Is there a APS support group in South West London?

I live in Putney and have been diagnosed with APS since October 2008, when I suffered a TIA. I am under the care of Dr Cohen at UCH and try to maintain INR of 3-4 by taking Warfarin. But the levels of INR have not been stable for last 6 months or so. I would find it helpful to go to support group in my area.

[MaryF Administrator]

Hi currently the only one is at St Thomas' Hospital every few weeks, or nearby, it is normally flagged up on here well in advance of the next date. MaryF

[london-lass in reply to MaryF]

Hi there

I used to run the London Group, and lived in Putney, but have now moved to Cornwall! All that time I was sure there must have been more local people!

There is still a remnant of the London group that meet once every 3 months at St Thomas, organized by a chap called Richard. Kate at the charity could help you. If you can make it to patients Day at St Thomas in May, I could meet you and introduce you to some of my gang! They were a great crowd. Or if you want to send me a personal message , please do.

As Prof Hunt said, it is par for the course for INRs to fluctuate. Mine still does! You have to get the nurses on side, or consider self testing.

Good luck with it all

Blessings Ann

[Hidden in reply to london-lass]

Hello Ann - I would love to come along to the patients' day at St Thomas. What date in May is it? Would be great to meet your pals but equally great to meet up with you. Putters ex-resident and APS. What are the chances?!!

Best wishes,

Liz

[london-lass in reply to Hidden]

Hi Liz

It is May 13th...... you can apply via the charity website.

It would be grand to meet. If you have a query or question about APS in the meantime, do pm me.

Blessings Ann