Sticky Blood-Hughes Syndrome Support
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Good morning every peoples

Well today I'm very excited I'm going to see the Hughes specialist in my area - it's took lots of battling to get to see her but I got there eventually I really hope she can help me - she's a Hughes and lupus specialist so instead of going between loads of different departments I can hopefully get everything covered in the one place - I can't however think of any questions to ask but I think I'll just roll with it and see what happens - my brain fog this morning has made me proper dizzy so I'm taking my mum between the two of us I should be able to take everything in

I shall update things once I've seen her

wishing you all a happy Friday

Beverley x

4 Replies

Good luck hope all goes well.


Good Luck from Stockholm!!



Good news, travel well and I hope you get some good answers that improve your medical care. MaryF


I've no idea what tests are being done but 12 vials of blood have been taken from me to test me thoroughly - I'm also being given an appointment for an MRI scan before they determine whether I need any stronger pain meds and whether the hydroxychloroquine is doing its job - I'm being referred onto the nurse to give me some help to control my symptoms rather than just cope with them - left the hospital feeling very relieved that I'm being tested properly and so far being cared for properly - my next appointment isn't until July cos the MRI scan can take a while but hopefully by then I'll have even more clarity as to what's going on and the proper support 😊 thank you all for your well wishes

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