Hi there everyone, my name is Beverley and I'm new here. I'm writing this post to get ideas of how I can cope with what is happening to me at the moment.
I'm 45 and pregnant (16 weeks) for the first time in my life. Four weeks ago I developed a blood clot in a superficial vein in my leg. As this was unprovoked, and due to my history, the team looking after me went looking for a reason and the test came back Lupus Anticoagulant Positive. I know I will need to have a repeat blood test to ensure this was not a false positive, but due to my history everything is pointing to a diagnosis of Antiphospholipid Antibody Syndrome.
In June 2013 I had a serious accident which resulted in multiple fractures and a two week hospital stay. 5 weeks after my accident I developed a Saddle Pulmonary Embolism. I had no warning that a crisis was unfolding. Fortunately I rang the ambulance in time and lived to tell the story. At the time it was regarded as a once off clot provoked by the risk factors that came from the injury.
Fast forward to now. The provisional diagnosis has answered a lot of questions and this risk is being well managed ( yes I have turned into a pin cushion taking 160ml of Clexane per day).
What I am struggling with is the fear of another catastrophic blood clot. I remained conscious throughout my whole Saddle PE experience and so I have very vivid memories of struggling to breath and the fear that this induced. I can't begin to tell you how frightened I am of having another clot. I wish I was ignorant of the impact of serious blood clots, but that is not the case.
How do you cope with this?
I would love to hear from anyone who has survived a serious clot, particularly if they have also had a pregnancy.