrlergic to a lot of antibiotics and the only group I know i can take i...

margaretjo

•13 years ago

3 Replies

Len Berk - APLSUK

Hi All, I recived the below sad news about a person who use to be a Moderator on the APLSUK site and i know a number of you are/were members so i thought...

Hi All, I recived the below sad news about a person who use to be a Moderator...

paddyandlin

•13 years ago

2 Replies

Family Tree

I had a genetic counselling session with a neurologist. I copied my maternal family tree and under each relative I put what medical conditions I knew they...

I had a genetic counselling session with a neurologist. I copied my maternal f...

anje

•13 years ago

8 Replies

Warfarin andBleeding

I was taken into hospital 3 days ago with a PR bleed, first they did was stop my warfarin. Uderstandable I suppose, but they will still not let me take it, am...

I was taken into hospital 3 days ago with a PR bleed, first they did was stop my...

Sue2803

•13 years ago

18 Replies

Does anyone take melatonin?

Just wondering if anyone here takes melatonin for sleep or other reasons? I hear its good for that and looking for a natural remedy if there is one.

Just wondering if anyone here takes melatonin for sleep or other reasons? I hear...

Hidden

•13 years ago

15 Replies

Labour and Hughes

I have Hughes and am treated with clexane x2 daily and aspirin. wondering if anybody has had this through pregnancy and whether or not it effected delivery of...

I have Hughes and am treated with clexane x2 daily and aspirin. wondering if any...

kay19987

•13 years ago

10 Replies

feeling a little sad.

I just feel stressed all the while! :( I know I have had a few things going on family wise which has upset me, plus losing my beloved Missy (rat), then...

I just feel stressed all the while! :( I know I have had a few things going o...

Suzypawz

•13 years ago

12 Replies

Hand pain and raised blood vessels?

Hi all, I'm still awaiting my appointment at St T's (early January thankfully) so haven't been formally diagnosed yet, but I have tested positive on...

Hi all, I'm still awaiting my appointment at St T's (early January thankfully) s...

Andy_A

•13 years ago

8 Replies

A FALL DOWN THE STAIRS HAS LEFT ME WITH A MASSIVE BRUISE AND BROKEN RIBS

Well last Friday, I fell down the stairs because I was thinking of a million things at the same time, and I just cannot believe how I hurt. I left it until...

Well last Friday, I fell down the stairs because I was thinking of a million thi...

daisy11

•13 years ago

7 Replies

A strange immune anomaly

I have just been diagnosed with Hughes Syndrome in the last 2 months. I am 48 yo. Have many of the general symptoms so I won't go into detail here, but it...

I have just been diagnosed with Hughes Syndrome in the last 2 months. I am 48 y...

Ohiorose

•13 years ago

4 Replies

got some interesting news

i have in the past sent info to the differnet.places, well !!!!! duke unn. at chapel hill n. carolina got back to me , they are sending people to me here in...

i have in the past sent info to the differnet.places, well !!!!! duke unn. at ch...

jetjetjet

•13 years ago

11 Replies

Life with Hughes and fibromyalgia

I am finding it so hard at the moment. It was bad enough having Hughes without getting fibrolmyalgia - I think this came on because I had four shoulder...

I am finding it so hard at the moment. It was bad enough having Hughes without ...

panda60

•13 years ago

6 Replies

My life lately

Well I haven't been around much as my whole world had sort of fallen from my hands for a moment. Its not together yet but getting there very slowly. I...

Well I haven't been around much as my whole world had sort of fallen from my han...

Hidden

•13 years ago

8 Replies

the hughies letter to santa

dear santa we all have been trying real hard to be good, so if you would read our lists that would be good,- sheena would like a new phone and computer for her...

dear santa we all have been trying real hard to be good, so if you would read ou...

jetjetjet

•13 years ago

9 Replies

My doctors surgery INR clinic has started finger stick testing is this safe?

Recently my doctors has changed from the traditional INR blood test taken from the vein to finger stick testing. Is this safe i have read that it is not...

Recently my doctors has changed from the traditional INR blood test taken from t...

beckyb

•13 years ago

8 Replies

Why are my fingers moving? Index and middle leaning towards pinky, ring pushing toward direction of thumb, pinky bending outward.

jean48

•13 years ago

3 Replies

benefits

hi i have 2 dvts in leg pe on lungs ,blocked arterie in heart ,hughes syndrome ,yeast problem,floaters in eyes ,diabities, and lupus anticoag,and ive just been...

hi i have 2 dvts in leg pe on lungs ,blocked arterie in heart ,hughes syndrome ,...

roymelt

•13 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2011

how to be taken seriously by your relatives

When antibodies are on vacation, where do they go?

What type of doctors do u see?

Neurologist Fatigue

I'le be back!!!!! Lol!! Xxxx

is it really life-threatening??

The bar with the best service

jerking arms and legs at night

plz help

Fatigue and overlapping conditions

i want to find out about treatments for hughes

sensory polyneuropathy/i

Has anyone tried a natural approach

Antibiotics

Len Berk - APLSUK

Family Tree

Warfarin andBleeding

Does anyone take melatonin?

Labour and Hughes

feeling a little sad.

Hand pain and raised blood vessels?

A FALL DOWN THE STAIRS HAS LEFT ME WITH A MASSIVE BRUISE AND BROKEN RIBS

A strange immune anomaly

got some interesting news

Life with Hughes and fibromyalgia

My life lately

the hughies letter to santa

My doctors surgery INR clinic has started finger stick testing is this safe?

Why are my fingers moving? Index and middle leaning towards pinky, ring pushing toward direction of thumb, pinky bending outward.

benefits

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