i have in the past sent info to the differnet.places, well !!!!! duke unn. at chapel hill n. carolina got back to me , they are sending people to me here in n.h. to get some of my blood, i am i guess i am in the top 3 as far as my blood being very unique. they are interested in me going down there . i gave the doc my results over the on line system , he got right back, said he would put me in touch with the head of that dept she had a problem , getting to me . i finally got back to her, very good listener. they want to to do a family history as , other than the a.p.s. the 3 other blood disorders i have are hereditary, so i guess my brothers and sisters are also going to be tested, first they want the results of the avn tests being done friday the 9 th, i have it but they dont know to what the extent the damage is. i also asked did they get info from people other than in the states, she said they do but not to much from other countries, i asked if she would like me to put this info out to you guys ? as this a world problem ? so any one interested in talking to them let me know ? the more we can feed them trying to look for a cure, and answers there shoud be no boundaries, let me see just where this goes . i have e- mail site an phone # s, you people will want site info. they have a forum going on in a couple of months in texas i think that is largely going to address aps. maybe doc hughes knows of this? im very excited about all this, need some feed back my friends please jet
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