Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for December 2011

warfarin and fibro

I tested my inr today because I was manic yesterday and did too much and as I suspected it was too high, yet I feel totally addleheaded, so suspect the...

I tested my inr today because I was manic yesterday and did too much and as I su...

panda60

•12 years ago

6 Replies

Appointment at St T's changed again!

My July 2011 annual appointment was changed to February 14th 2012 then the time was changed. Yesterday my February appointment was changed to August 2012,...

My July 2011 annual appointment was changed to February 14th 2012 then the time ...

panda60

•12 years ago

4 Replies

also posted on BLOG

I have blood test every 90 days/per my Rheumatologist. APS and Unspecified Connective Tissue Disorder. Not sure which ones are for APS so I am including all:...

I have blood test every 90 days/per my Rheumatologist. APS and Unspecified Conne...

Hidden

•12 years ago

2 Replies

Want to take advantage of all our features? Just log in!

diagnostic testing for APS...

I have blood test every 90 days/per my Rheumatologist. APS and Unspecified Connective Tissue Disorder. Not sure which ones are for APS so I am including all:...

I have blood test every 90 days/per my Rheumatologist. APS and Unspecified Conne...

Hidden

•12 years ago

2 Replies

Professor Hughes' blog November 2011

The second warmest November on record! Another record! (at least here in the south). This time last year we were under a (record?) heavy snow fall....

The second warmest November on record! Another record! (at least here in the so...

Hidden

•12 years ago

5 Replies

Professor Hughes' blog October 2011

- October 2011 A lovely autumn – still dry in the South East. It’s hard to believe that the London Lupus Centre has been going for five years! We...

- October 2011 A lovely autumn – still dry in the South East. It’s hard ...

Hidden

•12 years ago

2 Replies

NHS blunder

I have finally got the news that I wanted to here. The NHS have admitted that they caused me to lose both my legs through their negligence. It wont bring my...

I have finally got the news that I wanted to here. The NHS have admitted that t...

Carol-Barnsley

•12 years ago

11 Replies

Going to self test today & I have some new arrivals !!

Not feeling too good over the last few days.....I know it could have been because of the gigs at the weekend......late nights & a lot of travelling. I'm going...

Not feeling too good over the last few days.....I know it could have been becaus...

Suzypawz

•12 years ago

7 Replies

16 YEAR OLD DAUGHTER HAS LUPUS, ITP AND APS

Well just gets so confusing, I and family history of APS with strokes etc and after my op in March I mentioned to the local Haem team that I was worried being...

Well just gets so confusing, I and family history of APS with strokes etc and af...

daisy11

•12 years ago

3 Replies

HI I HAVE HUGHS SYNDROME CURRENTLY ON NO MED BECAUSE DR SAID TESTS NEG AND I A IN REMISSION HAVE NOT TAKEN MEDS FOR 3 YEARS

I AM WORRIED LATELY AS I HAVE BEEN EXPERIENCING SYMPTOMS THAT ARE CONCERNING , I AM HAVING BURNING PAIN IN BOTH KNEES ,DIZZINESS/VERTIGO MUSCLE TWITCHING ,...

I AM WORRIED LATELY AS I HAVE BEEN EXPERIENCING SYMPTOMS THAT ARE CONCERNING , I...

AINS

•12 years ago

13 Replies

Plaquenil and effects on the eyes

Do any of you have experience with the effects of Plaquenil on the eye, and if so, will you please share your thoughts and outcome with me? I have recently...

Do any of you have experience with the effects of Plaquenil on the eye, and if s...

wojorox

•12 years ago

11 Replies

Heat Therapy

I was wondering who else finds heat therapy works.This does not just help aches and pains I often find that a steaming hot bath sort of wakes me out of my...

I was wondering who else finds heat therapy works.This does not just help aches ...

TJSTICKYBLOOD

•12 years ago

5 Replies

Ever feel like a fish with a 30 second memory? Starting the journey to 're-diagnosis' with a new Dr in the UK

I can't help but to laugh and then immediately feel like crying when I start relating my current memory to that of the lovable "Dorry" character from the...

I can't help but to laugh and then immediately feel like crying when I start rel...

butlertammy

•12 years ago

9 Replies

neurological symptoms

Hi I found out today I have Hughes syndrome after having 3 different elevated IgM anticardiolipin antibodies. The levels were 22, 19 and 14 so I think I'm of...

Hi I found out today I have Hughes syndrome after having 3 different elevated Ig...

miffy

•12 years ago

9 Replies

IB S TYPE OF TUMMY PAINS - CRAMPS AFTER EATING

hELLO, WELL, I WAS DIAGNOSED WITH IBS MANY MANY YEARS AGO AND THEN FOR THE LAST YEAR IT SEEMS TO HAVE GOT WORSE ON EATING. I HAD AN ENDOSCOPY (4th one this...

hELLO, WELL, I WAS DIAGNOSED WITH IBS MANY MANY YEARS AGO AND THEN FOR THE LAST ...

daisy11

•12 years ago

13 Replies

What happens if your anticardiolipin antibodies fall to negative?

My anticardiolipin antibodies tested positive 3 years ago after I had a staph infection on my legs and a clotting in my foot. Blood tests showed the...

My anticardiolipin antibodies tested positive 3 years ago after I had a staph in...

viv112

•12 years ago

6 Replies

Hi im new to this site, and was wondering if anyone has jerking of the legs? It mainly happens at night

but rarely happens in the day to. i cant controll it and it can be painful. the next day i feel like my legs are made of lead and it takes a good few hours to...

but rarely happens in the day to. i cant controll it and it can be painful. the ...

Beckyboo

•12 years ago

10 Replies

Bad tempers and sleet with an under active thryoid and stressed adrenals

Today, I have gone on to the next phase of treating my underactive thyroid, via a very well known and respected nutritonist/doctor. As I am sure if this calms...

Today, I have gone on to the next phase of treating my underactive thyroid, via ...

MaryF

Administrator•12 years ago

3 Replies

INR leveles? What is considered to be normal for people with APS?

Hi:)! I'm comming from Serbia and I wonder if the INR ranges are same in my country and in UK? I red on this forum that most of people feel much better when...

Hi:)! I'm comming from Serbia and I wonder if the INR ranges are same in my coun...

ginger_lover

•12 years ago

5 Replies

Has anyone had tinnitus as a symptom of Hughes?

siveinvan

•12 years ago

14 Replies

Hi:), I'm new to this forum.

Hi guys:)! I'm from Belgrade, Serbia. Two years ago I was diagnosed with Multiple Sclerosis after an episode of retroburbal neuritis. It was the only symptom I...

Hi guys:)! I'm from Belgrade, Serbia. Two years ago I was diagnosed with Multipl...

ginger_lover

•12 years ago

11 Replies

Happy Christmas

Wishing everybody a lovely Christmas full of festive fun, love, friendship and laughter. Love Mary F x http://www.youtube.com/watch?v=4Cbn7I70IBE

Wishing everybody a lovely Christmas full of festive fun, love, friendship and l...

MaryF

Administrator•12 years ago

6 Replies

Frustrating times

Hi one and all Sorry I have been away for a while - I do keep dipping in and reading your blogs and comments but I have been rather ego-centric for a while...

Hi one and all Sorry I have been away for a while - I do keep dipping in and ...

Hidden

•12 years ago

6 Replies

Merry Christmas to you too (a reply pic to Suzypawz)

I think if I hadn't been carrying a carrot off camera Om would have been embarrassed! I'm not sure if I ever mentioned that his name means Hope in Persian...

I think if I hadn't been carrying a carrot off camera Om would have been embarra...

Hidden

•12 years ago

8 Replies

Family doesnt understand the symptoms of my disease. Any ideas how to get them to understand?

I am frequently reffered to as lazy, or told that i just need to get some exercise. My family, after repeated attempts to help them understand my condition,...

I am frequently reffered to as lazy, or told that i just need to get some exerci...

EMT434

•12 years ago

9 Replies

Social security disability?

I have applied for social security disability and after 11 months was denied even though I can no longer work as an EMT and I am extremely fatigued, have...

I have applied for social security disability and after 11 months was denied eve...

EMT434

•12 years ago

8 Replies

Anybody have purple toes ...

Every night the toes on my left foot go ice cold and purple....dr says it is normal for APS patients but mine are starting to stay purple longer. ANyone else...

Every night the toes on my left foot go ice cold and purple....dr says it is nor...

EMT434

•12 years ago

14 Replies

Merry xmas from me & my pets xx

In case I dont round to it later....or forget!!! :) MERRY XMAS!!!!!! From Sue & all her lovely furry critters!! xx ( This is Salem by...

In case I dont round to it later....or forget!!! :) MERRY XMAS!!!!!! ...

Suzypawz

•12 years ago

12 Replies

Feeling rather sorry for myself

I am feeling pretty awful, the amount of pain i feel daily is increasing and im stuggling to cope which in turn makes me feel a bit low. About 14 yrs ago i was...

I am feeling pretty awful, the amount of pain i feel daily is increasing and im ...

heavenly

•12 years ago

7 Replies

Anaemia or not. Seen a haematologist today.

Basically went to see haemo today because I wanted to alter from warfarin back to heparin and the GP said he was out of his depth. His words. Well, never seen...

Basically went to see haemo today because I wanted to alter from warfarin back t...

Jade

•12 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for December 2011

warfarin and fibro

Appointment at St T's changed again!

also posted on BLOG

diagnostic testing for APS...

Professor Hughes' blog November 2011

Professor Hughes' blog October 2011

NHS blunder

Going to self test today & I have some new arrivals !!

16 YEAR OLD DAUGHTER HAS LUPUS, ITP AND APS

HI I HAVE HUGHS SYNDROME CURRENTLY ON NO MED BECAUSE DR SAID TESTS NEG AND I A IN REMISSION HAVE NOT TAKEN MEDS FOR 3 YEARS

Plaquenil and effects on the eyes

Heat Therapy

Ever feel like a fish with a 30 second memory? Starting the journey to 're-diagnosis' with a new Dr in the UK

neurological symptoms

IB S TYPE OF TUMMY PAINS - CRAMPS AFTER EATING

What happens if your anticardiolipin antibodies fall to negative?

Hi im new to this site, and was wondering if anyone has jerking of the legs? It mainly happens at night

Bad tempers and sleet with an under active thryoid and stressed adrenals

INR leveles? What is considered to be normal for people with APS?

Has anyone had tinnitus as a symptom of Hughes?

Hi:), I'm new to this forum.

Happy Christmas

Frustrating times

Merry Christmas to you too (a reply pic to Suzypawz)

Family doesnt understand the symptoms of my disease. Any ideas how to get them to understand?

Social security disability?

Anybody have purple toes ...

Merry xmas from me & my pets xx

Feeling rather sorry for myself

Anaemia or not. Seen a haematologist today.

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