On behalf of my daughter, Julia; and my wife and lastly, myself , I wish to extend to you all our gratitude and thanks for supplying such wonderful, accurate and insightful information that has led to us getting an appointment with Dr Tim Godfrey, whom we saw yesterday.
I have to say that it was such a relief to finally come into contact with someone over here who has some very relevant experience with Antiphospholipid syndrome.
Dr. Godfrey was excellent in his approach to our situation, extremely thorough in his examination and a real pleasure to meet.
He made us feel very welcome, made his explanations understandable to us all and treated both us, and our daughter with professional, nonjudgemental courtesy. A very pleasant exceptional experience.
This would not have occurred without the efforts of you all.
From our hearts to you,
Thank you so,so very much
Wayne L
Written by
WayneL
To view profiles and participate in discussions please or .
18 Replies
•
Great to hear you managed to get an appointment and thanks for the feedback. We have to rely on patients to let us know when they find a good specialist - it was down to some nice Aus patient who let me know about Tim Godfrey many years ago - so I'm sure they'll be pleased they helped so much.
Good to know that he is still practicing and is the APS expert I was told he was
Glad you found e support you needed in the doc' mentioned, also happy you found the help & advice needed of here, take care & keep us posted on how you're getting on, Sue
I am so pleased to hear this - we are all this together regardless of location - and together we can all change things. I wish you and your wife all the very best and best wishes to your daughter also. I do hope the new care turns out to be everything you hoped for and better. Mary F
so glad to hear your family had a positive appointment. Well done you for perseverence. Must be such a relief to be finally treated properly and with respect.
Glad we all could help. Im so grateful for this site, we all help each other.
I am really happy for you wayne i am glad you funally have medical support and as everyone above has said you still have your online family to talk to.
Good to know that someone has the knowledge and expertise in APS - I felt that over the years things were not being taken seriously and thankfully I have been referred to St T. I am now trying to be in control of my 'funny' heads etc and just learning to live with it. I have had it so long long and it is only having a great support network like Hughes that I have at long last began to understand this so I am really pleased that in Australia there is someone. I was told I could not visit my sister in Australia by my local hospital and said it was so risky etc etc but was told here in London, by consultant - "just go and have a good time" Hope your family will get the answers etc.
Take care.
That's great news Wayne - hope at last!
It was a lady called Kate Lee who gave me the name of Tim Godfrey - Kate has often talked about starting up a group/charity in Australia but things always seem to crop up. However, if you want to thank her personally her email address is: katy_lee@iinet.net.au. She has given me permission for other Australian patients to have her email address so I know she won't mind
Excellent news Wayne! A doctor who has heard of APS, is worth his weight in gold. One who is actually familiar with APS -- platinum. (How soon will I say "barrel of crude" instead of platinum?)
Glad you found a doctor who is taking an interest in your daughter...good doctors who are interested and have good knowledge about APLS are very hard to find.
Its taken me since 1999 to find someone who understands the roots of these frustrating conditions.
For anyone living in New South Wales, Australia there is a fantastic man I see regularly for both Lupus and Antiphospholipid Syndrome called Dr Stephen Adelstein. He's based at Royal Prince Alfred Hospital in Sydney and he's the head of the immunology department. Without his help and that of Dr Robert Ogle (obstetrician) at the same hospital I would not have had my beautiful boys!.(now aged 3.5years and 9 months)...We have lost 3 babies (11 weeks, 16 weeks and 21 weeks) in the process...but I have no regrets persevering and looking for answers.
All the very best for your daughter with all the tests.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.