Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for December 2011

pulse in back of leg

hi i have 2 dvts in right leg 1 in calf and 1 in thigh to pelvis ,i have started getting a pulse like feeling in back of knee like a grasshopper thats stuck,...

hi i have 2 dvts in right leg 1 in calf and 1 in thigh to pelvis ,i have started...

roymelt

•12 years ago

1 Reply

been told by st thomas that i have tested negative for aps but they suggest i go on warfarin as i have a circulation problem

i have most of the symptoms of aps hope warfrain sorts me out. will it get rid of my foggy brain?

i have most of the symptoms of aps hope warfrain sorts me out. will it get rid ...

alanpaul

•12 years ago

4 Replies

Spacing out with extreme tiredness and unable to keep eyes open

When my daughter's daily headache gets really awful she is spaced out, with extreme tiredness which makes her shut her eyes even when trying to do a task and a...

When my daughter's daily headache gets really awful she is spaced out, with extr...

MaryF

Administrator•12 years ago

7 Replies

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Charity ambassador raises awareness

Beth Willis has been a supporter of the HSF for many years, devoted lots of her own time, skills and energy and always raises awareness of Hughes syndrome. As...

Beth Willis has been a supporter of the HSF for many years, devoted lots of her ...

Hidden

•12 years ago

1 Reply

Haemorrhage/Hemorrhage Risk

Does anyone know if there are definite INR levels at which haemorrhage becomes a real concern? Additionally, what activities can lead to haemorrhages and...

Does anyone know if there are definite INR levels at which haemorrhage becomes a...

TheKid

•12 years ago

10 Replies

Is there a contact nurse at ST

As recently been referred to ST, I am just wondering whether there is a contact nurse in the department that one can speak to. I find that here in the South...

As recently been referred to ST, I am just wondering whether there is a contact ...

daisy11

•12 years ago

3 Replies

Progress aided and abetted with acid humour

Off to St Thomas' in under two weeks accompanied by my daughter who has had a daily migraine for around a year and half! Some real progress made by seeing the...

Off to St Thomas' in under two weeks accompanied by my daughter who has had a da...

MaryF

Administrator•12 years ago

7 Replies

Xmas pic' from Treacle my Hughes mascot!

Here is a little pic' of the rabbit that has trouble with her back legs & walking. She is the little 'hunny bunny' I made 'my Hughes mascot' as she...

Here is a little pic' of the rabbit that has trouble with her back legs & walkin...

Suzypawz

•12 years ago

13 Replies

Is Hughes syndrome related with other diseases

I have Anti-Phospholipids syndrome (known as Hughes syndrome) I was lucky enough to meet Dr. Hughes who did the tests for me and discovered I have the Hughes...

I have Anti-Phospholipids syndrome (known as Hughes syndrome) I was lucky enough...

dalalf

•12 years ago

9 Replies

Is anyone taking hydroxychloroquine? I need to start taking this along with my warafin. I'm new to this and scared to take new meds..

KellyO

•12 years ago

22 Replies

Quick hi!!!! :-)

Hi all just managed get data signal on silly phone.. Hope you all ok. Miss you all too. Will be back as soon as internet access sorted. Got loads of...

Hi all just managed get data signal on silly phone.. Hope you all ok. Miss you...

jessielou

•12 years ago

29 Replies

Hello from New Zealand

Hi there, I am new to this site, however familiar with APS/ Hughes Syndrome, its symptoms and difficulty in management. Recently stephanie and i...

Hi there, I am new to this site, however familiar with APS/ Hughes Syndrome,...

-jane-

•12 years ago

7 Replies

A " Letter To Family & Friends"

I think i did this before but hey it was good before so can be good again This article is also useful for understanding and explaining the difficulties of...

I think i did this before but hey it was good before so can be good again T...

paddyandlin

•12 years ago

coagucheck machine

Saw an advert in today's telegraph for Roche offering coaguchecks which can been paid for in instalments over two years. Caroline

Saw an advert in today's telegraph for Roche offering coaguchecks which can been...

panda60

•12 years ago

20 Replies

do you think stem cell research would help us have healthy bodies again

i would like to know how you were diagnosed and how you developed your first symtoms.. did anyone have any pulmonary embolism. i had three and survived...

i would like to know how you were diagnosed and how you developed your first sym...

iwasaruunergirluntil

•12 years ago

4 Replies

thanks everyone for your responses from iwas arunnergirluntil

thanks so much for your concern and willing to help. i do not have a gp but i do have a pulmonologist who i will see on wednesday next week. i have been...

thanks so much for your concern and willing to help. i do not have a gp but i ...

iwasaruunergirluntil

•12 years ago

1 Reply

So Its December!!!

Well its the second of december so we need to get in the christmas mood on the forum, what are we all doing andwho has opened an advent calender maybe we can...

Well its the second of december so we need to get in the christmas mood on the ...

paddyandlin

•12 years ago

4 Replies

New oral anticoagulants trial

One of the questions I am most asked at the charity is when we can ditch warfarin and go onto the new oral anticoagulants such as Dabigatran. Dabigatran has...

One of the questions I am most asked at the charity is when we can ditch warfari...

Hidden

•12 years ago

8 Replies

What to do when memory loss is getting worse ?

Does anyone have something they could suggest for me or that has worked for them to help with memory loss? Mine is getting worse, my MRI always shows normal,...

Does anyone have something they could suggest for me or that has worked for them...

kwise

•12 years ago

17 Replies

Does any1 have Lupus with Hughes and lives in Indiana?

Moonlightonly

•12 years ago

9 Replies

cant understand what is going on

i have antiphospholipid syndrome, initially i had a stroke, then seizures, now i have antiphospholipid syndrome, narcolrpsy and now dignosed with lupus. what...

i have antiphospholipid syndrome, initially i had a stroke, then seizures, now ...

iwasaruunergirluntil

•12 years ago

3 Replies

Fragmin

Any1 knw if fragmin has any side effects.i bn takin clexene n warfrin 2 boost inr.so plz help.

Any1 knw if fragmin has any side effects.i bn takin clexene n warfrin 2 boost in...

rach1081985

•12 years ago

4 Replies

no more clopidogrel but on warfarin

I find this APS so confusing - Up until March on Aspirin, then due to an operation told not take, then after operation Heparin, but had mini TIA so put on...

I find this APS so confusing - Up until March on Aspirin, then due to an operati...

daisy11

•12 years ago

9 Replies

Lower back pain?

For the last few weeks I have had some annoying lower back pain. At first I thought it was cramps because I was due for my cycle, but I'm now late (not...

For the last few weeks I have had some annoying lower back pain. At first I tho...

Hidden

•12 years ago

6 Replies

sheena where are you ? i am very concerned.

im very concerned that i havent seen anything from you, hope all is well its like something is missing in my life.as a person 6.5 340 lbs , i shouldnt be a...

im very concerned that i havent seen anything from you, hope all is well its li...

jetjetjet

•12 years ago

24 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2011

pulse in back of leg

been told by st thomas that i have tested negative for aps but they suggest i go on warfarin as i have a circulation problem

Spacing out with extreme tiredness and unable to keep eyes open

Charity ambassador raises awareness

Haemorrhage/Hemorrhage Risk

Is there a contact nurse at ST

Progress aided and abetted with acid humour

Xmas pic' from Treacle my Hughes mascot!

Is Hughes syndrome related with other diseases

Is anyone taking hydroxychloroquine? I need to start taking this along with my warafin. I'm new to this and scared to take new meds..

Quick hi!!!! :-)

Hello from New Zealand

A " Letter To Family & Friends"

coagucheck machine

do you think stem cell research would help us have healthy bodies again

thanks everyone for your responses from iwas arunnergirluntil

So Its December!!!

New oral anticoagulants trial

What to do when memory loss is getting worse ?

Does any1 have Lupus with Hughes and lives in Indiana?

cant understand what is going on

Fragmin

no more clopidogrel but on warfarin

Lower back pain?

sheena where are you ? i am very concerned.

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