Hi all, I am new to the site and this is the second time I have tried to post this so fingers crossed it works this time!
I suffered a DVT back in 1998 when my two boys were 1 1/2 and 3 1/2 respectively so a surprise to everyone that with all that running around and as a non-smoker I'd be a candidate for a DVT. I underwent two tests for APS approx 6 weeks apart and received positive results for both, the latter test being a stronger positive so I received my diagnosis at that time. I continued on Warfarin but as the doctors struggled to settle my INR levels I was taken off after 6 months and told to “wait and see” as lots of people with APS don’t experience any symptoms. I have had no further confirmed episodes – although I have had a couple of hairy moments which I’m not sure whether it was the GP being careful or just me panicking about a re-occurrence - but as a precaution I was given Heparin for the duration of my third pregnancy and for 12 weeks post delivery. I was shocked to hear about the links between APS and miscarriage as I’ve been fortunate to have had no problems in this area (which I will be forever thankful for). I’ve also used Heparin for long haul flights to be on the safe side.
I don’t really understand how APS works because I’ve since been tested once with a negative result and so don’t know whether I’m considered to have APS or not. I’ve been suffering with severe headaches and tiredness for years and have always put it down to being a working mum of three lively boys. I’m not really sure where to go from here – whether I should be tested again or not? I’m due to have surgery in the next couple of months and I know that my surgeon is writing to the Haematology team to discuss whether I require long term Warfarin or not. Any thoughts anyone?
Thanks in advance and sorry for the length of this post!