Hi Everyone, Greetings. So from my previous posts I have stated I have been diagnosed with MS but also tested positive for Cardiolipin IgG (35). I have not been diagnosed with APS but I really have not been able to see a doctor who knows anything about it. I even printed off the list from here and gave it to my NP who I see for primary care but she is saying a hematologist is now added to the clinic so she has referred me to see him. I don't have an appointment yet.
So, after a second opinion a hysterectomy has been recommended for me. I am now worried and fearful. A major surgery already has risk of clots developing and being predisposed to clots I am so afraid of dying from clots doing such a surgery. I believe I do have APS and maybe I don't even have MS. I believe an APS patient doing surgery should have a specialist working with the surgeon pre, during and post surgery.
I do not know what else to do to get the proper care regarding the APS and I don't have money to travel to the UK. Has anyone had major surgery with APS and is there much to fear? Thank you.