Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for April 2012

STATINS for cerebral lupus

have just been prescribed this medication to help with funny heads. I will try anything to relieve them.

have just been prescribed this medication to help with funny heads. I will try ...

daisy11

•12 years ago

5 Replies

INR - are there any other APS sufferers with a target range from 3-4.5?

Just interested to know if anyone else has this target?

daisy11

•12 years ago

12 Replies

Does anyone suffer with really bad outbreaks of itching or urticaria?

Mel1270

•12 years ago

6 Replies

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Does weight gain effect medications efficiency?

I have been put on steriods which unfourtunatly have helped me to gain a lot of weight. Now pain, headaches, numbness etc are all back even though I had been...

I have been put on steriods which unfourtunatly have helped me to gain a lot of ...

louise78

•12 years ago

10 Replies

Average age to get a clot

Hi all just been doing bits of research I find a lot of these sites say about the average age to get a clot is 33 and just wondered how true this could be I'm...

Hi all just been doing bits of research I find a lot of these sites say about th...

Moonbug

•12 years ago

14 Replies

New article in April edition of Choice magazine

Hi All A new in-depth article has just been published: http://www.hughes-syndrome.org/publicity.htm. FYI - this article was written by our friendly...

Hi All A new in-depth article has just been published: http://www.hughes-synd...

Hidden

•12 years ago

12 Replies

Does anybody know about Sneddons syndrome secondary to aps?

I have been recently diagnosed with this, but I am convinced that I have Lupus also, can Lupus be dismissed, does anyone know what further tests I should have...

I have been recently diagnosed with this, but I am convinced that I have Lupus a...

traceylou

•12 years ago

14 Replies

Another rough patch

My liver biopsy showed several anomolies including rare plasma cells. I was told to see a Hepatologist due to the fact that I have some form of a rare...

My liver biopsy showed several anomolies including rare plasma cells. I was told...

Lori-Bowers

•12 years ago

5 Replies

E PETITION - Free Life long Warfarin - PLEASE SIGN

Hi All Thought this was worth some interest if your on Life Long Anti Coagulant - Please sign E petition for free Life Long warfarin on NHS....

Hi All Thought this was worth some interest if your on Life Long Anti Coagu...

Hidden

•12 years ago

2 Replies

The Science of APS

I have seen quite a bit of discussion of personal experiences with and management of APS/Hughs; but I have not seen much on the science of it, which I believe...

I have seen quite a bit of discussion of personal experiences with and managemen...

TheKid

•12 years ago

6 Replies

Is knowing too much a good thing??

Hi this is the first time I've written a blog and so forgive me if I ramble!! I just found HSF and have been reading every body's experience's but now feel...

Hi this is the first time I've written a blog and so forgive me if I ramble!! I ...

Bonbon41

•12 years ago

29 Replies

Pain and GP not helping.

I first went to my GP before x-mas with golfers elbow of my right arm, he said he would refer me to physio. Continued to see GP for different symptoms since...

I first went to my GP before x-mas with golfers elbow of my right arm, he said h...

bevers1

•12 years ago

15 Replies

Bruising after blood draws

I have my INR checked via blood draw and sometimes get a small bruise and sometimes not. Last week I had a draw and the nurse had trouble getting the blood...

I have my INR checked via blood draw and sometimes get a small bruise and someti...

tassie

•12 years ago

5 Replies

Anyone just on heparin/clexane instead or warfarin?

I've seen some say they switched back to heparin instead of warfarin. Just wondering how you know you are on the right dose? Also do you bruise a lot where...

I've seen some say they switched back to heparin instead of warfarin. Just wonde...

tassie

•12 years ago

19 Replies

Staffordshire & Derbyshire meeting.

Don't feel all alone on a ledge all by yourself, we are here for you to talk to :) Hi just a reminder of the Saturday, April 28th. at Stanhope, here is...

Don't feel all alone on a ledge all by yourself, we are here for you to talk to ...

Suzypawz

•12 years ago

9 Replies

Is anyone here a DES daughter/son or did anyone take DES while pregnant??

Diethylstilbestrol (DES) is a synthetic estrogen that was developed to supplement a woman's natural estrogen production. First prescribed by physicians in 1938...

Diethylstilbestrol (DES) is a synthetic estrogen that was developed to supplemen...

pumpkincake

•12 years ago

7 Replies

Hi, has anyone suffered blood in urine and adominal pain, but with no infection or protein.

Hi, my normally healthy 11yo was complaining of stomach pain but was not 'sick' in any other way, only tiered. She did a urine test that showed 4x blood. Was...

Hi, my normally healthy 11yo was complaining of stomach pain but was not 'sick' ...

Dani71

•12 years ago

6 Replies

Hard Lumps When Skin Is Bruised

Hello All, I am on 120mg heparin and 10mg warfan. For the last three months if I bruise myself it creates a hard lump....it eventually goes away. I have...

Hello All, I am on 120mg heparin and 10mg warfan. For the last three months ...

Mystynzl

•12 years ago

6 Replies

Looking for the best info sheet for employer

There are many out there and most sources of information have only the main symptoms, stroke, Heart attack, MC ...... There are so many other symptoms we...

There are many out there and most sources of information have only the main symp...

SassyOne

•12 years ago

4 Replies

Does anyone have blueish patches of color oin their skin? My family pracrice guy says it's from the plaquinal.

jean48

•12 years ago

6 Replies

Feeling good, and having regular inspiration

Hello everyone :), Yup I said HELLO everyone :) I hope you are all feeling well, and if not well then positive, if not, positive, then here is a little...

Hello everyone :), Yup I said HELLO everyone :) I hope you are all feeling we...

Lesley_D

•12 years ago

9 Replies

Just for info ......... the rlationship between MS and APS

Hi all - I just thought id put a quick note on here after a meeting with my Heamatologist, he says that the reason there is a link between MS and APS is not...

Hi all - I just thought id put a quick note on here after a meeting with my Heam...

emmaj

•12 years ago

8 Replies

Livedo Reticularis

I have been diagnosed for 20 years now. During this "bad flare-up" my doctor claims I am in coumadin failure. I have never had Livedo Reticularis and...

I have been diagnosed for 20 years now. During this "bad flare-up" my doctor cl...

pumpkincake

•12 years ago

14 Replies

My eyelids are really dry and hurt. I've tried various eye creams but they become inflamed. Does anyone else have this problem?

jean48

•12 years ago

4 Replies

how do I get to see a rhuematolaglogist, or immunologist,

I have aps,and a.f. and I could do with some advice on several health issues because of this?

I have aps,and a.f. and I could do with some advice on several health issues bec...

top_hole

•12 years ago

6 Replies

Worried about clot

Hi due to not having this very long I feel a bit silly asking this but today I smacked my knee on a cage and cut into my leg and it has swollen just round the...

Hi due to not having this very long I feel a bit silly asking this but today I s...

Moonbug

•12 years ago

4 Replies

Non therapeutic INR and gait abnormalities

After a year of limping and pain! I may have it! I've been in PT (again) and the therapist (again) says I have a "Trendelenberg Gait." I've been seeing him...

After a year of limping and pain! I may have it! I've been in PT (again) and t...

GinaD

•12 years ago

10 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for April 2012

STATINS for cerebral lupus

INR - are there any other APS sufferers with a target range from 3-4.5?

Does anyone suffer with really bad outbreaks of itching or urticaria?

Does weight gain effect medications efficiency?

Average age to get a clot

New article in April edition of Choice magazine

Does anybody know about Sneddons syndrome secondary to aps?

Another rough patch

E PETITION - Free Life long Warfarin - PLEASE SIGN

The Science of APS

Is knowing too much a good thing??

Pain and GP not helping.

Bruising after blood draws

Anyone just on heparin/clexane instead or warfarin?

Staffordshire & Derbyshire meeting.

Is anyone here a DES daughter/son or did anyone take DES while pregnant??

Hi, has anyone suffered blood in urine and adominal pain, but with no infection or protein.

Hard Lumps When Skin Is Bruised

Looking for the best info sheet for employer

Does anyone have blueish patches of color oin their skin? My family pracrice guy says it's from the plaquinal.

Feeling good, and having regular inspiration

Just for info ......... the rlationship between MS and APS

Livedo Reticularis

My eyelids are really dry and hurt. I've tried various eye creams but they become inflamed. Does anyone else have this problem?

how do I get to see a rhuematolaglogist, or immunologist,

Worried about clot

Non therapeutic INR and gait abnormalities

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