Hi, I was finally diagnosed with Hughes Syndrome 16 years ago after 15 miscarriages. My daughter who is now 27 is experiencing a lot of classic symptoms like migraines, pins and needles, mild anaemia, visual disturbances, fatigue and foggy brain. But also has problems with her bowels and bladder amongst other things.
I have spoken to Professor Hughes and he suggested trying a low dose aspirin which she has and made no difference.
The GP has tested her twice for APS which has returned negative so he won't refer her onto a specialist. She is in a long term relationship and is getting quite anxious about trying for a family.
Can anyone suggest what we should do next.