Hi here is a link to the radio interview I diid in Corby.....at last I recieved the link!!!!!
Time to run & hide now as I'll be embarased of a couple of things that came out wrong.....like 'Proffessor Hughes found it!'.........what a stupid statement!!! what did he do....lift up a cushion & go...'there you are, I found you?'!!!!! duh !
Our other sister forum & my furry critter friend Sue gave me an idea earlier.........the poster I've made & have been putting it everywhere I go......If you could all put some wherever you can, doctors surgeries, community centres etc that would be great!
I take them to everywhere I go, wether its visiting family/friends, at gigs, on hols!! as on my website there are so many links I have added now to do with Hughes , including their website & charity info' & when I set my business off too next year there is a % of whatever is made to go to Hughes foundation too! also a couple of other business' that have said once it's up & running they too want to donate to Hughes foundation too!! so I'm trying to get the word out there ready!
So please the more of my leaflets that go out the better!!!
obviously for those in England really unless you can edit my leaflet & put for information on Hughes Syndrome only.
Let me know if you would want to do this & I'll work out a way to get it to you! I will have some with me for when I come down to the London meeting in May so if you want some then feel free to ask me, me & Sheena are so looking forward to it!! xxxx
If you pm me on either of the forums I'll post some to you if you like?
I know I was hoping to get to meet you too I'm sure there will be another time, plus I'll always put on the forums any gigs we do in other areas for any one that can make it too xx
No speakers on the charity PC so I will listen at home this evening if I get time It sounds as though it was a success for all the positive comments Thanks for doing this.
PS. I am seeing Lynne this lunchtime so will find out about the leaflets being couriered from Dorset x
Hi to anyone that would like to print any of my posters I've mentioned further up this post, if you pm me with your email address I can send you a copy.
I am at a gig again tonight at the JCB club with the guys yep there I will distribute lots of cards & posters again!
Please help me distribute them all over the country by passing on your email via p.m. & I will send you the word document, together it will get the Hughes foundation word out there to the general public
dearest -Suzypawz- i dont know if you remember me , my name is jet !! i would just love a copy of your material , i believe you can contact me ??? your long lost Buddy --------------------------- uncle Benny Jet
At last I have listened to it!! Well done on a great job Sue - interesting how the media always want to call it sticky blood - I think this must be easier for them to understand, don't even try mentioning antiphospholipid as their eyes glaze over ...
Thanks for getting the charity's name and website in there - just think how many other people you could have helped by doing this
Hi Jet, hope your ok bud......I'll try to email you later if you want? I'll send you the poster!!
Hi Kate, thanks hun I know.....he called it that yet I didn't even suggest it to him.....they must like you say just think thats the best way to describe it?
I'm still tryng to get in to other stations, papers etc!!!
I'm not giving up! the more I hear on here how the medical proffesion walk around with their blinkers on & dismiss Hughes as being serious the more I get annoyed & it's fueling me to do more!!!!!
Thanks again Kate, I hope to meet you one day maybe May in London? xx
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