Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,378 members • 10,571 posts

All posts for April 2012

Hello I have Hughes Syndrome!

I found out around 5 years ago that I had Hughes Syndrome, this was due to me reading a article in a magazine and realising i had it. Ten years ago i had a...

I found out around 5 years ago that I had Hughes Syndrome, this was due to me re...

kittykat2881

•12 years ago

32 Replies

Does phlebitis in surface veins show up in an ultrasound?

I have had a couple of leg venous ultrasounds, which I passed with flying colors, in the past year. But recent developments -- pain goes away with higher INR,...

I have had a couple of leg venous ultrasounds, which I passed with flying colors...

GinaD

•12 years ago

2 Replies

Latest hospital trip

Well I see various consultants and yesterday went armed with my usual questions and update on latest visit to ST T, but I did not get half through what I...

Well I see various consultants and yesterday went armed with my usual questions ...

daisy11

•12 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Having a breast biopsy surgery on the 27th and need your thoughts....

Hello all... I am scheduled for a surgical breast biopsy on the 27th. I have had minor work done by the dentist but have not had any surgeries since I have...

Hello all... I am scheduled for a surgical breast biopsy on the 27th. I have...

pumpkincake

•12 years ago

9 Replies

Corby radio interview link !!!

Hi here is a link to the radio interview I diid in Corby.....at last I recieved the link!!!!! :) Time to run & hide now as I'll be embarased of a couple of...

Hi here is a link to the radio interview I diid in Corby.....at last I recieved ...

Suzypawz

•12 years ago

29 Replies

phebitis

Hi Could you please help? Is Phlebitis associated with Hughes?

Stannington-lad

•12 years ago

6 Replies

A huge "THANK YOU" to all Admin and Bloggers from us here in Victoria , Australia!

On behalf of my daughter, Julia; and my wife and lastly, myself , I wish to extend to you all our gratitude and thanks for supplying such wonderful, accurate...

On behalf of my daughter, Julia; and my wife and lastly, myself , I wish to exte...

WayneL

•12 years ago

18 Replies

drooping face

hi i have been a member on this site for 6 months but never wrote anything,so here goes... i got diagnoses with aps 6 months ago after having several...

hi i have been a member on this site for 6 months but never wrote anything,so he...

mushroom

•12 years ago

10 Replies

Is anyone on Fragmin and need financial assistance with buying it?

Hi all...I just have to pass this on...I am waiting to hear back to see if I qualify for this assistance. Crossing EVERYTHING I have!!! This is from the...

Hi all...I just have to pass this on...I am waiting to hear back to see if I qua...

pumpkincake

•12 years ago

8 Replies

An update on my DLA appeal

My file went to a nurse ao thw DWP could review my claim..... this is what the nurse said after reviewing my 100 pages of medical and photographic evidence...

My file went to a nurse ao thw DWP could review my claim..... this is what the n...

TJSTICKYBLOOD

•12 years ago

19 Replies

raised parathyroid hormone

Good afternoon to all, Yesterday I went to GP to discuss my vitamin D levels as I had some blood taken a couple of weeks ago to check this. Anyway, the...

Good afternoon to all, Yesterday I went to GP to discuss my vitamin D levels as...

aubretia

•12 years ago

7 Replies

Genetic Mutations?

Since Dr. Hughes is on the cutting edge of this disease, and since some of you have seen him, I am wondering if he routinely requests genetic testing after a...

Since Dr. Hughes is on the cutting edge of this disease, and since some of you h...

TheKid

•12 years ago

6 Replies

Re: Blood Flutters with Hughes Syndrome

Hi Everyone, I just wondered if anyone has experiences of fluttering of blood within in the body. I am not really sure how to explain it.They last a few...

Hi Everyone, I just wondered if anyone has experiences of fluttering of bloo...

tAigers

•12 years ago

36 Replies

An updated version of 'my original story blog' - Goodness me I think I may have stage fright etc!

Goodness me, I may have 'stage fright' I am in my forties, and have muddled along bringing up children, helping with the family business and fending...

Goodness me, I may have 'stage fright' I am in my forties, and have m...

MaryF

Administrator•12 years ago

20 Replies

Jovithon with me & Sheena!!

Over Friday 13th & Saturday 14th April our Bon Jovi uk were doing a charity event where they played in 2o pubs in the 2 days!!! It was for a children's...

Over Friday 13th & Saturday 14th April our Bon Jovi uk were doing a charity even...

Suzypawz

•12 years ago

19 Replies

Shedding of skin

Hi to every one. Hope every one is well? I have a question? Is it normal for those who have APS/Sticky Blood to start shedding skin? The reason for asking...

Hi to every one. Hope every one is well? I have a question? Is it normal for ...

Stannington-lad

•12 years ago

13 Replies

Sore throats

Hi every one I was just wondering if anyone gets repeat sore throats. I'm getting them once a month at the moment at it worries me or could this just be a...

Hi every one I was just wondering if anyone gets repeat sore throats. I'm gettin...

Moonbug

•12 years ago

8 Replies

Anyone else had major joint pain and carpal tunnel symptoms when pregnant?

Hi everyone, I'm currently about 15 weeks pregnant with my 8th pregnancy (only have 1 child). With my daughters pregnancy I suffered with carpal and tarsal...

Hi everyone, I'm currently about 15 weeks pregnant with my 8th pregnancy (only h...

kateb81

•12 years ago

5 Replies

Anyone having balance problems with primary APS? I'm afraid I"m going to fall.

jean48

•12 years ago

15 Replies

Is anyone here on disability for primary APS?

jean48

•12 years ago

5 Replies

Motivated again to become healthier after recent hosp admissions thank goodness for this site!!

My start In mid jan with personal trainer better eating habits came to a halt after a cruise in feb after losing 8 pounds on a high with exercise my inr back...

My start In mid jan with personal trainer better eating habits came to a halt af...

kathyD64

•12 years ago

8 Replies

Re: APS diagnosis

Hi there, Just wondered is it standard procedure to be waiting 6 months for a diagnosis on APS. I have been told that I have the APS strain, and I am not sure...

Hi there, Just wondered is it standard procedure to be waiting 6 months for a di...

tAigers

•12 years ago

19 Replies

Has Prof Hughes posted a page somewhere that we could refer A&E people to for a brief synopsis of the condition?

WayneL

•12 years ago

16 Replies

Hi is the Coagucheck s system current? & can you get the strips for this machine

Hi all i really want to test my own inrs and will be seeing gp on wednesday to check if i can get the lancets and strips on prescription. I got a supporting...

Hi all i really want to test my own inrs and will be seeing gp on wednesday to c...

kathyD64

•12 years ago

6 Replies

Another trip to the Emergency room gone bad...

I landed in the emergency room this morning. I was sitting at my desk reading the computer screen and BAM...felt like someone just came and pushed my forehead...

I landed in the emergency room this morning. I was sitting at my desk reading t...

pumpkincake

•12 years ago

16 Replies

Friday the 13th stories & superstitions.

Not sure if it's a North America thing but Friday the 13th is supposed to be an unlucky day. Anyone have bad luck today or any horror stories? So far I left my...

Not sure if it's a North America thing but Friday the 13th is supposed to be an ...

SassyOne

•12 years ago

6 Replies

16 YEAR DAUGHTER has stopped Aspirin on advice of doctor - now she has headaches

Well, she has been on long term aspirin for over 5 years and then her periods started an she has been heavy with them, and so advised to stop he aspirin, but...

Well, she has been on long term aspirin for over 5 years and then her periods st...

daisy11

•12 years ago

8 Replies

Statins?

Any of you guys who experience mental fog or muscle pain take Statins?

Hidden

•12 years ago

14 Replies

Prof Graham Hughes' April blog

A wet bank holiday. An ‘indoors’ day. Shopping? No. Go to watch Charlton Athletic (my wife’s favourite team)? Neither of us keen to get wet and cold. So,...

A wet bank holiday. An ‘indoors’ day. Shopping? No. Go to watch Charlton Ath...

Hidden

•12 years ago

13 Replies

My diagnosis

Hi all, I am new to the site and this is the second time I have tried to post this so fingers crossed it works this time! I suffered a DVT back in 1998 when...

Hi all, I am new to the site and this is the second time I have tried to post th...

Hidden

•12 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2012

Hello I have Hughes Syndrome!

Does phlebitis in surface veins show up in an ultrasound?

Latest hospital trip

Having a breast biopsy surgery on the 27th and need your thoughts....

Corby radio interview link !!!

phebitis

A huge "THANK YOU" to all Admin and Bloggers from us here in Victoria , Australia!

drooping face

Is anyone on Fragmin and need financial assistance with buying it?

An update on my DLA appeal

raised parathyroid hormone

Genetic Mutations?

Re: Blood Flutters with Hughes Syndrome

An updated version of 'my original story blog' - Goodness me I think I may have stage fright etc!

Jovithon with me & Sheena!!

Shedding of skin

Sore throats

Anyone else had major joint pain and carpal tunnel symptoms when pregnant?

Anyone having balance problems with primary APS? I'm afraid I"m going to fall.

Is anyone here on disability for primary APS?

Motivated again to become healthier after recent hosp admissions thank goodness for this site!!

Re: APS diagnosis

Has Prof Hughes posted a page somewhere that we could refer A&E people to for a brief synopsis of the condition?

Hi is the Coagucheck s system current? & can you get the strips for this machine

Another trip to the Emergency room gone bad...

Friday the 13th stories & superstitions.

16 YEAR DAUGHTER has stopped Aspirin on advice of doctor - now she has headaches

Statins?

Prof Graham Hughes' April blog

My diagnosis

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