Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for April 2012

If you could ask the specialists anything at all what would you want to know?

I am trying to put together something to send to some of the APS/Hughe's and Lupus specialists, docs, researchers and professors of things that patients really...

I am trying to put together something to send to some of the APS/Hughe's and Lup...

Hidden

•12 years ago

14 Replies

Is APS a life threatening illness

please could the answer include real evidence ie leaflet number or web address, page number etc..thankyou

please could the answer include real evidence ie leaflet number or web address, ...

Rhian21

•12 years ago

11 Replies

bblood donation

margaretjo

•12 years ago

9 Replies

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Sad day.... another angel has joined its siblings :-(

Well I went to hospital for my 16 week check up.... wonderfully everything had been going well with pregnancy number 8 until today... saw midwife first off and...

Well I went to hospital for my 16 week check up.... wonderfully everything had b...

kateb81

•12 years ago

32 Replies

How are you affected by a high INR?

I had my INR check today and thought it would be low, around 3.4ish as I felt very tired. I didn't have any other APS problems though, but felt sure it was...

I had my INR check today and thought it would be low, around 3.4ish as I felt ve...

DelH

•12 years ago

10 Replies

Migraine and passing out

Hi all I was just wondering today I woke with a slight headache and thought nothing of it I got into work and it started to pound really bad next thing I know...

Hi all I was just wondering today I woke with a slight headache and thought noth...

Moonbug

•12 years ago

5 Replies

Herditory

Do any of you know whether apls is passed down the family. Im sure my mother had it but she died in the early 80s before there was such a thing as apls. Why Im...

Do any of you know whether apls is passed down the family. Im sure my mother had...

margaretjo

•12 years ago

4 Replies

d Dimer blood test

I have just returned home from yet another hospital stay, this one only short thank heavens, I had thought I was getting to grips a bit with this apls but ive...

I have just returned home from yet another hospital stay, this one only short th...

margaretjo

•12 years ago

5 Replies

I found this Webinar on APS ...clinical but interesting

I came across this Webinar that was given by the American Society of Hematology last year. It is an hour long and three doctors go through the latest on...

I came across this Webinar that was given by the American Society of Hematology ...

pumpkincake

•12 years ago

6 Replies

Do you suffer from back muscles that are hard as stone?

I get horrid aches in my back that is one of the causes of my migraines., My back muscles are like stone ? Anything to do with the thickness of the blood?. I...

I get horrid aches in my back that is one of the causes of my migraines., My bac...

Danimgw

•12 years ago

6 Replies

help i keep asking a big question but it gets nowhere

Hi all I was diagnosed 11yrs ago and it was recommended that my children were screened for a wonky prothrombin gene and if they were negative then they were...

Hi all I was diagnosed 11yrs ago and it was recommended that my children were s...

shakes

•12 years ago

7 Replies

Atherosclerosis and Hughes Syndrome??

I found out last week that I have atherosclerosis too now in the carotid arteries. Seems like this is connected with Hughes/APS. Does anyone here have...

I found out last week that I have atherosclerosis too now in the carotid arterie...

pumpkincake

•12 years ago

8 Replies

is Hughes syndrome and crohn's disease linked ?

My mum has crohns disease she was saying its an auto immune condition now i have Hughes syndrome and show lot of signs for crohns so just wondered really as...

My mum has crohns disease she was saying its an auto immune condition now i have...

kezebabe

•12 years ago

10 Replies

Update on social care.

Social Worker been so much nicer this time cannot do enough to help me.Allocated 2 1/2 hours a week care plus 3 hours to take me out shopping/appointments and...

Social Worker been so much nicer this time cannot do enough to help me.Allocated...

sharonap

•12 years ago

4 Replies

I've had a bruise on my arm since Nov and look like an IV addict. It's embarrassing! Anyone know how to make it fade????

julieej

•12 years ago

9 Replies

My insurance approved an Alere home monitoring system for INR? How accurate are they? I have to sign a disclaimer due to APS diagnosis!

julieej

•12 years ago

5 Replies

I've never had this many funny turns? How often do you get them, how long do they last & do they cluster?

I was only recently diagnosed with APS. I have had funny turns before, but they don't happen very often and they are rarely disruptive. I have had them for as...

I was only recently diagnosed with APS. I have had funny turns before, but they ...

SassyOne

•12 years ago

6 Replies

Social Security Disability in the U.S. and Antiphospholipid Syndrome

I was searching through the Social Security Agency website and came across information about Compassionate Allowances. There are 165 disease and conditions on...

I was searching through the Social Security Agency website and came across infor...

pumpkincake

•12 years ago

7 Replies

A couple of articles

Had a nose through the papers on the net... whilst letting a kidney infection settle down; 1....

Had a nose through the papers on the net... whilst letting a kidney infection se...

MaryF

Administrator•12 years ago

10 Replies

? difference between cerbral lupus and Hughes syndrome ?

Sorry might have spelt that wrong, about to go out so not checked it out on the web. the reason I am asking as Its on the BBC 1, this am a lady author had it...

Sorry might have spelt that wrong, about to go out so not checked it out on the ...

daisyd

•12 years ago

2 Replies

Hi error 5 on coagucheck

Problem I wrote about ? a week or two ago, anyway I phoned the company the problem she thought was due to the lancets, she has sent me some more as the...

Problem I wrote about ? a week or two ago, anyway I phoned the company the probl...

daisyd

•12 years ago

5 Replies

Can you develop APS later in life or are you born with it?

I have had a perfectly healthy pregnancy and baby. After this I had 6 miscarriages and I was finally diagnosed with APS. The hospital I am under has very...

I have had a perfectly healthy pregnancy and baby. After this I had 6 miscarriag...

Rbpw

•12 years ago

14 Replies

Holiday update!

Hiya! Following my last blog at half term, I thought I'd do another, because I'm on holiday and have time to! I took lots of your advice following the last...

Hiya! Following my last blog at half term, I thought I'd do another, because I'...

Tannyah

•12 years ago

5 Replies

FEELING SO COLD, FROM INSIDE,

I do not know whether anyone else suffers from feeling so cold, even in sunny warm weather. My husband says why is the heating on, but I am soooo cold. Today...

I do not know whether anyone else suffers from feeling so cold, even in sunny wa...

daisy11

•12 years ago

18 Replies

INR and pain

Hi all, I've been off sick from work for 3 weeks now, because of golfers elbow on the right and now tennis elbow on the left. I saw my GP back in December and...

Hi all, I've been off sick from work for 3 weeks now, because of golfers elbow o...

bevers1

•12 years ago

10 Replies

hate social care!!!!!

Just had financial assessment for social care.....At first it was yes you will qualify oh no got sums wrong you have to pay £25 per week... I only get 150 per...

Just had financial assessment for social care.....At first it was yes you will q...

sharonap

•12 years ago

4 Replies

Really need help

Hi all was just wondering if some of you could help I got diagnoised just over a year ago with aps and today I had a visit to the blood doctor well came away...

Hi all was just wondering if some of you could help I got diagnoised just over a...

Moonbug

•12 years ago

8 Replies

So should we be proactive on the dementia that APS may cause? Or would it be better not knowing what it is doing to our brain?

jean48

•12 years ago

28 Replies

Hotel stay

I have a apponitmet at St.thomas for 9am on a friday morning. I live to far away to travel that morning. Does anyone know of a good hotel with a reasonable...

I have a apponitmet at St.thomas for 9am on a friday morning. I live to far awa...

dulcie

•12 years ago

4 Replies

How often do you need to get checked?

Ive been diagnosed with Hughes Syndrome around 5-6 years and kinda just been left. Is that normal or do you need to be checked every so often?

Ive been diagnosed with Hughes Syndrome around 5-6 years and kinda just been le...

kittykat2881

•12 years ago

7 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2012

If you could ask the specialists anything at all what would you want to know?

Is APS a life threatening illness

bblood donation

Sad day.... another angel has joined its siblings :-(

How are you affected by a high INR?

Migraine and passing out

Herditory

d Dimer blood test

I found this Webinar on APS ...clinical but interesting

Do you suffer from back muscles that are hard as stone?

help i keep asking a big question but it gets nowhere

Atherosclerosis and Hughes Syndrome??

is Hughes syndrome and crohn's disease linked ?

Update on social care.

I've had a bruise on my arm since Nov and look like an IV addict. It's embarrassing! Anyone know how to make it fade????

My insurance approved an Alere home monitoring system for INR? How accurate are they? I have to sign a disclaimer due to APS diagnosis!

I've never had this many funny turns? How often do you get them, how long do they last & do they cluster?

Social Security Disability in the U.S. and Antiphospholipid Syndrome

A couple of articles

? difference between cerbral lupus and Hughes syndrome ?

Hi error 5 on coagucheck

Can you develop APS later in life or are you born with it?

Holiday update!

FEELING SO COLD, FROM INSIDE,

INR and pain

hate social care!!!!!

Really need help

So should we be proactive on the dementia that APS may cause? Or would it be better not knowing what it is doing to our brain?

Hotel stay

How often do you need to get checked?

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