I am finding it so hard at the moment. It was bad enough having Hughes without getting fibrolmyalgia - I think this came on because I had four shoulder operations in the space of 2 yrs and 4 mths (neither of which has been wholly successful) I am disappointed that a steroid injection hasn't helped much which it usually does, but expect that is because it usually perks me up and gets rid of my viral symptoms (I also have a touch of lupus) Seeing the consultant on Friday and he might try me on Duloxatine, but not banking on it as 10mg of amitriptyline puts me to sleep!
So doing what advised and doing small regular amounts of exercise and relaxation and planning my day so that I don't overdo things and have tried to rearrange all my social and other appointments so as to have just one a day. Didn't work that way yesterday and I am exhausted today. Anything in the house is done in small stages with easy ways out if poss - today I bought some ready-peeled potatoes which will do us for two meals.
Determined not to slide down the slippery slope as I have been there before, so trying to stay positive, but it's hard when I think to what I could do just a few weeks ago.