Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for October 2013

Routine bloods back

I'm a bit disappointed as my bloods are back and thyroid is 1.46 so T3 and T4 will not be done. Shame. My ferritin is still 5 and haemoglobin 11.5. I actually...

I'm a bit disappointed as my bloods are back and thyroid is 1.46 so T3 and T4 wi...

Jade

•11 years ago

6 Replies

Does anyone know if it's ok or not to take supplements such as zinc, echinaecea, everning primrose, cod liver oil etc if you have APS?

Rizz

•11 years ago

9 Replies

optic neuropathy,no affarent

Hya all,ive seen neurology at guys hospital,and they are having me for three days for tests/scans etc. When i received a copy of my GP letter confirming my...

Hya all,ive seen neurology at guys hospital,and they are having me for three day...

emmaj

•11 years ago

7 Replies

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Inflamed eye muscles

Anyone had this or know if it is connected to Hughes? I had a vitreous detachment 7 weeks ago which has left me with horrible floaters but the last few days...

Anyone had this or know if it is connected to Hughes? I had a vitreous detachme...

panda60

•11 years ago

3 Replies

Gluten free progress

Hi I thought I would report back on my experience of going gluten free. Thank you to all who encouraged me. It has definitely made a big difference. I have...

Hi I thought I would report back on my experience of going gluten free. Thank yo...

Annslack

•11 years ago

13 Replies

Hi to new members...& everyone else too! :)

Hi to all our new members by the way...I have had to take time out due to personal problems but am back now :) so I havn't had the chance yet to say hi to...

Hi to all our new members by the way...I have had to take time out due to person...

Suzypawz

•11 years ago

7 Replies

Trying to concieve

Hi I was diagnosed with aps after having 5 miscarriages in a row. I had no problems concieving just couldnt maintain the pregnancies. Since starting baby...

Hi I was diagnosed with aps after having 5 miscarriages in a row. I had no probl...

sarahlou1801

•11 years ago

6 Replies

Has anyone else had problems with an employer? Is APS covered by the Equalities Act?

I have been told that I face 'management action' for exceeding the acceptable level of sickness under my works attendance management policy (6 days per year)...

I have been told that I face 'management action' for exceeding the acceptable le...

BTR1963

•11 years ago

12 Replies

No miscarriages or DVT or blood clots but have confirmed APS and many other symptoms, is anyone else the same and are blood clots likely?

These are my symptoms and I would be interested to hear if others have had any or all of these and how they have progressed. I have been diagnosed with APS...

These are my symptoms and I would be interested to hear if others have had any o...

Kazzapeaky

•11 years ago

6 Replies

How often should blood tests be done. I have APS & Sjogrens.Most recently some new symptoms but still no blood tests.

I am an NHS patient at St.Thos. Prior to that was a private patient at London Bridge, where bloods were done every six months or a year apart.

I am an NHS patient at St.Thos. Prior to that was a private patient at London Br...

Zamalek

•11 years ago

2 Replies

Has anyone had problems following a titanium dental implant?

Over the course of this year I have been having a dental implant installed. When I look back over my medical diary, I can see that about 3 days after every...

Over the course of this year I have been having a dental implant installed. Whe...

Coppernob

•11 years ago

16 Replies

Tengo sindrome de hughes desde hace 20 años, tres abortos, 2 trombosis en las piernas, y otros sintomas. Tomo acenocumarol,

reacciones con el tiempo, tiempo de vida de para mi, y si es hereditario

monicajimenez

•11 years ago

12 Replies

Any relations of Hughes Syndrome with severe pms symptoms?

Hi you all, this question came from the blog. A reader asked me if it is there any relations between aps and increase of pain during pms? As far as I know...

Hi you all, this question came from the blog. A reader asked me if it is there a...

BrazilianBade

•11 years ago

6 Replies

Any relation with having APS and high creatinine levels?

Hi all, I've got APS and had two blood tests in the past month that have come back with high creatinine levels. No history of kidney disease in my family. I...

Hi all, I've got APS and had two blood tests in the past month that have come ba...

Louise_Davies

•11 years ago

6 Replies

Clexane/heparin

Even though all the antibody tests are not yet in, I have had a copy of a really helpful letter from the dr I saw at St T's. One of the many things she...

Even though all the antibody tests are not yet in, I have had a copy of a really...

stillwaiting

•11 years ago

4 Replies

Flu without the Cold?

3 weeks ago, I joined this group following TIA or a hemiplegic migraine, the jury is still out on that, either way, I was sent home packing. Following that,...

3 weeks ago, I joined this group following TIA or a hemiplegic migraine, the jur...

Simon_james

•11 years ago

10 Replies

Have decided to start recording and writing my struggle either to look for positive stories or help others if I am successful.

Hi everyone, I shared a bit of my story a few months back, then left the site (due to severe health anxiety) and have now rejoined and generally feeling...

Hi everyone, I shared a bit of my story a few months back, then left the site (d...

Hopingforababy

•11 years ago

4 Replies

Travel Insurance -any recommendations?

As yet I am undiagnosed, I have had one positive LA and I am just waiting for second set of tests. All the usual policy documents seem to say medical...

As yet I am undiagnosed, I have had one positive LA and I am just waiting for se...

PepperT

•11 years ago

9 Replies

Confusing S-APS/SLE diagnosis/symptoms? Spasmodic dysphonia part of APS/SLE?

I get spasmodic dysphonia each time I have some sort of attack. I'll kinda zone out, my legs will go cold and then my throat will feel like someone is...

I get spasmodic dysphonia each time I have some sort of attack. I'll kinda zone ...

medsoph

•11 years ago

2 Replies

pleurosy, anything I can do to speed up recovery?

I have just got back from A%E, where they told me I have pleurosy they advised regular paracetamol and ibuprofen and said it would take some time to get......

I have just got back from A%E, where they told me I have pleurosy they advised r...

donnabrain

•11 years ago

2 Replies

Having a difficult time these last few months.....

my sight has deteriorated to a point where i can't see anything in my left eye,and now I'm losing the sight in my right eye. After my last consultation at my...

my sight has deteriorated to a point where i can't see anything in my left eye,a...

popshaw21

•11 years ago

9 Replies

Catch up

Just a catch up. I got to see my G.P recently who agreed to send a referral to Prof Bruce who specializes in APS/Hughes in Manchester. In the meantime I went...

Just a catch up. I got to see my G.P recently who agreed to send a referral to ...

crista1

•11 years ago

24 Replies

how do I know

how do I know if I have lupus aswell as aps plz

rach1081985

•11 years ago

9 Replies

A big thank you to Paddy

Paddy is having a break from doing ADMIN... and may be back in the future, but will remain and active member on here. I just wanted to thank you for all your...

Paddy is having a break from doing ADMIN... and may be back in the future, but w...

MaryF

Administrator•11 years ago

12 Replies

Newly Diagnosed

I am 51 and have had 2 blood clots in the past 3 weeks. I am on Arixtra injections daily for at least 3 months. I was just diagnosed with Primary...

I am 51 and have had 2 blood clots in the past 3 weeks. I am on Arixtra injecti...

Hidden

•11 years ago

24 Replies

B12 deficiency

I received another appointment from St Thomas'. I asked if it had been sent in error as I have been discharged. Was told it was a follow up re bloods taken -...

I received another appointment from St Thomas'. I asked if it had been sent in e...

stillwaiting

•11 years ago

6 Replies

Some Thyroid Information

So many of us appear to have Thyroid issues, and in the main they often do not get picked up. I had to go outside of the NHS and do detailed tests where it...

So many of us appear to have Thyroid issues, and in the main they often do not g...

MaryF

Administrator•11 years ago

4 Replies

Anyone experience muscle spasms all over their body? Also feeling faint and shakey almost like a lack of sugar, but eating doesn't help!

Hi - I am an APS and Lupus patient. I have recently started taking Plaquenil (6 months). I have been experiencing muscle spasms and feeling shakey and faint...

Hi - I am an APS and Lupus patient. I have recently started taking Plaquenil (6...

JMA_10

•11 years ago

8 Replies

During the last 6 months my fingernails have gone from being normal to full of vertical ridges. Some nails are worse than others has anyone

else experienced this got any ideas on the cause? Thank you

annie330

•11 years ago

20 Replies

TECHNICAL ISSUES GOING ON WITH HU PLATFORM

If we are not answering you questions, or there is a lack of commenting on posts be patient.... the activity section is down... I gleaned this via another...

If we are not answering you questions, or there is a lack of commenting on posts...

MaryF

Administrator•11 years ago

5 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2013

Routine bloods back

Does anyone know if it's ok or not to take supplements such as zinc, echinaecea, everning primrose, cod liver oil etc if you have APS?

optic neuropathy,no affarent

Inflamed eye muscles

Gluten free progress

Hi to new members...& everyone else too! :)

Trying to concieve

Has anyone else had problems with an employer? Is APS covered by the Equalities Act?

No miscarriages or DVT or blood clots but have confirmed APS and many other symptoms, is anyone else the same and are blood clots likely?

How often should blood tests be done. I have APS & Sjogrens.Most recently some new symptoms but still no blood tests.

Has anyone had problems following a titanium dental implant?

Tengo sindrome de hughes desde hace 20 años, tres abortos, 2 trombosis en las piernas, y otros sintomas. Tomo acenocumarol,

Any relations of Hughes Syndrome with severe pms symptoms?

Any relation with having APS and high creatinine levels?

Clexane/heparin

Flu without the Cold?

Have decided to start recording and writing my struggle either to look for positive stories or help others if I am successful.

Travel Insurance -any recommendations?

Confusing S-APS/SLE diagnosis/symptoms? Spasmodic dysphonia part of APS/SLE?

pleurosy, anything I can do to speed up recovery?

Having a difficult time these last few months.....

Catch up

how do I know

A big thank you to Paddy

Newly Diagnosed

B12 deficiency

Some Thyroid Information

Anyone experience muscle spasms all over their body? Also feeling faint and shakey almost like a lack of sugar, but eating doesn't help!

During the last 6 months my fingernails have gone from being normal to full of vertical ridges. Some nails are worse than others has anyone

TECHNICAL ISSUES GOING ON WITH HU PLATFORM

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