Routine bloods back: I'm a bit... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,414 members10,623 posts

Routine bloods back

Jade profile image
Jade
6 Replies

I'm a bit disappointed as my bloods are back and thyroid is 1.46 so T3 and T4 will not be done. Shame.

My ferritin is still 5 and haemoglobin 11.5. I actually feel as though it's lower so looks like the overall condition is causing my problems.

I am doing a steroid trial this month, I have an 8 day tapered trial. Let's hope it help my new migraines and joint pain, fatigue etc

Written by
Jade profile image
Jade
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Manofmendip profile image
Manofmendip

Hi Jade

Thanks for updating us.

Who manages your APS?

Best wishes.

Dave x

Jade profile image
Jade

Well I see Professor Hughes, it was his idea to try a steroid trial for my new symptoms, which may be age, lupus or sjogrens related.

I started to see him again last year at London Bridge after managing alone for 7 years as my warfarin clinic refused to monitor me. My GPs were happy to leave me to manage.

Jade that seems harsh to leave you to manage on your own. Can I ask what T3 / T4 tests are? I had my thyroid blood results back yesterday and it was 1.26. I was told that was well within range? The nurse didn't have time to go through it so I was going to make a telephone appointment with GP.

Lexi_Img profile image
Lexi_Img

Does anyone have wrist pain?

Thanks

Lexi

Jade profile image
Jade

Lissylou I don't know a lot but I understand T3 and T4 can tell us more about how much thyroxine is circulating in our bodies as opposed to TSH which is a hormone doing the work of stimulating thyroid production. If the TSH is a number above 3.0 or 5.0 depending on which study you read then it shows your body is basically working hard to produce more thyroxine.

I have been tested regularly for about 20 years as I have the symptoms but to no avail.

As for being left alone my hospital clinic refused to see me if I used the machine I bought on Orofessor Hughes advice, so me an my GP decided I could manage

Now with all the threats of warfarin removal from us I am happy to stay in the shadows.

in reply toJade

Oh I see, sorry I mis-read yoir post thinking that you were totally on your own with no support.

Not what you're looking for?

You may also like...

Bloods

Hi I was wondering if any of you have difficulty having blood taken and whethe this is something to...
margaretjo profile image

Small Stroke following routine Bowel Procedure

Hi guys, long time no speak I hope my post finds you all doing well? I was diagnosed with APS...
DeanJ profile image

Statins

Hi everyone, roughly 3 years ago after having a dreaded CAPS episode (hospitalised for 6 months in...
lloydyuk profile image

Help interpreting bloods

Hi Please see my thrombopheilia screen attached. The doctor says results as normal but there are...
Holly100792 profile image

Seeing my rheumy today who may prescribe Plaquinel. What to expect?

Hi all, Like so many of us I've had a long journey to dx. 9 years and many consultants to be...
Bonnie39 profile image

Moderation team

See all
HollyHeski profile image
HollyHeskiAdministrator
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.